Recent Posts

jeterway
on 8/11/13 3:36 am
Topic: RE: prophylactic mastectomy after RNY
Good luck tomorrow!!!!

JoAnn


(deactivated member)
on 8/8/13 10:16 pm
Topic: RE: alternate forms to get Vitamin B12?

no, i guess you must not  leave the medication in between.

Bibo
on 8/8/13 1:12 pm
Topic: RE: prophylactic mastectomy after RNY

Thank you!  My sister just tested for brca1 and was positive. No shock there, but I am still glad I did not have to test. I don't trust what the insurance companies will do with that information. The politics of that scares me worse than having cruddy insurance and chemo. I am so grateful for your posts. Will be in touch as soon as I can.

    

jeterway
on 8/6/13 9:48 pm
Topic: RE: prophylactic mastectomy after RNY

They took my nipples as well.  I had asked about nipple sparing surgery but since I have brca1, they didn't want to risk it.  Apparently they are concerned that in nipple sparing surgery there is a possibility that some tissue can be left behind.  I have had nipple reconstruction too.  They look wonderful but don't feel natural.  Projection is an issue - getting some additional work done to correct that hopefully. They didn't touch my nodes, so there was no work under my arms.  I had no issues with using my arms but since you are having node work, that might impact your ability to use them.  I did wake up the next day with that sense of relief that I had a very small risk of breast cancer now.  That helped me recover from the surgery mentally.  From a physical standpoint, the first couple of days were challenging - learning to function with all of the bandages and drains - it was my first surgery with drains.  But I improved noticeably each day.  I was in the hosptial for either 4 or 5 days - I can't remember how many. 

Good luck on the 12th.  I will be thinking about you and looking for an update of your status.

JoAnn


Bibo
on 8/6/13 12:15 pm
Topic: RE: prophylactic mastectomy after RNY

Thanks for the encouragement. I am all set for Monday August 12. I got scoped today, and my ulcer is healed....still a tiny bit red, but not ulcerated, just a scar. I have to be at the hospital at 530 and surgery is scheduled for 730.  They are going to start the reconstruction at that time as well...I don't get the tummy tuck because I JUST had my bypass, and  all the docs agreed it was too soon. But they are taking everything, nipples, and some sentinel nodes. I am a little nervous about the mobility after surgery, but my doctor said that I should be able to do my hair, and put on a T shirt and stuff like that.....he doesn't want me lifting anything over 5 pounds. Said he was worried about me using my arms to stand up or pull myself up..I have no idea how I am going to get out of bed and into my wheelchair if I don't use my arms, at least a little, but where there is a will there is a way. (I use a power wheelchair cause my legs are shot). Anyway, thanks again for being there for me. I've been watching all these you tube videos and it's hard to not let my mind run wild.  I am trying to focus on the relief that I feel that this is happening, and on the fact that maybe now I can reverse the hands of fate for long enough to at least enjoy the WLS!  I should be discharged on the 13, and will try to post as soon as I can...I have no idea if the hospital I will be at actually has wifi in the room or not.

    

jeterway
on 8/5/13 1:07 am
Topic: RE: prophylactic mastectomy after RNY
I didn't have any issues using my arms after surgery. Since I had reconstruction from my abdomen, I had a large incision there as well so I relied on my arms to get myself out of a chair. No loss of motion or strength there. Because of the abdominal work I had a 5 pound lifting limit for a couple of weeks but didn't have any issues around the house. No restriction in terms of arm movement. When is surgery scheduled?


Bibo
on 8/5/13 12:21 am
Topic: RE: prophylactic mastectomy after RNY

They told me I would go home in some kind of compression bandaid, with two drains, and to get a sports bra that opens in the front. Well at the thrift, who knows if they have those, right. Then I found out  that my surgeons office has some other kind of thing that they will give me when I get to my post op appointment.

I am trying to figure out how much I will be able to use my arms after the surgery. I have a mobility impairment, and noticed this week that  I rely quite a bit on my hands and arms to get up out of chairs and stuff...my legs are shot. Also carrying stuff...is it hard to carry like a cup of tea or a bowl of  soup afterwards? what about opening medication bottles that are  in childproof caps?

 

I am pretty sure my ulcer is healed...I am waiting to get scoped, but the GI department is down a couple of doctors right now, and all the messages seem to be bouncing all over the place. Fortunately my primary seems to think it's ok.

    

jeterway
on 8/1/13 1:05 pm
Topic: RE: prophylactic mastectomy after RNY
Glad to hear that you are able to proceed as you want to. I would agree that dealing with the cancer is more important than the ulcer at this point. I am surprised that they want you to wear a bra right after surgery. I didn't wear one for several weeks post op. in the beginning, I had some necrosis on each breast that I had to use a cream on and had bandages. I also had two drains, one on each side that would have interfered with a bra. I would think something that is loose would be better.

Good luck to you.

Jo Ann


Bibo
on 8/1/13 5:23 am
Topic: RE: prophylactic mastectomy after RNY

I went for my pre-op yesterday, and i think I am all set. I  had a surgical complication of a small ulcer at the staple line, but it seems to be healed now and I am eating better. I would rather take my chances on the ulcer getting complicated than having my insurance end and getting cancer. My doctors are behind me, and I got cleared for surgery. So I am excited. I am trying to figure out what size bra to go home with. I know they send me home with a mastectomy bra, and I will have two drains. And the doctor has a different bra that I will have when I get to his office the day after that.  They told me to buy a sports bra that opens in the front....IDK what size?  I am 38 around right now ---in the bras that I own....but the measurements I took yesterday showed a 36. I can't fit into a 36 in the store right now because my cups size is too big...they don't make a 36 in the cup size that I need. I am having a reconstruction with expanders and cadaver tissue put in on the day of surgery...I am guessing a 36 B to allow for swelling but was curious if others had some experience and does that guess sound right?  I am still losing weight and  the thrift store is an hour away on the bus so I don't want to make a million trips over there.....

    

(deactivated member)
on 7/17/13 9:08 pm - India
Topic: RE: prophylactic mastectomy after RNY

Good luck to you with the surgery. It is exceptional that they are finishing it for you so rapidly. I have never mourned having this surgery.

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