Synthroid after RNY and hypothyroidism??? Felt ill over 2+ years now!!
Hi have a question for you who are familiar or have hypothyroidism. I had my gastric bypass in 2009 and was diagnosed with hypothyroidism around 2006. I've been on a script for Synthroid ever since and it's only gone up a bit to 88 mg about a year ago.
My question is I'm suffering now with an undiagnosed issue but it really seems to fit a problem with my thyroid if you look at all my symptoms plus the fact I've been through the gambit of doctors who have thrown up their hands.
My endocrinologist basically looks at my "T" numbers and if they're "normal" then it's not my thyroid and no visible lump on my throat although my neck is and has always been very large.
Basically for over two years I've suffered with a list of symptoms and I'm a 54 yo woman.
Fatigue, very bad
Low body temps usually 97.....
Once in a while a low grade fever which would read 99.......
Headaches but not debilitating
Brittle and hair falling out
Very puffy eyes (the skin underneath and lids)
My eyebrows cut off near the center and stopped growing and have deminished
Brittle fingernails
Feel cold most of the time and at night used 3+ blankets and have never had a hot flash although am 54
My periods are heavier and every 4 weeks still!
Chronic constipation although I thought it could be my iron supplement now think it's thyroid related
Trochanteric burusitis of both hips
Muscle pain throughout my arms and sometimes legs (feel as if I rowed a boat across the Atlantic, that sore)
Sleep apnea is worse than it was prior to losing 50+ pounds
Water retention
No Sex Drive
PMS worse now with bad cramping prior to period
Memory Fog
Low energy, malaise
Low grade depression
Clogged/dry throat feeling
Okay sorry for humongous list but like I said I've been dealing with this for well over 2 years and have seen every specialist from Rheumos, gastros, bariatrics, hematologists, ENTs, neurologists, endocrinologists, dentists, you name it I've been there and even tried a second doctor. Had many CTs and MRIs and enough bloodwork that I should be iron deficient which I am on the low side but not bad enough that I need an iron fusion of which they tried four!
I don't know if I need to find a new endocrinologist and try to get a scan of my thyroid as I have not had the neck area ever scanned or if I'm not processing my Synthroid the correct way due to my previous RNY. Any info out there would truly be appreciated as I'm close to throwing up my arms and giving up.
The last labs I had done were done by my neurologist and he ran Thryroid Peroxid which was 39 out of 0-34IU/ml and also Thyroglobul AB which was 1.3 from a scale of 0.0 to 0.9IU/ml. They are considered "high" but so far no one seems to put any of this together pointing to my thyroid except me!! Thanks Nan.
Hello Nan,
i too am hypothyroid. In speaking with one of my friends a month ago, she mentioned to me that there is a recommended diet for those of us with a hypothyroid condition. When I researched it online, I found that I tend to munch on many items on the list. I began to change my diet, along with purchasing a thyroid support supplement found at the local health food store.
I feel a lot better now.
Thanks for your replay HappyAddy!
I have tried a variety of things diet wise even cutting out gluten and feel I need to see my new endo to explore my thyroid now for possible nodules etc.... I have been feeling ill for over 2 years now and it's just taking a long time to get diagnosed. Thanks again, Nan.
