Second opinion

tammyc
on 9/24/08 1:43 am - oxford, MI
Hi I'm new to this board, but I.m in a delema and need some advice.
I will start my story from the beginning I will try not to make it to long. I had a mammogram in may it was fine, so I went ahead and scheduled my plastic surgery, Panni, TT, BL, I got it done aug 26(and to this day I am still very sore I would go through gastric bypass surgery 10 more times compared to this). Well a week ago my plastic surgeons office called me and said that they wanted me to come in that they wanted to talk to me , so I get there and he tells me that from my breast tissue that I have breast cancer(lobulus carcinoma in situ) that if anyone had cancer it is the best one to have and it is the most treatable but I would still have to get a masectomy and I needed to see a oncoligist, so for a week now i have been in tears  I went yesterday to the oncoligist and he said that he does not have to do any treatment that I have to get mammograms every 6 mo instead of every yr and that this rated on a scale of 0 to 4 this would be rated a 0, he also said that if he lined up a dozen women and took breast tissue from them all that most of them would test positive for this type of cancer and with it being called in-situ it means that its not doing anything. I was so releaved but I was still doubtful and he said that he has 8 colleagues ( sry sp or partners) that he goes over his cases with and he said that he would discuss this with them.  So my question is what would you do? Thank you for reading this and your output.
Tammy
kat87120
on 9/24/08 7:56 am - Albuquerque, NM
Tammy,

First, take a deep breath and keep taking deep breaths.  I am a two time cancer survivor so I have a pretty good idea what you are going through.  As for my two cents on what to do, IMHO, I would get a second opinion from someone outside of your regular oncologist's office.  I'm sure his partners are very good but to set your mind at ease I would suggest you see someone who is not tied to your regular oncologist.

Please keep us posted and know that you are in my prayers. 

Katherine

You don't drown by falling in the water. You drown by staying there.
Unknown Author
Failure is only a fact when you give up. Everyone gets knocked down, the question is: Will you get back up?


        
marylin99
on 9/24/08 1:29 pm - MO
Hi Tammy, I am so sorry your having to go through this, but I'm with kat on this one and get that second opinion.  That PS doc does a lot of boobs and if he says one thing and someone else says something else I would be sure to ask someone else.  I have the same problem with my doc being so far from where I live.. I have been thinking I should go to someone else and see if I am doing as well as they say I am, but then I get to thinking maybe I don't really want to know so. I hope you find that he is right and that you really don't have anything to worry about.
I will keep you in my thoughts and wish you the best.
Marylin
Bern
on 9/25/08 4:37 am
Hi Tammy,

If your Doctor is WRONG...who does it affect??? YOU...your LIFE!!!!

http://www.nccn.org/patients/patient_gls/_english/_breast/co ntents.asp

I would get another opinion from a major breast cancer center, not a local hospital...or a doctor who simply calls themselves a breast specialist.....


not sure where you live, but often you share with people your diagnosis- you will get some good referrals....

Get copies of all your mamo's,  tests and all the reports so you can easily have a good second opinion....

Good luck!!

Bernadette


 

tammyc
on 9/25/08 9:30 am - oxford, MI
Thank you all for your advice, I am going to get a second opinion, I know I will sleep much better if I knew for sure that  a second opinion said the same thing about the treatment. I will probably go to a big hospital maybe u of m so that I can get more than 1 Dr to review this.
                             Thank you Tammy
seasheleyes
on 9/28/08 1:32 pm - Manteca, CA
It's a great idea to get a second opinion at a major hospital. I was diagnosed with breast cancer in January of 2007 and my girlfriends conviced me to go to UCSF for a second opinion. I have been so confident with their diagnosis and treatment. You are so lucky to have Stage 0- in situ. Mine was Stage 1 and I feel lucky too.
Julia

kmccrary
on 12/17/08 6:43 am
I would recommend a second opinion also.  Be sure to find a oncologist rather than a gynecologist, in fact a gynecological oncologist is your best bet.  That way you know they not only specialize in femaile issues but they also are experienced in cancer treatments.

Good luck.

Kim

cleos_mom
on 2/5/09 10:36 am - phila., PA
Hi
I would get a second opinion also.
I had a hysterectomy 12/12 with my TT and  my cervix ame back Carcinoma - in-situ and I asked my GYN for a second opinion with a GYN oncologist and they said that Ca in-situ means pre-cancer and it is ok because they took it all out but I still am getting a second opinion and my appt is not until 2/13 I am a nervous wreck so I know what you are going thru this waiting is killing me
Susan
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