Recent Posts

Michele L.
on 11/30/08 10:44 am - Old Bridge, NJ
Topic: RE: Question for those with breast reconstruction. Long, but I am so confused!

I have known all these fears.Diagnosed with invasive ductal carcinoma in 1999.
My anxiety initially centered around recurrence. I had chemo no radiation and mod radical mastectomy. Several years ago one of my cousins diagnosis with breast cancer. I was advised to get genetic testing. Took a while for insurance to approve testing and since there was no other breast cancer in family. There was a history of other cancers in family,vulva,bladder and lung. I am BRCA2 positive. I had hysterectomy and oophprectomy to reduce risk but have not had second mastectomy as a prophylaxis.

I asked my oncologist which is more important mastectomy or gastric bypass. I always worried about recurrence because extra weight and cancers like breast, endometrial, colon and.
What she said to me was that it was best to do the surgery that did the most for my health.
The prophylactic surgery would deal with recurrence of breast cancer and mental health. A gastric bypass could improve prediabetes, hypertension, elevated cholesterol and sleep apnea.

I have not yet decided on a surgeon but I have decided to have gastric bypass. So the journey continues. I figure that I can have tummy tuck along with tram.I have been told that reconstruction of bilateral breasts is better for symmetry.

I understand that the feelings about loss of breast. I elected mastectomy over lumpectomy before I knew I was BRCA. Found out later. And they can do 6 month surveillance once every 6 months I have a mammogram and other 6 months I have breast MRI.

Fear of something can be paralyzing but if you just stay with the moment you may find out that none of this worrying is necessary in negative biopsy and negative screening of genes.
Best of luck.

Michele

Kathleen O.
on 11/30/08 7:23 am - Maineville, OH
Topic: RE: cancer after weight loss...please read and advice
Michelle, my heart goes out to you.

I too had my RNY in 2006, mine was May 15th.  I started at 390 and was down to 179 when I was diagnosed with stage IV cancer of unknown origin in September of this year.  My oncologist wants me to eat as much as I can so I don't lose weight.  Since my stomach is small, I'm not eating as much as she would like, but I'm doing what I can to maintain muscle mass.

I had a bad problem with lymphedema in the beginning.  (It's what got me to the doctor finally.)  I gained 35 pounds in three weeks, all liquid.  Because of my doctor, a local lymphedema clinic and the local medical supply store, I've been able to lose the liquid, but my strength and stamina have been affected.  I'm slowly getting my life back and am concentrating on working on this as the cancer is out of my control.

Bottom line on weight is, I think...you have to do what you can to beat the cancer.  Worry about gaining weight later.

God bless and fight the good fight, one day at a time.

Kathleen

SmileyCentral.com">a> 
Kathleen, Queen of Cool

kat87120
on 11/17/08 12:54 am - Albuquerque, NM
Topic: RE: cancer after weight loss...please read and advice
Michelle, God bless you.  I am a two time cancer survivor (both prior to WLS), however, neither one of the cancers were cervical.  I battled colo-rectal cancer in 2003 and vaginal cancer along with squameous cell in my lymph nodes and pelvic area in 2004.  I wish I had the information you are looking for but I do not.  What I do have are tons and tons of thoughts and prayers going your way.  Please try to stay positive and if there is anything in the world I can do to help you through this difficult time, please, let me know.

Katherine

You don't drown by falling in the water. You drown by staying there.
Unknown Author
Failure is only a fact when you give up. Everyone gets knocked down, the question is: Will you get back up?


        
Michelle_R
on 11/16/08 8:31 am
Topic: cancer after weight loss...please read and advice
I had my surgery July 2006.  My weight was 219. After surgery I got down to 118! I did gain a few pounds. I fluctuate between 122-125 at 5'4. Up till 2 months ago I have been on cloud nine with my weight! I found out I had cervical cancer (my mom died from cervical cancer when I was 18............20 yrs ago) I am now a proud mother of three (12,9, and 6). I had a complete radical hysterectomy last week. I am in a lot of pain, scared .....I hope they removed all the cancer cells.
Can someone please tell me if anyone has gone through or knows someone or even if you are an expert in this area.....ect ........has gained weight back. I know I should be happy to have my life and be around for my family "fat or thin" but I just thought I would learn from others. Thankyou for all for reading! I find out on Tuesday about if all the cancer was removed and what the next steps are.  Thanks And Bless You All!
StarWish624
on 11/12/08 2:00 pm - Bakersfield, CA
Topic: RE: 1 year post op, 5 lbs to goal, and diagnosed with breast cancer!
  Sorry , and my best wishes. I, too have BC (breast cancer). One of the first things that they told me was that the diet (high protein / low carbs.) that they have us on is perfect for recovery. In fact, they told me that they have to change their other patients to this diet to help their body have the strength to mend and heal. In this area - you are already ahead. Congrats.
  I had the Chemo. already. I am now about 1/2 way thru Rads (radiation). During Chemo., they gave me 2 strong meds. for nausea. They didn't help much, and I lost 30 lbs. - but, the nutrition drinks helped me when I couldn't stand to eat. I also bought Glucerna (nutritional drink - like Ensure, but  with no sugar). I didn't drink them, I made popsickles out of them. (I had mouth sores due to the Chemo., and the popsickles - anything cold - sooth and numb the mouth). It makes the expensive drinks go a LOT further, too. Saves, and is nice to have a 'treat' when you don't feel well. Besides helping the mouth feel better, you are getting good nutrition in case you have nausea. My Drs. are pleased with my labs. (lab tests).
   I know a lot about sites, and info., and such about this subject. Just answer this, and ask for my e-mail address, and I will write.





RoseAgain
on 11/9/08 5:42 am
Topic: RE: Hodgkins Lymphoma / gastric bypass
I was diagnosed with non-hodgkins lymphoma, 12/99.  Been in remission since chemo was completed.  In my case, the lymphoma was irrelevant to the RNy that I had done on 4/15/08.  Don't know if my doctor even mentioned it, in his request letter to my insurance company.  Hope this helps.

Cindy
corky1057
on 10/19/08 2:07 pm - Holland, TX
Topic: RE: Question for those with breast reconstruction. Long, but I am so confused!
Thank you Kathy for your candid reply. I appreciate you taking the time to answer me. I did find out Friday that I don't have the gene mutation, so Hurray for that! I still have not made a decison, but am thinging long and hard about all the options.. My biopsy is scheduled for Nov. 7


(((HUGS))) Mary      Pink RibbonSurvivor 
 
Handle every stressful situation like a dog.
If you can't eat it or play with it,
Just pee on it and walk away.










 

Kathy & Rich
on 10/19/08 12:11 am - Fairfax, VA
Topic: RE: Question for those with breast reconstruction. Long, but I am so confused!
I was diagnosed with breast cancer in late November of 2006.  I had a lumpectomy at the end of December and didn't get clear margins on the pre-cancer (DCIS).  I had a re-excision lumpectomy in January and still no clear margins.  I had told my husband that 2 was my limit.  I then decided on a mastectomy.  After thinking for a couple of days, I decided I wanted to do bilateral mastectomies.  My sister was diagnosed with breast cancer earlier the same year as I was but neither of us had the genetic mutation.  She also had bilateral mastectomies and had 4 months of chemo and takes hormone therapy.

After the stress of the diagnosis and 2 surgeries (lumpectomies)... I decided that I didn't want to go through this anymore.  In March of 2007, I had bilateral mastectomies with expander implants (to stretch skin).  In June of 2007, I had the expanders swapped for silicone implants.

Luckily, the invasive part of my cancer was very small so I didn't require any radiation or chemotherapy.  Also because I had both breasts removed and only have trace amounts of breast tissue left... no hormone therapy either.  The side effects don't outweight any benefit to me. 

I have no regrets at all on my decision.   I wouldn't change one thing.

Kathy
PinkRibbonLL.gif, Denis Ryan improved pink ribbon - 2002, thanks Denis! ~Kathy~5'7.5"~lap RNY~05/20/2005~ PinkRibbonLL.gif, Denis Ryan improved pink ribbon - 2002, thanks Denis! 279/276/244/160/148/185 (high/consult/preop/goal/low/current)
~Rich
~6'5.0"~open RNY~08/05/2004~>500+/450/437/250/239/320(high/consult/preop/goal/low/current)
joyce329
on 10/16/08 7:38 pm - NY
Topic: RE: Question for those with breast reconstruction. Long, but I am so confused!
I was diagnosed 3 years ago with triple neg. VERY Aggressive breast cancer.  I also had 10 out of 14 lymph nodes involved.  I had a lumpectomy, axillary node dissection and chemo and rads.  I did the genetic testing & found I had BRCA 1 gene mutation and an 85 % chance or reoccurrance.  I decided on a bilateral mastectomy and reconstruction.  I also had a hysterectomy.  I am a strong believer in the idea that we create our own futures by the choices we make.  I did not want to live my life in fear of reoccurrance, so I had the mastectomy.  Because of the rads, I do not have the results I wanted from the reconstruction, but I am ok with it.

 Bottom line, it is a personal decision, but it is important to think about what you want from the future.  I choose to live without the fear of the monster returning.

Good Luck and if you want to talk, let me know.

Joyce 
corky1057
on 10/14/08 12:26 pm - Holland, TX
Topic: RE: Question for those with breast reconstruction. Long, but I am so confused!
Wow Marylin, you have been through the ringer. That really stinks doesn't it? I am so sorry you are having to go through all the drama and uncertainty. If we have answers then at least we can deal with whatever we have to do.

Please know that I am here for you to vent any time you feel like it. I may not have the answers, but I can sure listen and empathize. Let me know how things come out for you, please.


(((HUGS))) Mary      Pink RibbonSurvivor 
 
Handle every stressful situation like a dog.
If you can't eat it or play with it,
Just pee on it and walk away.










 

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