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(deactivated member)
on 11/28/08 11:11 am - Toledo, OH
Topic: RE: Candy Cane Roux Syndrome
 It is similar, except the limb gets all twisted.

Sounds like you had some of the same symptoms though.  

Thanks for the information :)
Lisa W.
on 11/28/08 11:08 am - Charles Town, WV
RNY on 08/21/07 with
Topic: RE: Candy Cane Roux Syndrome
I am pretty sure I had this issue although that's not what my surgeon called it.  If it's what I'm thinking, basically the afferent limb of intestine right off of the pouch is too long and food can get caught, etc...and cause epigastric pain and discomfort.
So, I have had issues non stop with ulcers since surgery and basically what happened was I was still having pain after the ulcers were healed.  So, the surgeon went in to see if this limb was collecting food or something of the like.  Turns out I had a perforated ulcer AND needed to have the limb shortened.  So, he did both....I felt great afterward.  I still have recurring ulcers but have had not further pain from the "limb."
Hope this helps
Lisa W.
RNY 8/21/07
Starting weight 348
Current weight  188
Super Momma to:
Aidan 2/14/02 and
Aimee 2/06/04
First Post-op baby due 9/10!
(deactivated member)
on 11/28/08 10:30 am - Toledo, OH
Topic: Candy Cane Roux Syndrome
Has anyone heard of or had experience with Candy Cane Roux Syndrome after RNY?
If so, would you mind sharing your experience or any information you have?

Thanks

az
on 11/22/08 8:37 pm - MA
Topic: RE: Exploratory surgery (Cross post)

So sorry to hear you were back in the hospital Patricia.  How did they diagnose the current problem with your pouch?  thru CT scan??   I have been wondering how Renee was doing too. Hopefully she got thru her surgery without too much difficulty and is home recuperating and on the road to wellness.   I am doing a bit better on a new medication called Levbid and I have made up my mind I am going back to work tomorrow and not let this run my life.  I am a little scared after being out of work for almost 3 months but I just can't sit home another day.  I have to get back to some semblance of a normal life and focus on something besides when is the nausea going to hit? am I going to have double you over abdominal pain today?  I am also determined to not let this define who I am.  After all I had this surgery so I could live a healthy life not one filled with running back and forth to the doctors; multiple tests; all sorts of medications that don't help the situation.  I saw my doc on Thursday and she basically said this is how things are going to be and there is no quick fix.  Will work to try to manage the symptoms medically or I can have the GT put back in but there isn't a surgical solution to improve the symptoms.  The GT was a very difficult for me so I am not going that route unless the symptoms get so bad again that I can't eat/drink.  For now I will try to drink/eat when I can and do my best to manage the symptoms when they occur.  My biggest fear is when I get the severe abdominal pain now I just try to ride it out at home because every time I go to the ER the scans don't show anything serious.  I do worry though when it persists for hours on end is there something awful going on and I am ignoring it because I think it's the usual abdominal pain?  Well take care for now and try to keep your spirits up despite these difficult challenges we are facing!

prechrgrl
on 11/22/08 9:12 am - hamilton, OH
Topic: Severe anemia no iron Questions
Hello All,
I am 23 months out and after a week of daily IV iron with no difference in my labs I  had my first blood transfusion today because of  anemia and no iron. My feritin levels was below 1. And I am not absorbing iron at all. I was wondering if anyone knows if this something I am going to have to battle forever or if once my levels get back to normal will they stay that way for how long, the nurse today said my levels may come up a couple points and I will feel a little better but it wouldn't last long...

. I am to the point where I cannot function to work. My Hemo Dr say part of the anemia may be due to an inherited genetic disorder that he will confront after he gets my levels back to a safe normal range.

My question is are there any out there 5,10,15 yrs out dealing with this and does any one know about possibly getting social security disability from this? I work a high stress sales job and as long as I meet my monthly goals I get to keep my wonderful job and medical insurance. I have a gut feeling this is going to be an ongoing problem because I have this genetic anamia that is really aggravated now because I don't absorb iron sence having wls. If I can't work they won't keep me and there goes the insurance. I am almost out of sick days.


PRECHRGRL   250/159/150   
pdplpn
on 11/22/08 8:11 am - Uniontown, PA
Topic: RE: Exploratory surgery (Cross post)
I hope this finds you home Renee. I have written and spoken to AZ numerous times through my web support group Patricia's Hope and I like both of you have had more complications and surgery than I can stand. I just got out of Sewickley Hospital on the 12th after being severely dehydrated and ptn malnourished again. I was a pretty sick chick. They found this time that my pouch has completely shifted over toward the liver and is now tilted downward making eating even more of a challenege than before. I relie on my feeding tube for life. I was down to 139 and with the feedings increased have bumped up to 143.6 My surgeon wants me to gain 11 pounds total making me 150 before he can repair this hopefully in January.But, I need to add another 700 calories or so daily to gain 1 lb a week. Its a struggle to get the additional can of feeding down it leaves me feeling more stuffed than before. He wants me to graze all day... virtually impossible both physically and mentally. I will more than likely have to have TPN started again to get my weight up for the surgery. Ladies what do? I want to support all of you who have had complications... I feel you pain and nausea and all the other ratty feeling s we have endured. Renee please feel free and you as well AZ to call me. 724-880-8050 ( my cell) LMOM if I can't answer I still manage to work as difficult as some days are, but I carry the health insurance and virtually am the bread winner for my husband and I so... not much of a choice there. Renee I would come and visit with you in a heartbeat. I live in Uniontown and since I virtually live at the surgeon's in Sewickley I would love to come and meet with you. I have an appt on Monday, Dec 8th in the afternoon would really like to get together just say the word. My prayers are with you guys...please keep in touch... Patricia Patton Uniontown PA
Prncsangl
on 11/17/08 12:23 pm - Philadelphia, PA
Topic: RE: Internal Hernias and Bowel Obstructions

I am home now recovering from the multiple surgeries that I had.  First, let me tell you my medical history.

* April 27, 2001--an open gastric bypass surgery; weighed 415lbs and lost 160lbs.
*February 1, 2002--gall bladder removed due to multiple gallstones.
*August 5, 2004--c-section to deliver my daughter.
*October 23, 2006--hernia repair operation
*August 24, 2008--c-section (birth of my son), hernia repair and bowel obstruction.

After my hernia surgery in 2006, I went to my gasterologist, who also did my gastric bypass surgery, and told him that I had two lumps in my lower abdomen.  He told me not to worry about them because they were only scar tissues.  So, I didn't worry, but as time went on those lumps were getting bigger and at times were giving me pain.

In 2007, I became pregnant and during the ultrasound, it was discovered that I had another hernia.  In the beginning of this year, I was rushed to the emergency room because the hernia was giving a lot of pain and they were worried about the baby.  I went to my gynecologist on a Friday to get a note to go back to work and that Sunday morning, I started vomiting bile and had to be rushed back to the hospital.  This time I stayed in there for a week.  I took the risk (due to radiation) by having a CT scan while I was six months pregnant.  I prayed to God to let his will be done on the birth of this baby.  I needed to know what was wrong inside my abdomen and this test would be able to do so.  Also, I was refusing a MRI test because of my pain and panic attacks going in that machine.  The test was going to take 45 minutes and I refused to do it.  So, the doctors suggest a cat scan, but warned me of the risk of 4% radiation to the baby.

The test discovered that I had a bowel obstruction.  They took another ultrasound and could see that my bowels were back up and slowly passing through the hernia.  After 5 days, I went home.  About 1am on a Saturday morning, I was once again in severe pain.  I had shortness of breath, cold sweats and contractions.  When I arrived to the maternity triage, I was hollering so loud due to the pain that they had to put me in another room because I was frightening the other pregnant women.  They wanted to push the hernia back in and send me home because it was too early for the baby to be born.  He wasn't due until September 28th and I had him on August 24th.  I was in too much pain to have the doctor push the hernia back in.

In the same incision, they did the c-section then repair the hernia and then the bowel obstruction.  I stayed in the hospital a week and had a wound vac to drain the fluids from my wound.  The doctor said that I had too much pus and scar tissues for stitches.  My surgeon said that I would have developed infections.  I would recommend the wound vac to close up your wound.  It was a little painful at times, but it did its job.  My wound healed from the inside-out and I didn't get a keloid; just a thin pencil line down my abdomen.

I did gain weight after weight loss surgery.   My weight was 348lbs in June while pregnant.  I lost 60lbs by October.  After the surgeries, I constantly had diarrhea and still having them.  No matter what I eat, a half an hour later, I'm in the bathroom.  I happy that I'm at 290lbs and still losing, but I'm sore from all the bowel movements.  And, on the last visit with my surgeon, I asked him, "When are the diarrheas going to stop?"  He said, "You have to heal from the inside-out.  You were all messed up inside with scar tissues and pus.  You had a lot done."  I said, "I understand that, but I'm tired of pooping."  He said, "Well, that is going to happen, but it will ease up; it will get better."  I hope it's soon.  My maternity leave expires in February '09, and I hope to be completely healed because I don't want to be in the bathroom longer and more often than I am at my desk.

Although, my son's lungs were not fully developed at birth, with some medicines in the intensive care unit, he is doing fine and screaming at the top of his lungs.

I noticed above, in my medical history, that every two years, I'm having surgery.  What's up with that?!

 

az
on 11/17/08 3:30 am - MA
Topic: RE: Anyone with remnant stomach issues?
How you doing without the tube?  I hope you are tolerating it being out.  I was a little worried when I heard you had more pain and trouble eating again.  That is what is happening with me as more time passes without the tube in.  It's been 3 weeks and I seem to be having more bouts of the double you over pain and the nausea is back again intermittently.  For now I am trying to eat when I can and when the symptoms are back I just try to ride it out.  I haven't bothered the surgeon since the last time she said she did not know what else to do.  I would like to be able go back to work (in a different job) after Thanksgiving to see if I get my mind off of feeling like crap if that makes it any better but I am also scared that I will just get back to work and the symptoms will take over my life again and I won't be able to consistently work.  This is a *****!!
Juldon
on 11/14/08 1:17 pm - Grand Haven, MI
Topic: RE: Anyone with remnant stomach issues?
Sorry to hear that you gave up your job.  I so get the difficult and frustrating part of all of this.

As I suspected, I have been in some pretty good stomach pain and now it has become more painful when I eat!!  I can't figure that part out at all.

I was going to call the Dr. today, but decided I would just try to wait it out until my appt. on Thursday.  DH and I are hoping that it just might be taking more time to get that remnant to behave properly.

Stress is not good for us, that is for sure.  My symptoms always increase when I have stress.

Please stay in touch.  If you want, I can PM my e-mail addy to you.

Julie

 

 

 
   
Kim W.
on 11/14/08 10:16 am - Sayville, NY
Topic: RE: possible internal hernia?
I am so glad to have found this posting. I had a lap RNY on 1/30/08 and began to develop gallbladderlike symptoms in May. The typical epigstric pain that radiated to my back with bloating and gas pain after eating the smallest thing. I immediately got an abdominal sonogram which confirmed several gallstones. After severalmonths of these intermitten episodes,I finally took the plunge and scheduled surgery to remove my gallbladder. I had gallbladder surgery on 10/8/08 and went home the same day. the net day, 10/9/08, I developed the same bloating, gassy feeling that eventually advanced to severe abdominal pain with nausea and vomiting.At the advice of my surgeon, I went to the ER where I was admitted. The pain was so excrutiating that Morphine and Toradol didn't  put a dent in the level of pain. By the next day, 10/10/08 I was climbing the walls in pain and begged to get further testing done as I was going out of my mind in pain. A CT scan was done and confirmed a large internal hernia with necrosis/strangulation of the Roux limb. I was rushed into the OR from the CT scan where my surgeon had to perform an open procedure due to the severity of my condition.  My doctor said I was an hour or two away from serious trouble.  I woke up with a naso-gastric tube as well as a gastric (PEG) tube in my old stomach.  I remained in the hospital for 10 days.  I am now one month post-op and have not had any solid food since 10/7/08. I am being fed through the gastric tube with liquid nutrition six times daily and have lost an additional 30lbs since I came home from the hospital three weeks ago.

I have recently attempted to initiate liquids and some soft food such as puddings and cream of wheat. Unfortunately when I eat some thicker consistencies I develop a reflux and vomit. I had an upper GI series just today which confirmed a stricture or narrowing of the intestine. So I will follow-up with my surgeon to see if it is just swelling that needs further time to heal or if the narrowing needs to be stretched through an endoscopy or if a revision of my surgery is needed. 

It has helped me greatly to hear that others have had similar experiences so that we know we are not alone. I wish you all lots of luck and good health.
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