Recent Posts
Topic: Brother has Pancreatic Cancer
He's 59 and diagnosed in July with a 4mm inoperable tumor on his pancrease. Things look bleak. He's not responding to the chemo treatments and now he's down to 110 lbs. Dr.'s fear that soon he will be too weak to be able to get the chemo and will put him on hospice care. Does anyone have any suggestions on how to get him to either gain weight or keep it from coming off? Please help!
Topic: RE: Second opinion
It's a great idea to get a second opinion at a major hospital. I was diagnosed with breast cancer in January of 2007 and my girlfriends conviced me to go to UCSF for a second opinion. I have been so confident with their diagnosis and treatment. You are so lucky to have Stage 0- in situ. Mine was Stage 1 and I feel lucky too.
Julia
Julia
Topic: RE: Second opinion
Thank you all for your advice, I am going to get a second opinion, I know I will sleep much better if I knew for sure that a second opinion said the same thing about the treatment. I will probably go to a big hospital maybe u of m so that I can get more than 1 Dr to review this.
Thank you Tammy
Thank you Tammy
Topic: RE: Second opinion
Hi Tammy,
If your Doctor is WRONG...who does it affect??? YOU...your LIFE!!!!
http://www.nccn.org/patients/patient_gls/_english/_breast/co ntents.asp
I would get another opinion from a major breast cancer center, not a local hospital...or a doctor who simply calls themselves a breast specialist.....
not sure where you live, but often you share with people your diagnosis- you will get some good referrals....
Get copies of all your mamo's, tests and all the reports so you can easily have a good second opinion....
Good luck!!
Bernadette
If your Doctor is WRONG...who does it affect??? YOU...your LIFE!!!!
http://www.nccn.org/patients/patient_gls/_english/_breast/co ntents.asp
I would get another opinion from a major breast cancer center, not a local hospital...or a doctor who simply calls themselves a breast specialist.....
not sure where you live, but often you share with people your diagnosis- you will get some good referrals....
Get copies of all your mamo's, tests and all the reports so you can easily have a good second opinion....
Good luck!!
Bernadette
Topic: RE: IBC=Inflammatory Breast Cancer
Hi,
Most patients are told their redness, inflammation etc is from an infection.
It is one thing to try antibiotics while you get scans done, and a biopsy...
but there are many women who never heard of IBC and stay on antibiotics for months and months while their cancer has the time to spread all over...
because the person with the IBC and in too many cases the Doctor has no idea to look for breast cancer!!!
MD Anderson has the only IBC specific treatment center in the country.
Check out IBCsupport.org
Bernadette
Most patients are told their redness, inflammation etc is from an infection.
It is one thing to try antibiotics while you get scans done, and a biopsy...
but there are many women who never heard of IBC and stay on antibiotics for months and months while their cancer has the time to spread all over...
because the person with the IBC and in too many cases the Doctor has no idea to look for breast cancer!!!
MD Anderson has the only IBC specific treatment center in the country.
Check out IBCsupport.org
Bernadette
Topic: RE: 1 year post op, 5 lbs to goal, and diagnosed with breast cancer!
Hi,
I had RNY surgery 6/21/07 & chemo began Sept 07 & finished Feb. 14, 2008.
I think the Doctor was way overstating peoples weight gain.
Steriods are usually the short term kind and do not cause weight gain.
Despite having great anti-nausea drugs- you still do not want to eat.
The disgusting tastes you get are quite hard to overcome. If you are strictly on anti-hormone teatments- bizarre taste issues will not be a problem...
I lived on Panera low fat chicken noodle soup...there was little else I tolerated...
I also lived on deli sliced SUPER thin ham...bizarre- but it worked...
I am about 9 pounds heavier than my lowest weight during chemo....
and that weight has been perfectly stable for 7 months...
Two weeks ago, I did Bike Philly- 20 miles...so I am way active again!!!
Here is a great web site for breast cancer treatment algorhthyms
http://www.nccn.org/patients/patient_gls/_english/_breast/co ntents.asp
I had RNY surgery 6/21/07 & chemo began Sept 07 & finished Feb. 14, 2008.
I think the Doctor was way overstating peoples weight gain.
Steriods are usually the short term kind and do not cause weight gain.
Despite having great anti-nausea drugs- you still do not want to eat.
The disgusting tastes you get are quite hard to overcome. If you are strictly on anti-hormone teatments- bizarre taste issues will not be a problem...
I lived on Panera low fat chicken noodle soup...there was little else I tolerated...
I also lived on deli sliced SUPER thin ham...bizarre- but it worked...
I am about 9 pounds heavier than my lowest weight during chemo....
and that weight has been perfectly stable for 7 months...
Two weeks ago, I did Bike Philly- 20 miles...so I am way active again!!!
Here is a great web site for breast cancer treatment algorhthyms
http://www.nccn.org/patients/patient_gls/_english/_breast/co ntents.asp
Topic: RE: Second opinion
Hi Tammy, I am so sorry your having to go through this, but I'm with kat on this one and get that second opinion. That PS doc does a lot of boobs and if he says one thing and someone else says something else I would be sure to ask someone else. I have the same problem with my doc being so far from where I live.. I have been thinking I should go to someone else and see if I am doing as well as they say I am, but then I get to thinking maybe I don't really want to know so. I hope you find that he is right and that you really don't have anything to worry about.
I will keep you in my thoughts and wish you the best.
Marylin
I will keep you in my thoughts and wish you the best.
Marylin
Topic: RE: Second opinion
Tammy,
First, take a deep breath and keep taking deep breaths. I am a two time cancer survivor so I have a pretty good idea what you are going through. As for my two cents on what to do, IMHO, I would get a second opinion from someone outside of your regular oncologist's office. I'm sure his partners are very good but to set your mind at ease I would suggest you see someone who is not tied to your regular oncologist.
Please keep us posted and know that you are in my prayers.
Katherine
First, take a deep breath and keep taking deep breaths. I am a two time cancer survivor so I have a pretty good idea what you are going through. As for my two cents on what to do, IMHO, I would get a second opinion from someone outside of your regular oncologist's office. I'm sure his partners are very good but to set your mind at ease I would suggest you see someone who is not tied to your regular oncologist.
Please keep us posted and know that you are in my prayers.
Katherine
Topic: Second opinion
Hi I'm new to this board, but I.m in a delema and need some advice.
I will start my story from the beginning I will try not to make it to long. I had a mammogram in may it was fine, so I went ahead and scheduled my plastic surgery, Panni, TT, BL, I got it done aug 26(and to this day I am still very sore I would go through gastric bypass surgery 10 more times compared to this). Well a week ago my plastic surgeons office called me and said that they wanted me to come in that they wanted to talk to me , so I get there and he tells me that from my breast tissue that I have breast cancer(lobulus carcinoma in situ) that if anyone had cancer it is the best one to have and it is the most treatable but I would still have to get a masectomy and I needed to see a oncoligist, so for a week now i have been in tears I went yesterday to the oncoligist and he said that he does not have to do any treatment that I have to get mammograms every 6 mo instead of every yr and that this rated on a scale of 0 to 4 this would be rated a 0, he also said that if he lined up a dozen women and took breast tissue from them all that most of them would test positive for this type of cancer and with it being called in-situ it means that its not doing anything. I was so releaved but I was still doubtful and he said that he has 8 colleagues ( sry sp or partners) that he goes over his cases with and he said that he would discuss this with them. So my question is what would you do? Thank you for reading this and your output.
Tammy
I will start my story from the beginning I will try not to make it to long. I had a mammogram in may it was fine, so I went ahead and scheduled my plastic surgery, Panni, TT, BL, I got it done aug 26(and to this day I am still very sore I would go through gastric bypass surgery 10 more times compared to this). Well a week ago my plastic surgeons office called me and said that they wanted me to come in that they wanted to talk to me , so I get there and he tells me that from my breast tissue that I have breast cancer(lobulus carcinoma in situ) that if anyone had cancer it is the best one to have and it is the most treatable but I would still have to get a masectomy and I needed to see a oncoligist, so for a week now i have been in tears I went yesterday to the oncoligist and he said that he does not have to do any treatment that I have to get mammograms every 6 mo instead of every yr and that this rated on a scale of 0 to 4 this would be rated a 0, he also said that if he lined up a dozen women and took breast tissue from them all that most of them would test positive for this type of cancer and with it being called in-situ it means that its not doing anything. I was so releaved but I was still doubtful and he said that he has 8 colleagues ( sry sp or partners) that he goes over his cases with and he said that he would discuss this with them. So my question is what would you do? Thank you for reading this and your output.
Tammy
Topic: RE: Q> About Breast Cancer
Thanks for information
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Breast Cancer
" I never knew my best until I gave my all."
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Breast Cancer
" I never knew my best until I gave my all."