Constant pouch pain

Stephanie_H
on 5/12/07 11:22 am - Des Moines, IA
I am almost 4 years post op and have just started having problems. First, I was diagnosised with severe anemia. Secondly, discovered that I have blood in my stool. Not sure how long that has been happening. Saw a surgeon and he suspects that I am bleeding from inside my pouch where they hooked up my intestines. He said that the acid producing part of the stomach is what they make the pouch is the acid producer of the full stomach and since my stomach has been split up the bottom half is not receiving the acid that it is wanting and so the pouch continues to make the acid, which in turns ends up producing to much acids which eats away at the pouch and the stoma. I was put on Zantac to help with the acid. I have been scheduled for an endoscopy at the end of this month. Thirdly, this past Tues early AM, I shot up in bed with severe puch pain. I have never experienced anything like it in my life. After that I have been unable to drink or eat anything without having pain in my pouch. I went to the dr on Tues. and they said that I was suffering from gastris and changed my medication to Nexium. The dr. told me that it would take effect with a day or two. This dr. was not my regular dr. On Wed. the pain was not subsiding so I went to the ER at the hospital where I had my surgery done in hopes to be seen my the surgeon that did the procedure. They took an abdominal x-ray and told me that everything structurally looked ok. Sent me on my way. Thursday, I followed up with my PCP and was still having pain when eating and drinking anything. He isolated the pain to the right side of the pouch. I believe that is where they hook us back up. I was also in tears and told him that I needed to get this resolved. He told me to go back to the basics, when I first got out of surgery. So clear liquids, cottage cheese, refried beans and eggs. Still when I eat those things and drink my water I still have pain. Has anyone gone through this before? I am needing support and some advice on what else I need to have the drs. check for. My email is [email protected] TIA Stephanie
Kahiah1
on 5/12/07 9:15 pm - LivingHappy, AL
The top of the stomach isn't where the acid producers are, it's in the lower part! That's why people who have acid reflux have complete cure 99% of the time, because the acid can't get into the pouch , and so can't go back up the esophogus. We have some stomach jucies that can cause an ulcer where the pouch meets the stoma, because the intestines that are connected there don't usually come into contact with this stomach secretions, the secretions  usually go thought the duodenum, which isn't as sensitive as the part that is cut and then brought up to connect to the tiny pouch. You need to be taking Nexium every day, and maybe even 2 times a day. If you can't get Nexium, take PRILOSEC OTC 2 times a day. If this doesn't help, you need an endoscopy to have a doctor look at your esophogus, pouch and stoma. Do not take no for an answer if you don't get better soon.
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