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I had my first surgery in april 2012. The first month was fine. Then I started having heart burn like pain when I ate. A CT scan showed a lg stomach ulcer. Eating just continued to get harder for me so my surgeon set up an endoscopy. They confirmed the stomach ulcer and also found that my stomach outlet had narrowed to 9mm from the standard 13mm. They tried dilating the outlet and set up for me to come back for another endoscopy in 4 weeks. At that time they found the outlet to be only 2mm! I spent the next 5 months having endoscopy done every 3-4 weeks, the whole time only being able to keep down water and popsicles. It seemed like I was in pain all the time. My surgeon finally agreed to do a revision in sept. It was an open surgery and the healing has been slow and the pain great. I still have a feeding tube, but have only used it once. Unfortunately for the last week or so I've been experiencing the heart burn like pain and vomiting again. I'm not sure where I'll go from this point, but I hope you find a better solution to your problems than I did.
My prayers are with you and your family. Your problems almost mirror mine. I hope that you start to feel better soon. Do they have any ideas about why you are still vomitting or getting daily nausea? I don't know if this will help you but this works 85% of the time for me with my N&V. I take zofran ODT 8 mg (ODT stands for oral disintegrating tablet), then 2 hours later I take 50mg of Promethazine, then 2 hours later I take 10mg of Reglan. Then 2 hours later I start over again. After a day or so it seems to keep most of it under control but then I get my bad days where nothing helps. Keep us posted. I would love to know if they find an answer so maybe it may help me. I'm too the point where I vomit in my sleep and I aspirate and usually end up with pneumonia. The only thing left to fix me is sewing my vocal chords shut and giving me a permenent trach to protect my lungs. And at age 41 I don't want to live like that. So hopefully they will figure out something soon.
BTW, your surgeon Dr. Irgau, took out my GB at Christiana Hospital. Dr. Wynn has done several surgeries on me as well after my RNY, but had my RNY done in up state NY and B.O.B in Mexico. I do attend the support groups at Christiana since I live in DE.
I have been pretty busy in and out of the hospital, in cleveland and at home :(
I was admitted to cleveland clinic on August 7th and discharged on August 25th. I went to my appt with Dr. Kroh and then they sent me to see the nutritionist the next day and as soon as she saw me, and how much weight I had lost she said I needed to start J-tube feedings and it had to be in the hospital because it is dangerous to start j-tube feedings if your nutrition is compromised that badly, and she said it would only be a couple of days to get me stabilized, so my daughter and I had a hotel room, but there was no way I was sending a 16 year old to stay in a hotel room by herself and my hubby couldn't come up for a couple of days due to work, so they let her stay with me in my hospital room. I had to go through the ER to be admitted, but I had the most fabulous nurse named Becky, I will never forget her, she was the best. The nightmare started after that. I can only guess that the tube feedings went so badly because my small intestine is not absorbing, but in a week they tried about 5 different formulas with disastrous results...uncontrollable vomiting, pain, and diarrhea...after that week I begged them to stop doing anymore tube feedings and try TPN, so on August 20th they placed a Hickman catheter (IV in the chest) and started TPN (IV nutrition/vitamins)...I spent 3 weeks in the hospital, got out on August 25th...it was way too long...more to come, laptop battery croaking...to be continued
I know you are looking for a doctor in California but if you are willing to travel i found a great gastro surgeon out at the University of Pennsylvania hospital named Dr. Steven Raper. He is known as the doctor who fixes other doctors mistakes. I too had the RNY and had problems from week 3. I had so many things wrong with me from the by-pass it was unbelievable. But what they eventually found when the surgeon went in to reverse it was my stomach pouch had collapsed in on itself and I wasn't absorbing anything (vitamins, food, liquids, etc.) I wound up getting a gastrectomy because there was too much damage and I am 5 years post-op from my RNY and I'm still having problems. Good luck in finding a doctor. But I wouldn't wait too long cause the longer you wait the weaker your body will get.
on 9/19/12 5:56 am