Addison's disease?
Hello all,
I haven't been on in a while. I just got diagnosed with Addison's disease. I was wondering if anyone else has this. I am almost a year out from surgery. I was told their is no way to tell if it was do to the doctor clamping off an artery and leaving the clamp on to long intern killing the supply to the adrenal glands, or if it was just a fluke thing that happened. Over the last six months my life has been miserable.
I have had low blood sugars been diagnosed with hypoglycemia, about 30 blackouts, migraines, so tired I can't drag myself out of bed. I can sleep and feel like I never slept, I had a seizure the other night, keep losing weight, appetite what so ever. I have to force myself to eat, weak muscles, low blood pressure, and the list goes on. Just standing up my heart rate raises to 150 bpm without doing anything. My blood pressure is always at 72/65.
After having the seizure I couldn't go to sleep even though I was tired. I was scared what if i don't wake up again. I have two little boys and I couldn't put them through that. I saw the doctor and finally after six months they found something. I have been told my pancreas needs removed, I have heart problems. Nope it's none of those things.
The doctor started me on medicine. I was just wondering if anyone else has this and how has your life been since you have been diagnosed. The doctor said as soon as the medicine kicks in I should start to feel normal and all my symptoms will go back to normal. Also that JFK had this. Only 1 in 100000 people get it.
I have just been really depressed. I am happy they found something finally but scared because I only know what I have read, and don't know anyone with this to ask questions. If anyone has it please respond. Thanks
I haven't been on in a while. I just got diagnosed with Addison's disease. I was wondering if anyone else has this. I am almost a year out from surgery. I was told their is no way to tell if it was do to the doctor clamping off an artery and leaving the clamp on to long intern killing the supply to the adrenal glands, or if it was just a fluke thing that happened. Over the last six months my life has been miserable.
I have had low blood sugars been diagnosed with hypoglycemia, about 30 blackouts, migraines, so tired I can't drag myself out of bed. I can sleep and feel like I never slept, I had a seizure the other night, keep losing weight, appetite what so ever. I have to force myself to eat, weak muscles, low blood pressure, and the list goes on. Just standing up my heart rate raises to 150 bpm without doing anything. My blood pressure is always at 72/65.
After having the seizure I couldn't go to sleep even though I was tired. I was scared what if i don't wake up again. I have two little boys and I couldn't put them through that. I saw the doctor and finally after six months they found something. I have been told my pancreas needs removed, I have heart problems. Nope it's none of those things.
The doctor started me on medicine. I was just wondering if anyone else has this and how has your life been since you have been diagnosed. The doctor said as soon as the medicine kicks in I should start to feel normal and all my symptoms will go back to normal. Also that JFK had this. Only 1 in 100000 people get it.
I have just been really depressed. I am happy they found something finally but scared because I only know what I have read, and don't know anyone with this to ask questions. If anyone has it please respond. Thanks
I don't know if this will hel*****t, but chances are that you have Celiac Disease. Addison's Disease is seen more often in people with Celiac Disease, which is a malabsorptive disorder. The "cure" for Celiac Disease is a Gluten-Free diet for life; I don't know how much it will help someone who has had WLS, but it certainly can't hurt to try it. Ask your doctor to run a Celiac Screen Panel on you before you start GF, though. I don't know if the WLS will affect your numbers or not.
If you want more information, go to www.celiac.com for articles and links to other resources about Celiac Disease - there is a wealth of information on that website. Please feel free to contact me, as I have done a lot of personal research on CD due to my youngest daughter's diagnosis (with no symptoms.....).
Teresa Koch
Fort Worth, Texas
If you want more information, go to www.celiac.com for articles and links to other resources about Celiac Disease - there is a wealth of information on that website. Please feel free to contact me, as I have done a lot of personal research on CD due to my youngest daughter's diagnosis (with no symptoms.....).
Teresa Koch
Fort Worth, Texas
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