Frightened might have Cancer
I had my revision to RNY from Lapband in 2009 and over the past year have had a very bad fatigue, headaches and daily low grade fevers and chronic constipation. I developed upper belly pain especially on the right side about 4 months ago and since have had x-rays, iron fusions, CT scans and MRIs to check out the whole abdominal area. The only thing they seemed concern with was a lesion on the left lobe of my liver which is small but they did a liver pool scan and decided to wait a couple months to look for changes.
In the meantime I've avoided the dreaded colonoscopy and should have had it almost 4 years ago but now am scheduled for it as well as an endoscopy at the same time in March.
I've seen the gambit of doctors and specialist and the gastroenterologist seem to be the last ones to handle my case with my upcoming scopes but just wondering if anyone who has had cancer in the gastro area possibly have had similar symptoms as I have. I've also lost some weight after an initial 20 lb gain a couple years after RNY. I've probably lost 10 lbs over the past year without trying. Thanks in advance for your thoughts/advice. And don't tell me not to worry because I've been really patient for a long time and this fatigue is taking it's toll on me! Thanks again, Nan.
Sorry you are going through this one4cat. I've gone through mris and cat scans and have things on my liver and kidneys but nothing that is of anything of an emergency as of yet. Just looking at a liver tumor every six months for now to see if it changes. I see a new rheuma doc next month and am hoping that my symptoms are of that nature. Good luck with your surgery, Nan!
Hi Nan, don't wait for Dr's to watch this.... get another opion prior to jus****ching tumors, if small they can do work to them prior to them spreading, my surgery went well and I'm on the road to recovery Tumor was small they left partial of my right kidney but they do see 2 little tumors on my left kidney I will find out on Dec 2nd to get info re: the plan to watch, remove or? Pathology report will tell them a lot if they can leave and watch or if not malignant. I would make sure to get 2nd opinions and do your research on cancer boards there are several that have been there done that and others like us that are new to all of this. Cancercompass.com is a good site and Smartpatients.com is another site to learn both have helped me do a lot of research. Take care.... keep strong and don't wait till Dr's give you answers you be prepared to ask as well. Hang in there. Cathy
Thanks Cathy,
They said they were cysts on my kidneys and on my liver was a hemangeanoma (sp) and that is what they were most concerned with and wanted to check again in six months to see if it changes in size. I've met my deductible so I can get an MRI covered in full by the end of this year so I may go ahead. There are so many auto immune disorders that have fatigue as a symptom and no one has been able to diagnose me yet so I'm hoping this head guy at the teaching hospital can or will at least lead me in the right direction. Good luck to you too, Nan.
Good your doing your follow up.... don't stop, I went to a oncologist off and on since 2011 and they didn't think this was anything nor did I and now that I was having bit of other symptoms a new DR ran a CT scan and all along this needed attn. Hang in there I can relate with feelings you are going thru. Cathy Blessed day to you.
If you won't see a doctor you won't get answers. No matter how much your symptoms may be similar to others, for something as serious as this you need proper diagnosis by someone qualified and with access to the tests needed. The doc told you you do not have lymphoma - did she say what was wrong?. If she said what it was and advised treatment follow that. If you have followed the treatment and things have got worse go back/see a new doc. If she didn't tell you what was wrong go back or if you ave new symptoms go back. It's frightening wondering what is wrong with you. I might not be serious in which case you can get reassurance. If it is serious you need the correct treatment.