Think I am done

Hello everyone i have never post anything before but I just can't do this anymore and really need to know if anyone is dealing with this. I had my gastric bypass about 9 years ago and I have had nothing but problems I'm always in pain I' am always weak and tired I 've had every and I really mean had every test done known to man to find out whats going on with me .  I had very low iron I'm getting treatments for that now but as of today I have to much ok fine I got that I am still so very weak and tired . I do have 2 ulcers on my staple line there's my pain I got that . there's nothing they can do about my ulcers just meds but that only work for so long. I am tired of getting poked with needles I have scar tissue and that hurts when getting poked .  My body breaks down and I cant go any more . There trying to say now that there is something else going on with me but they cant seem to find anything I really feel that I have ruined my life. Having the rougn-en-y bypass was the biggest mistake of my life I am so miserable I have more health problem then I have ever had it really feels like I am dying and I think that I am done going to see Dr's all I have to do is tell them that i had bypass their whole mood changes I feel like all there trying to do is make me as comfortable as I can I feel like they all know something about this but not say what .

I can feel your pain.  I actually had to have mine reversed.  I have a friend that has had several problems and surgeries since her original RYB.  We actually talked to OH about setting up a small group for support of those that have had or are having complications.  If you are interested, I will send you an invite once we get it up and rolling.

-Kim T

Thank you for your reply I would love an  invite once its up. My Dr's said that I cant have mine reversed they cant even go near it . I hope you are doing well with the reversal.  Its just so frustrating to know that this is how my life ended up. I had such hopes and dreams on what my life would be like after I had lost all the weight , this wasn't it.........
Julie

Julie,
First, I'm very sorry that you are so ill and having so many problems.  I too have been suffering for about three years and for me the damage is permanent, but it's complicated and every case is different, so I don't say that to discourage you or scare you more than I am sure you already are.  Please check out my page so you can get a feel for what I have gone through, not sure if it is the same as what symptoms you have had.  I think the best advice is to get somewhere that really knows their stuff, like Cleveland Clinic (That's where I have been going), and I realize that this may mean driving hours or getting on a plane, but I really wish I had done it sooner.  I'm not going to speak for all people, but here is something I have learned through this experience...I think a LOT of people who have these surgeries start putting their surgeon on a giant golden tower, only slightly right of God, I don't think I was quite that far gone, but close to it.  It was a little more complicated for me because I worked with the doctor, so the level of trust was even greater than the normal person.  I think that some patients start this hero worship thing, and I do still believe in the surgery, but some people need to wake up, it is just a tool, believe in yourselves.  It is the patient that does the work, the patient who goes through the ups and downs.  The surgeon does a job, gets paid, and they may have a "passion" for it, but it is also a lucrative business.  I'm sure I sound like sour grapes, but I have just really become disgusted with hero worship lately and when you are the patient who is so ill, it doesn't help.  You have to get the BEST care, the most skilled, no matter what.  You have been at this for so long.  Please feel better.  It looks like the closest city to you is probably Vegas, and you should do your own research, but I can give you the benefit of mine...Mayo Clinic is #1 in the nation for Digestive Disorders, and Cleveland Clinic is #2.  It really was a fluke that I ended up at Cleveland, and they have been a Godsend. They helped me more in 5 days than I had progressed here in 2 years, but when you are caught up in it, there is so much faith and trust, you can get really blinded and start believing these doctors when they tell you nothing is wrong, or they can't find it.  Have faith, you will have to put your trust out there again, a little at a time, but trust YOU because you know that you are not crazy.  Take care, and get well!
Jules

Jules Thank you so much for writing me it feels so good to have someone to talk to .. I am so very sorry for what your are going through . I have been going to different Dr.s in Las Vegas for about 4 years now getting pushed to one Dr. to another . then they sent me to a gastric Dr. I have been seeing him for some time now . Hes the one who found my ulcers .I do have to say that Iam really grateful for him after all these years he  is the only one who has tried to help me . he sent me to a blood Dr for my iron. my damage is also permanent it really feels like body is deteriorating and over the years it just has gotten worst . Last week when I went to the Dr's. and getting told that they (the Dr.s) cant do anything for me any more . I just was so shocked . I try to be so positive but when Iam in so much pain its really hard to be positive .
again thank you so much for writing me back  its nice to have someone to talk to.
Julie

Julie,
No need for thanks :)  It is nice to have people to talk to, and the reality is, people who have problems don't usually go to support group, problems gaining or losing weight- yes, but people don't usually talk about devastating health issues that come afterwards, for whatever reason, at least in my experience.  Take care, and fight for YOU :)
Jules

 I've been waiting to share with someone that has been going through the pain/suffering that i have been. I'm just sorry we have to share the complications of RYN together. I have reached my end as well with the rollercoaster ride I've been on since I had the surgery. It wll be a year in January and let me just say I look horrible, feel horrible and don't have the motivation, energy, personality I once had. Solid foods are unbearable, I feel everything is stuck inside my chest, getting my protein levels are a joke, especially when I barely can keep anything down. The worst part for me is my husband and kids see me wasting away and constantly worry over me. I went from a size 24 to a size 0 or 2 in less than a year. Can you imagine how frail I look? I see my surgeon after Thanksgiving and actually want to beg him to reverse my surgery, but I'm not holding my breath on that topic. I did all the research and thought I was prepared for the RYN, but I guess my body had different ideas. I just want you to know that I feel your pain and hope you find some comfort in knowing you have others to share it with. I really wish you peace and health.
                                                                                      Marie.

Marie  I'm very sorry for what you are going through . I hope when you go see your Dr. he helps you an every way possible . I to thought I did all my research . I had to wait 2 years before I had mine done. I had to fight with my insurance company to have it done , I was so determined to have this done . I went to classes,read books did Internet research on the RYN and also on the Dr.  Not any where did I find that my body would break down and be sick the rest of my life. I to also understand how your family feels. you know one of the most hardest things to deal with is that  I'm the mom and I am supposed to be taking care of them instead there taking care of me . It breaks my heart . I do have to say that I've have been blessed that I have a wonderful husband and 3 wonderful boys they take care of me . I thought that this would of been the best thing that I ever done I had hopes and dreams of what my life would of been like I never never imagined this not in a million years. I sometimes get so angry at myself and just wonder why ! I pray the Dr.s can help you . Please keep me updated !
    Julie

 I know exactly what you mean about being a mom and the roles being reversed. Most nights my husband has to comfort me through my sickness and he does it with so much compassion. For some reason at night I get to the point my heart beats out of chest and I almost feel like I'm going to pass out. My blood pressure is low and keeping me dizzy, scared and shakey. Thankyou for your knd words, and I will keep in touch about my situation. I told my husband last night about my feelings of reversal and he said if my surgeon doesn't agree, then we'll look for someone that will listen. Happy Thanksgiving and God Bless. Marie.

My husband says the same thing  for me it breaks my heart cause we both know there's nothing that can be done . But I am learning how to deal with it . I think that we have the same thanks on this day and that is are husbands and kids I know without them I would have mentally lost it . I thank you for letting me vent to thank you so very much . A Happy Thanksgiving to you and your family