Candy Cane Roux Syndrome

Has anyone heard of or had experience with Candy Cane Roux Syndrome after RNY?
If so, would you mind sharing your experience or any information you have?

Thanks

I am pretty sure I had this issue although that's not what my surgeon called it.  If it's what I'm thinking, basically the afferent limb of intestine right off of the pouch is too long and food can get caught, etc...and cause epigastric pain and discomfort.
So, I have had issues non stop with ulcers since surgery and basically what happened was I was still having pain after the ulcers were healed.  So, the surgeon went in to see if this limb was collecting food or something of the like.  Turns out I had a perforated ulcer AND needed to have the limb shortened.  So, he did both....I felt great afterward.  I still have recurring ulcers but have had not further pain from the "limb."
Hope this helps

 It is similar, except the limb gets all twisted.

Sounds like you had some of the same symptoms though.  

Thanks for the information :)

I have been researching this to finding out I have a candy cane roux limb of 5 cm.  I am two and a half years out.  A year ago December, I got really sick and had to be hospitalized...they had no idea what was wrong and sent me home...it has happened a few more times since...and I've had one exploratory surgery (after not eating for a few days).  So they found nothing.

I just had a scope done at Mass General in Boston and she found the candy cane limb.

There is only one article out there (one study) that I can find, and one person's story if you google it.  I am looking for info as well.  I am so sick of being sick all the time and vomiting after eating.  I'm anemic all the time, constipated all the time...and my pain goes up to a level 10 at times but no one will treat me because they don't know "for sure" what is causing the pain and because i'm a former "fat" person with food addiction issues, they think automatically I'm an addict and can't have meds.  I have wished that i would fall and BREAK something so that they would have to give me something for pain...how sad is that????????

I am hoping now that I have these reports that my original surgeon will help me.  Other than that...I'm not sure what to do.  I don't want a reversal...I just want to be well.  I feel like I"m going to pass out all the time.  And yes, I dump VERY badly after certain foods...so I know the difference.  I actually appreciate my dumping syndrome because if I could eat ice cream, I'd be in big trouble :)

 

So if anyone has any information, please please please share.  I'm in New Hampshire and it's only been an active weight loss hospital for five years.

 

Thank you!
karen

 

 If the candy cane limb was found why was it not removed?
If it was not removed you need to call your surgeon and demand that it be removed.  It could be very bad if this is just left there if it is twisted.

It was found during an endoscopy...there are ulcers at the junction of the curve...i am going today to follow up with my gastric bypass surgeon and ask that he schedule surgery to remove it and if not then to find me someone who will.  i cannot live like this any longer...

thank you for this post...it gave me motivation to go there with a more demanding tone.

 

karen

You have every right to demand surgery.  
I was not going to leave the hospital until it was resolved.  
Once it was removed, all my pain was gone. 
It is a simple surgery and took only about an hour.  Yours might take a little longer because of the ulcers, but it still needs to be done.  Don't let anyone cheat you out of your health and a pain free life.  

Hi Karen,
It is so odd that many of us are having the same symptons.  I am currently seeing an gastroenterologist and an oncologist for the pain I have been experiencing in the last 6 monts.  I have reflux, pain in my chest and back, bloating, gas, enemic and some nausea.  I had a cat scan of my stomach, and am scheduled for and edoscopy.  I am also hungry all the time.  Let's keep each other posted.

Hi Karen, I my name is Deb and I am from NH as well. I am so sorry to hear all you have been through.
I hope you have been able to get some answers. I am thinking it may be possible that I have the same problem going on but not being taken seriously. Could you possibly share the Surgeons name who found your Candy Cane Limb at Mass General? I think its time for me to get another opinion from someone who knows more about this. I would be very grateful, thank you in advance.
I've been feeling sick for over a year now (I am 7 years out) and have lost over 20 pounds in the last year...feel nasuas just thinking of food. Vomit a lot and stomach pain. Had many Endoscopies and they say I have mild gastric reflux and esophageal reflux. Plus have developed hypoglycemia and feel shakey and like passing out. I have seen two drs. already but no answers. I know deep down something is not right...something is wrong and they are just not finding it.
Thanks so much in advance and I hope you have been able to find some relief.
Much Love, Deb

Hi Karen, I my name is Deb and I am from NH as well. I am so sorry to hear all you have been through.
I hope you have been able to get some answers. I am thinking it may be possible that I have the same problem going on but not being taken seriously. Could you possibly share the Surgeons name who found your Candy Cane Limb at Mass General? I think its time for me to get another opinion from someone who knows more about this. I would be very grateful, thank you in advance.
I've been feeling sick for over a year now (I am 7 years out) and have lost over 20 pounds in the last year...feel nasuas just thinking of food. Vomit a lot and stomach pain. Had many Endoscopies and they say I have mild gastric reflux and esophageal reflux. Plus have developed hypoglycemia and feel shakey and like passing out. I have seen two drs. already but no answers. I know deep down something is not right...something is wrong and they are just not finding it.
Thanks so much in advance and I hope you have been able to find some relief.
Much Love, Deb I am at my witts end so tired of being sick and lost almost 30 pounds without trying. something is definitely wrong. saw my dr. today and wants me research it with him to find out who could give me some answers.