Recent Posts
Yikes! I'm sorry I suggested it. I feel like I have two great surgeons who are just stumped by what is causing my intestine to kink/telescope in on itself...as with most people on this forum, and in my opinion, with these problems, everytime I have a test, it is normal...but, I am not right yet. I just did a small bowel follow-through yesterday, and of course the results were "normal", so now what?? Who knows...more wait and suffer I guess, I try and stay positive, but it is difficult. Hang in there, I am thinking about you and hoping you get better soon!
So after that long post....has anyone else ever experienced this? My surgeon says its just a little bump in the road and I hope that is the case. I've lost 53lbs as of last Thursday and have been adjusting well to my new way of living.
Please see my previous post answers and my original post on this forum.
I hope you are all better soon!
I have two sides to my brain - a right side and a left side. The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252 GW 140 CW 140
Thank you.
Dr. Davis isn't famous, he's just on TV.
IMO, a good sugeon doesn't mangle up his practice with TV cameras. Their practice has grown because people assume that because they are on TV, they are famous or good.
I saw Dr. Garth Davis in April of 2006. He is the bariatric surgeon I mentioned met with me after a phone call from my WLS in Louisiana, and not only misdiagnosed me which could have led to my death but literally, when I asked about how we would control pain until we found an answer, said to me,
"Mrs. X, there is nothing wrong with you. You need to go home and get over yourself."
Good thing I didn't listen to him. I'd be dead.
Thank you for your kind words.
I have two sides to my brain - a right side and a left side. The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252 GW 140 CW 140
Oh my goodness, I am so sorry for your struggles...whenever I read a reply to my post and it is someone who is also struggling with all the same problems, I am very conflicted, it is comforting to know that I am not alone, but scary that I haven't seen a total resolution story yet...they all seem to be unsolved mysteries. You have been through the ringer! I noticed that you are in Houston...have you tried the famous Dr Davis' from Big Medicine? I think they are located in Houston...just a thought. You are correct, I am still struggling from my reversal, I feel like it solved one problem, but this small bowel obstruction problem has me running in fear from another surgery. I have wonderful, supportive people around me, and that has made all the difference, but I try and make little deals with God...my latest one is to make it through the holidays and to the new year so that I don't ruin the holidays for my family and a new year so that if I miss any work I can start FMLA leave again since I used all mine up in 2008. I will hope for a resolution for you, and all the good health coming your way!
With all the recent posts on severe complications and even reversals, I thought I should post this as a new thread even though I have shared it as a reply in a post below.
Here is a synopsis of my history:
Starting weight 252 / Current 140
RNY 11/03/04;
GB removal 12/04/04;
Plastic Surgery 06/14/05;
Internal Hernia/Adhesions 06/06/06; (exploratory surgery / eating very little / mostly liquids)
Plastic Surgery 07/15/06;
Partial Bowel Obstruction 11/12/06; (exploratory surgery - had been unable to eat)
Full Obstruction/Kink - complication from surgery 2 days prior / ICU blood transfusions and to stabilize 11/14/06; (I was in New Orleans for this surgery and not allowed to return home to Texas for a month to ensure blood loss had stopped and I was stable.)
Emergency Surgery for Obstruction 100% Shut down/ 24 hours from perforation/ Adhesions/Vertical Open 9 in. 07/19/07;
Infection from above surgery / ER Admit/Unstable/Erratic HR & BP/Ambulatory transfer / inpatient ICU until stable/ 07/30/07;
SBBO 08/27/07;
Hernia Repair (3) and Lysis Adhesions that had been causing significant pain, unable to eat, and partial obstruction as well 04/01/08;
Wound infection in patient ICU to clear and stabilize/ admitted 04/22/08;
Hernia Repair with Mesh 09/19/2008 / stayed in New Orleans for 5 days after discharge.
ER admission for Infection & Internal Bleeding/ICU with transfusion 09/30/2008 (had I gone to sleep that night, I would not have survived).
Additional complications: numerous emergency room visits for pain, nausea, vomiting, dehydration, etc. with no resolution, peripheral neuropathy, pernicious anemia, severe dehydration, severe constipation, reactive hypoglycemia, only able to consume liquid food sources, severe IBS, parasites, confusion, loss of memory - short and long tern, loss of balance, loss of vocabulary, tingling in extremities resulting in partial paralysis which was related to malnutrition and difficulty keeping vitamins levels in normal ranges, lost too much weight and struggled to gain to healthy weight, ............and who else knows what I can't remember......
Notes for those suffering from "unexplained pain:"
Only ONE (1) time did a bowel obstruction appear on a CT Scan -- that was in November of 2006 after I had surgery for a partial bowel obstruction -- it was a complication to a partial bowel obstruction repair found through exploratory surgery.
It's simply not true that an obstruction (particularly partial) will show up on a CT scan or any other testing for that matter. I am proof.
I don't know what advice to give anyone other than to be your own very strong and determined advocate. No one knows your body like you do. If any pain worsens, go to the ER. Demand a consult with a bariatric surgeon. I have, however, done all of these things where I live (had to relocate to Houston after Hurricane Katrina) and *I* have had to educate the doctors such as PCPs, Gastros, etc. in bariatrics.
I am so sorry you have had to deal with all of these complications. I understand that pain and complications such as this is debilitating and affects one's entire life and the lives of those around them.
My surgeon has now discussed "REVERSAL" with me three times. I keep holding out hoping that we can find a way to overcome these things (some we have and some are a daily struggle but that are helping with using creative ways to keep vitamin levels within a decent range. The reversal is not out of question; however, with each surgery, it appears that I develop more complications and the reversal is such a major surgery (more so than the original) that it is highly unchartered waters and does not promise me complete resolution. In fact, things could get worse. It's not an easy decision. As I read your synopsis, I'm not certain how much the reversal has helped you and this is what scares me. I don't want to get worse and/or subject myself to yet another surgery as I never have time to fully recover from any of them. I have had 12 surgeries in 4 years (2 plastic which were elective). That's an average of 3 surgeries a year or every four months. Between all of the anesthesia and medication I have been on, my body has never had to time to purge of medication and properly heal. I keep hoping I can get through 18 months to fully recover from a surgery but I can't seem to make it. I'm now 3 months from my last surgery and I am having a very difficult time adjusting to the mesh and still have extreme abdominal pain. It takes pain medication in extremely high dosages to even take the edge off of the pain and it has been very difficult if not impossible to find a pain management specialist who understands and will prescribe what it takes to make my life more normal. I was on the Fentanyl Patch for a while and it was a God-send but my current PMS has stopped prescribing this altogether -- what I am taking now is not helping. I am trying to find a new PMS but this has not been easy. No one wants to take me in. I'm like the rat specimen/study that has gone totally wrong and no one wants the liability.
To make the entire situation worse, as I briefly mentioned earlier, I moved to Houston just over three years ago and none of the bariatric surgeons here will take me on as a patient. I have contacted them ALL including the teaching institutes. I was able to see one bariatric surgeon early on (well after nearly 7 months of pain, 5 doctors, and over $100,000.00 in testing) as my WLS from LA made a personal phone call to a bariatric surgeon with whom he attended medical school and agreed to see me as a favor. I went down with all my labs and films and he told me it was all in my head. His misdiagnosis nearly killed me. I live in the medical Mecca of the south and I can't find adequate care. Unbelievable!!!!!
I don't know how much this has helped you. I will send you a friends request so that you can read additional information on what I have been through.
I have tried to keep the main points and thoughts in order but I haven't been able to give my FULL, UNDIVIDED attention to typing this so I don't know how well I did. I am, of course, happy to continue communicating with you in the future. Perhaps we can help and support one another.
I am so sorry that all of you have had so many complications. I wish and pray for all of us to have health and happiness.
I have two sides to my brain - a right side and a left side. The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252 GW 140 CW 140
Here is a synopsis of my history:
Starting weight 252 / Current 140
RNY 11/03/04;
GB removal 12/04/04;
Plastic Surgery 06/14/05;
Internal Hernia/Adhesions 06/06/06; (exploratory surgery / eating very little / mostly liquids)
Plastic Surgery 07/15/06;
Partial Bowel Obstruction 11/12/06; (exploratory surgery - had been unable to eat)
Full Obstruction/Kink - complication from surgery 2 days prior / ICU blood transfusions and to stabilize 11/14/06; (I was in New Orleans for this surgery and not allowed to return home to Texas for a month to ensure blood loss had stopped and I was stable.)
Emergency Surgery for Obstruction 100% Shut down/ 24 hours from perforation/ Adhesions/Vertical Open 9 in. 07/19/07;
Infection from above surgery / ER Admit/Unstable/Erratic HR & BP/Ambulatory transfer / inpatient ICU until stable/ 07/30/07;
SBBO 08/27/07;
Hernia Repair (3) and Lysis Adhesions that had been causing significant pain, unable to eat, and partial obstruction as well 04/01/08;
Wound infection in patient ICU to clear and stabilize/ admitted 04/22/08;
Hernia Repair with Mesh 09/19/2008 / stayed in New Orleans for 5 days after discharge.
ER admission for Infection & Internal Bleeding/ICU with transfusion 09/30/2008 (had I gone to sleep that night, I would not have survived).
Additional complications: numerous emergency room visits for pain, nausea, vomiting, dehydration, etc. with no resolution, peripheral neuropathy, pernicious anemia, severe dehydration, severe constipation, reactive hypoglycemia, only able to consume liquid food sources, severe IBS, parasites, confusion, loss of memory - short and long tern, loss of balance, loss of vocabulary, tingling in extremities resulting in partial paralysis which was related to malnutrition and difficulty keeping vitamins levels in normal ranges, lost too much weight and struggled to gain to healthy weight, ............and who else knows what I can't remember......
Notes for those suffering from "unexplained pain:"
Only ONE (1) time did a bowel obstruction appear on a CT Scan -- that was in November of 2006 after I had surgery for a partial bowel obstruction -- it was a complication to a partial bowel obstruction repair found through exploratory surgery.
It's simply not true that an obstruction (particularly partial) will show up on a CT scan or any other testing for that matter. I am proof.
I don't know what advice to give anyone other than to be your own very strong and determined advocate. No one knows your body like you do. If any pain worsens, go to the ER. Demand a consult with a bariatric surgeon. I have, however, done all of these things where I live (had to relocate to Houston after Hurricane Katrina) and *I* have had to educate the doctors such as PCPs, Gastros, etc. in bariatrics.
I am so sorry you have had to deal with all of these complications. I understand that pain and complications such as this is debilitating and affects one's entire life and the lives of those around them.
My surgeon has now discussed "REVERSAL" with me three times. I keep holding out hoping that we can find a way to overcome these things (some we have and some are a daily struggle but that are helping with using creative ways to keep vitamin levels within a decent range. The reversal is not out of question; however, with each surgery, it appears that I develop more complications and the reversal is such a major surgery (more so than the original) that it is highly unchartered waters and does not promise me complete resolution. In fact, things could get worse. It's not an easy decision. As I read your synopsis, I'm not certain how much the reversal has helped you and this is what scares me. I don't want to get worse and/or subject myself to yet another surgery as I never have time to fully recover from any of them. I have had 12 surgeries in 4 years (2 plastic which were elective). That's an average of 3 surgeries a year or every four months. Between all of the anesthesia and medication I have been on, my body has never had to time to purge of medication and properly heal. I keep hoping I can get through 18 months to fully recover from a surgery but I can't seem to make it. I'm now 3 months from my last surgery and I am having a very difficult time adjusting to the mesh and still have extreme abdominal pain. It takes pain medication in extremely high dosages to even take the edge off of the pain and it has been very difficult if not impossible to find a pain management specialist who understands and will prescribe what it takes to make my life more normal. I was on the Fentanyl Patch for a while and it was a God-send but my current PMS has stopped prescribing this altogether -- what I am taking now is not helping. I am trying to find a new PMS but this has not been easy. No one wants to take me in. I'm like the rat specimen/study that has gone totally wrong and no one wants the liability.
To make the entire situation worse, as I briefly mentioned earlier, I moved to Houston just over three years ago and none of the bariatric surgeons here will take me on as a patient. I have contacted them ALL including the teaching institutes. I was able to see one bariatric surgeon early on (well after nearly 7 months of pain, 5 doctors, and over $100,000.00 in testing) as my WLS from LA made a personal phone call to a bariatric surgeon with whom he attended medical school and agreed to see me as a favor. I went down with all my labs and films and he told me it was all in my head. His misdiagnosis nearly killed me. I live in the medical Mecca of the south and I can't find adequate care. Unbelievable!!!!!
I don't know how much this has helped you. I will send you a friends request so that you can read additional information on what I have been through.
I have tried to keep the main points and thoughts in this post/information in order but I haven't been able to give my FULL, UNDIVIDED attention to typing this so I don't know how well I did. I am, of course, happy to continue communicating with you in the future. Perhaps we can help and support one another.
I am so sorry that you have had so many complications. I wish you health and happiness.
I have two sides to my brain - a right side and a left side. The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252 GW 140 CW 140
Anyway thank you for writing back, and remember that the doctor does make the difference. Yo u need to see the best doctors. Go and make a show at the emergency room of where you know the best doctor are and they have to treat you if you are post op.
I'm going to find a new Dr - this one claims to have experience with WLS, but I think it's more of a claim than a truth.
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Marcy
RNY 3/20/2002 - Best Decision Ever
Just some thoughts. I hope your feeling better soon.