Central Pontine Myelinolysis
Hello dear friends who all have the common issue to be posting here in this WLS Complication Forum. In fact I pray you have not had to experience the subject posted. CPM (Central Pontine Myelinolysis) is an acquired iatrogenic (error in treatment) neuromuscular disease of the central nervous system. Please note, there is very limited information available to the public in regard to this matter. As you know already, you can be subject to neuro complications with WLS/GBS in many ways. Truly, without going into major detail at this time, (typing is very difficult with tremors) my main purpose is strictly CPM Awareness. If by chance, someone who may find themselve under this fatal or chronic disease that is not only blessed to get the true diagnosis of CPM and live, there is no place that specialize in this matter that's been hiding between the lines for 50 years, the date of it's finding.
I want to make myself available to you as I have over the last 5 years. At this point I would be considered, "The only CPM Survivor Layman Advocate in the World."
If by any chance you or anyone in your family might have a connection to CPM, it would be most kind of your to contact me at the address below. G-d Bless...
[email protected]
Franky (Boston Terrier, Neuro Service Companion) and Breeze (That's Me)
Good Morning
I do appreciate you asking a very valid question. CPM is strictly an acquired disorder/disease of the Central Nervous System. Through my research now as a layman advocate, numerous times have I viewed some of the most knowledgeable physicians in the world state CPM is iatrogenic. (Error in treatment) There are other combinations of illnesses that can result in CPM also. In regard to hyponatremia, it is said that the degree of correction is the largest culprit which as you know made by decision of someone. The biggest CPM issue is the little to no educative process that those in the "World of Medicine, Healing Arts and Health Care have been experienced to. My largest is the nursing community that I personally feel have been put directly in the middle of this horiffic fact. I'd be more that pleased to answer any of your question to the best of my layman ability. Please note, I'm not the only victim of CPM as a result following GBS. As in all scenario's in regard to CPM, most don't live long enough or because of their status can't exbound more. Again I thank you, G-d Bless...
Franky and Breeze
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