Recent Posts

Qbandiva
on 12/17/08 1:55 pm - Naples, FL
Topic: RE: NESIDIOBLASTOSIS hyperinsulinemic hypoglycemia?RYGB

UPDATE: I was hospitalized again on 12/11 after meeting with the Endrocronologist. After 4 days (no food and more dizziness) my sugars dropped to 45 and then I had my blood drawn 4 times. The 1st time @ 45 and the next 3 @ 10 min intervals after having a gluscose push via iv.

I get to go back to the endo on Fri for the results of the test. In the interim, I continue with the light-headedness, racing heart beats, chills, listlessness, and overall sense of malice.

I passed out 2 more times since my last post.  When I not passing out walking from the couch to the kitchen can be as harrowing as a trip to the theme parks.
 

"Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."   "Be yourself....everyone else is taken"

Before: 348 (01/01/2005) 
After:   165
mms0725
on 12/16/08 11:23 am - Tallahassee, FL
Topic: RE: Can Anyone Help This PAIN Go Away ???
Thank you for your reply.  I will also post on the grad board - like I said before, it's been ages since I've been on here so I wasn't sure which board would be best.

Thanks again!

Marcy

RNY 3/20/2002 - Best Decision Ever

jbird1972
on 12/16/08 9:01 am - Cary, IL
Topic: RE: I had my RNY reversed, anyone else out there?
Alyssa,
Gosh, until I decided to post the other day about my problems, I thought I was the only one...I can honestly say that I do feel your pain, and I'm sorry that you are struggling and suffering.  My one advice that I can give you is to listen to your body and what it is telling you....400 calories is not enough.  Have you had a body composition test done yet?  That will tell you how many calories your body needs in its current state, how much water your body is comprised of, how much fat, etc...When I had mine done it showed that I needed 1500 calories just to get out of bed in the morning, and at the time I was only getting between 500-600, and even now I am getting about 700-800, depending on the day and how it is going.  I get full really fast, just like it was right after the original surgery, and these episodes of my small intestine kinking is wreaking some havoc as well lately, it has been increasing in number over the last couple weeks.  I just saw the GI doc today, I had given up on them several months ago, but it was a mutual thing, I think they gave up on me as well.  I feel a little better after my appt today, he agrees that it is the intestine, he hopes it will resolve itself, but if it keeps continuing, he will do an upper GI with small bowel follow through to see if they can catch it on film, but he recognizes that these problems frequently elude testing.   I also sympathize with the frustration over being labeled as a mental patient/drug seeker...I am lucky that I work in the ER where I go, and my wonderful co-workers have gotten quite the education about gastric bypass, and really that is where the mis-labeling comes in, pure ignorance...I think all doctors, especially ER docs need a crash course in gastric bypass. Almost everything you read about complications from gastric bypass states that they are almost impossible to diagnose with tests, most are clinically diagnosed, but you need to know what you are doing before that can happen, very frustrating!  I had to switch primary docs a couple months ago because he told me there was nothing physically wrong with me, and handed me a box of anti-depressants!  Hang in there, I will add you as a friend and check on you, keep me posted!

Jules RNY 10/30/2007

Born Swimmer
on 12/16/08 9:00 am - Sunny, FL
Topic: RE: lap band complications
Well... I hope all went well with your surgeon.  I have had obstructions (to where I needed urgent unfills).  I have had stuck episodes lasting hours (yes, painful).  I have had a band slip and hiatal hernia.  Those both suck and produce horrific reflux.  Even with an empty band, I would choke on "stuff" at night... whatever was in my pouch from hours before or saliva/mucus from ingesting that at night.

Well, hope all is well and it isn't anything serious.  Check out the lap-band board if you need more help... lots of support and info over there.  I don't see much band talk on this board.

~AlyssaLips 2Band to Bypass (Band May 2005 --RNY July 2008)        

"Try not. Do, or do not. There is no try." ~Yoda

(What is Interstitial Cystitis)

Evolution of Dance :)

Meet my pouch... The Gremlin:
Go to fullsize imageImage Preview

Born Swimmer
on 12/16/08 7:33 am - Sunny, FL
Topic: RE: I had my RNY reversed, anyone else out there?
Jules,
thanks for sharing your story on reversal.  I have had nothing but misery since my surgery 7/24/08.  I know that it will be 5 months on x-mas eve, so I am trying to just hang in there and hold off if I can.  My surgeons "reassured" me that "it will get better".  I am trying to have faith and hope it is true.

I have had 4 EGD's to dilate strictures.  I have had a small bowel obstruction come and go for the first 4 months.  I had surgery a month ago to repair the obstruction (was admitted to the hospital so many times I can't count, but one time, they actually saw the obstruction on x-ray).  A month post-repair?  Still nauseated and trying not to vomit.  It has been misery... true living hell these past few months and I try not to cry when I think about all I have been through and what they expect me to live with. 

Can I ask you... are you still nauseated or sick most days post-reversal?  I know you said that you get partial obstructions here and there... and I have had that going on for months.... hope it is gone, but I don't know for sure.  I am still sick :(  and everything always looks normal on x-ray.  ****** me off.  Then they treat me like I am a drug seeker when all I want them to do is make the nausea/vomiting/pain stop.  I hate this!!!  I am very malnourished.  Albumin/prealbumin levels are low, RBC count is low, ferritin is low, vitamin D is low, b12 is low, b1 is low, etc.  They would rather I get nutrition orally since my body couldn't tolerate the g-tube nutrition (contrast put in there made me very sick as well).  I am getting in 2-3 protein shakes a day... at best 400 calories.  My BP is low, pulse high.  I am getting in enough fluids though, so they told me to drink/eat salty things.  It doesn't make a difference, I still get very dizzy upon standing.

Well, I guess that is enough on what I am dealing with.  I'd rather die than live like this... so either it gets better or I am looking at a reversal.  I am having heart palpitations (benign ones apparently) due to being so sick.

~AlyssaLips 2Band to Bypass (Band May 2005 --RNY July 2008)        

"Try not. Do, or do not. There is no try." ~Yoda

(What is Interstitial Cystitis)

Evolution of Dance :)

Meet my pouch... The Gremlin:
Go to fullsize imageImage Preview

Born Swimmer
on 12/16/08 7:17 am - Sunny, FL
Topic: RE: Gastric Remnant Issue?
They don't know for sure, but they wonder if my remnant stomach's acid is irritating or hurting my small bowel (I had major reflux issues pre-op... took 3 acid reducing pills pre-op and am on 2 now).  I did have a small bowel obstruction with surgery to "fix" that.  They believe that the stomach remanent couldn't drain very well as well as my RNY-intake route.  G-tube didn't put out much post-op and after 3 weeks it was removed.  The G-tube is so horrible for me.  I am so miserable, words don't do it justice.  I really hope you don't have any problems and need surgery.  Each surgery makes the RNY more and more dangerous to maintain (due to strictures and adhesions).

~AlyssaLips 2Band to Bypass (Band May 2005 --RNY July 2008)        

"Try not. Do, or do not. There is no try." ~Yoda

(What is Interstitial Cystitis)

Evolution of Dance :)

Meet my pouch... The Gremlin:
Go to fullsize imageImage Preview

Born Swimmer
on 12/16/08 7:08 am - Sunny, FL
Topic: RE: Hello, I'm having bad complications, need advice.
Yep... similar situation.  I had strictures in my pouch (seen via esophagus).  That appears to be open and working well, but I still foam constantly.  I am so nauseated that I had to be readmitted several times (honestly... over 7 times or more... lost count... in the last 4 months).  I too had a small bowel obstruction and kept getting readmitted and they checked that out since my nausea/vomiting is intractable.  They FINALLY saw the obstruction with a barium swallow and they surgically fixed that.  Nausea still here.  Pain, I get sharp stabbing pain that levels me (9 on a 1-10 scale).  I have had that a couple of times since my surgery and it is terrifying when it happens.  I certainly had that with my first obstruction (visible on x-ray and "cleared up" after a few days of being NPO with a NG tube (NOT FUN THERE)). 

So, my RNY story has been nothing but misery.  I wish and pray that a reversal weren't so dangerous.  My surgeons told me to "hold tight" and "it will get better"... but still waiting for that day.

~AlyssaLips 2Band to Bypass (Band May 2005 --RNY July 2008)        

"Try not. Do, or do not. There is no try." ~Yoda

(What is Interstitial Cystitis)

Evolution of Dance :)

Meet my pouch... The Gremlin:
Go to fullsize imageImage Preview

cajungirl
on 12/16/08 1:02 am
Topic: RE: Can Anyone Help This PAIN Go Away ???

Marcy, I have to agree with you the pain for ovarian cyst shouldn't be at waist level.  And, the CT does not always show everything.  I would be adament on your medical team checking you further, might even mean an exploratory surgery to check for a kink in your bowel caused by adhesions (common) or a Peterson's hernia.

There have been several long-term post-ops have kinks, obstructions (partial and full) or hernias and a similiar experience.  Whatever you do DO NOT keep quiet, keep pushing your doctor.

You might also want to post to the grad board where others see your post, I know it's active and a very knowledgeable, helpful board.

 

Proximal RNY Lap - 02/21/05

 9 years committed ~  100% EWL and Maintaining

www.dazzlinglashesandbeyond.com

 

jbird1972
on 12/15/08 9:06 pm - Cary, IL
Topic: RE: I had my RNY reversed, anyone else out there?
Thanks Gus!  Take care

Jules RNY 10/30/2007

mms0725
on 12/15/08 2:30 pm - Tallahassee, FL
Topic: Can Anyone Help This PAIN Go Away ???
Hi all.  It's been ages since I've been on this site and coming back tonight reminds me why I love it.  Hopfully someone here can help me out.  I'm 5+ years post RNY and like others have had my ups and downs.  I moved many states away from my WLS so it's not like I can just go ask him.

I've been having really bad pain about 2 inches left of my belly button at the waist line.  I thought I had a hernia, Dr said probably a pulled muscle that will go away on it's own. No such luck.  If I bend over, twist, laugh, cough, or God forbid I sneeze - I want to scream/cry.  It actually feels like my insides are ripping apart. I'm now stuck on the couch because doing everything else hurts.  I am not a couch-potato type and would like my life back.

Last week, Dr sent me for CT scan. I found out today that I have ovarian cysts (again).  P.I.T.A. BUT... I don't think those are way up at my waistline, I've had them often and they are always low-real low.  Unfortunately, the Dr is now so focused on those that he's ignoring the pain at my waist.  Dr states that if it was anything else, it would be on the CT report.  So now, I'm determined to figure it out on my own so I can get back to life. 

Has anyone had anything similar? 
What was the resolution? 
Any suggestions? 

Thanks everyone - I'm off to take a pain pill and attempt to sleep.

Marcy

RNY 3/20/2002 - Best Decision Ever

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