Recent Posts

(deactivated member)
on 3/2/10 1:46 am - AZ
Topic: RE: Lap Band - Constant Indegistestion/IBS Symptoms

Bands suck the life right out of you.  The constant problems and assorted ways of puking your guts out (sliming, foaming like a rabid dog, etc.) I don't miss that thing.

Honestly, I wish they'd take it off the market.  Most get it removed because it sucks the life out of them just like us.

M M
on 3/1/10 10:18 pm
Topic: Insulinoma Testing

Connect the dots, la-la-la-la.

Pee_wee_hermanI saw an endocrinologist today, and apparently I went to the same doctor before back in 2007 with complaints of hypoglycemia, but I guess I just don't recall whatever came of it?  He -- unlike the Bariatric Surgeon -- seemed to recall who I was.  Go figure.  

It's now 2010, and finally... I will get testing to rule out or finally diagnose what I thought I might be dealing with, insulinoma due to nesidioblastosis caused by gastric bypass surgery.  

"With the increasing popularity of gastric bypass surgery for morbid obesity, physicians caring for these patients need to be aware of associated hypoglycemic syndromes. Indeed, hyperinsulinemic hypoglycemia has been described in these patients, primarily due to nesidioblastosis (2)."

I will be going inpatient for a 72 hour fast - 

"The standard test remains a 72-hour fast while the patient is closely observed (1); (3). More than 95% of cases can be diagnosed based on responses to a 72-hour fast. Serial glucose and insulin levels are obtained over the 72 hours until the patient becomes symptomatic. Because the absolute insulin level is not elevated in all patients with insulinomas, a normal level does not rule out the disease; however, a fasting insulin level of greater than 24 mU/mL is found in approximately 50% of patients with insulinoma. . Values of insulin greater than 7 mU/mL after a more prolonged fast in the presence of a blood glucose less than 40 mg/dL also are highly suggestive."

Okay.  I understood the process when the doctor described it -- however -- it does seems backwards, considering I typically drop drastically after eating, but since I do drop out of the sky sometimes and in the middle of the night?  

 

  • About 85% of patients present with symptoms of hypoglycemia that include diplopia, blurred vision, palpitations, or weakness.
  • Other symptoms include confusion, abnormal behavior, unconsciousness, or amnesia.
  • About 12% of patients have grand mal seizures.
  • Adrenergic symptoms (hypoglycemia causes adrenalin release) include weakness, sweating, tachycardia, palpitations, and hunger.
  • Symptoms may be present from 1 week to as long as several decades prior to the diagnosis (1 mo to 30 y, median 24 mo, as found in a large series of 59 patients).
  • Symptoms may occur most frequently at night or in the early morning hours.
  • Hypoglycemia usually occurs several hours after a meal.
  • In severe cases, symptoms may develop in the postprandial period. Symptoms can be aggravated by exercise, alcohol, hypocaloric diet, and treatment with sulfonylureas.
  • Weight gain occurs in 20-40% of patients. Because of hyperinsulinism, many patients may be overweight.
  • Presence of symptoms of hypoglycemia 
  • Documented low blood sugar at the time symptoms are present
  • Reversal of symptoms by glucose administration.
Yeah, I haz those.  Did you see the little party I threw over here?  A DIAGNOSIS?  Could you imagine? Could THIS explain EVERYTHING?!  MAYBE.

 

But, I know, I know, it might not have a damn thing to do with my pancreas.  

I may simply just have reactive hypoglycemia, and I might just simply have seizures, etc.  But wouldn't it be lovely to connect dots?

 

And, I swear, if the dots get connected, and it turns out that my self-diagnosis circa 2006/2007 was CORRECT?  I want my MD, retroactive, and about four years back, please.  And then?  For repayment -- I want answers for all 116 people on my seizure registry. There's GOT to be something to this.

PS.  Read thisholy **** right?  *thud*  (You have to read my archives.  It's ALL there.)

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Nic M
on 2/28/10 1:33 pm
Topic: RE: Lap Band - Constant Indegistestion/IBS Symptoms

"Horror" is the perfect word.
Another "fun" little side effect from the amazing amount of nerve damage I sustained from my screwed up band is this:  every so often, I will turn over in bed and feel something 'twist'... and I spend the rest of the day sneezing, gasping for air and hiccuping. Today was one of those days. It gets so bad that I simply want to go to sleep and not wake up. It's horrible. I sneezed so hard and for such an extended period once that I passed out and chipped my tooth.

Just another 'wonderful' side effect from an ********urgeon who didn't know what he was doing when he placed the band on my guts!

I'm so happy to be rid of that thing! 

 

 Avoid kemmerling, Green Bay, WI

 

kdesiatorn
on 2/26/10 9:15 pm
Topic: RE: I wanted to post an update
 Sorry Girl, 
I haven't been on in a while either.  I'm so sorry to see what has happened. You have taken the "nurse"s Curse" to a whole new level. I have been so concerned about you when I didn't see a post for a while. 
Don't worry , some of us understand things can go horribly wrong sometimes.  I will support you anytime , no matter what. 
When you interview, just tell them you had medical issues , but they are resolved now. They don't need the details. If you pass the Physical , that's all that matters! 
Keep me posted on how things are going, and you can alway PM me with your e-mial.  Would love to meet up some time! 

Hang in there!!



Same days it doesn't pay to chew the restraints off...   

    
(deactivated member)
on 2/25/10 5:07 am - AZ
Topic: RE: Lap Band - Constant Indegistestion/IBS Symptoms
I agree, get that thing out! Bands are nothing but a horror.

If you did well with weight loss having restriction only why would you want bypass? You could get a sleeve instead. Safest surgery type long term. FAR safer than a stupid band! I've been banded, I feel for you.
mmeda
on 2/23/10 3:35 am - New Baltimore, MI
Topic: RE: Gastric Fistula
Good Luck Elizabeth!
mmeda
on 2/23/10 3:34 am - New Baltimore, MI
Topic: RE: Gastric Fistula
My daughter is going through the same thing now. She had the fistula repaired in December and has since ended up having several more procedures including two stent procedures
due to unforeseen leaks and a scar tissue blockage. It has been a nightmare for her and she is four years post op with no previous trouble until she started feeling hungry all the time like you said.
I hope everything goes well for you, I hear this kind of trouble she is having is rare.
Diana
mmeda
on 2/23/10 3:27 am - New Baltimore, MI
Topic: RE: Leakage?
How did the situation work out for you? My daughter just had the same trouble after four years post op and had to have it surgically fixed. Pretty weird after so many years for both of you?
Diana
pink72284
on 2/22/10 3:52 pm - Lancaster, CA
Topic: RE: Possible Internal hernia?
IM SO SORRY!

I have the exact exactttttttttt pain. Internal hernia 10 % of gastric bypass patients get it. I was the lucky one not 1 time but now i have one again....


Its super hard to find. They did over 20 test and gave up and did exploratory surgery on me. That what they found. But now im getting a run around since they did more test and nothing shows .. i have a new dr and they wont open me up again since they cant prove it...

Its exactly the same pain as before. Its horrible! Im so sorry! Best of luck
HOLLI00
on 2/20/10 5:45 am - ALTUS, OK
Topic: RE: Proton pump?
I wasn't sure I heard him right so you are probably right. I didn't really go into with him too much because why go there if we can try meds first? I'm pretty convinced it is probably an ulcer causing the problems as I've started having sharp pain with it right below my breasts (already lost my gall bladder so it's not that but feels similar to when my gall bladder stopped functioning)in the center. I'm going to call the doctor Monday but his office is over two hours away and I'm a full time student and working so it's such a hassle for me to go that I usually try to put off any issues until my check-ups. Maybe he can let my PCP do whatever they need to do to check for an ulcer (do they just go off of symptoms or do they actually go in and look?) so I can get care here or try a different/additional medication. I refuse to google medical stuff because it always gets me more worked up than help. I'd rather just come here and ask since there seems to always be someone here that has been through it!
Holli Tamale
236.8/135/150

*RNY surgery done June 17th, 2009        
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