Q> About Breast Cancer

Taichi
on 7/31/08 6:01 am - erie, PA
I have a very strong family history of breast cancer on my mother side. I lost a grandmother at the age of 56, A aunt at 38, Just a few year ago another aunt at the age of 54 of breast cancer. Plus my aunt that is 58 has breast cancer. And is going in for double remove of her breast,. Plus my mother who is 70 just had breast surgery. But was lucky due to the fact that she was able to have the new type of breast cancer treatment . Where she went for five days a week for one week twice a day. Here is my question . In march I went to my ob/gyn and they did the breast examine and did not feel any thing. So they sent me to have a monogram done with the one of the specialists in town. Two weeks later I got a call and they said they wanted me to come in for a flat plat mamagram and a sonogram. Because on the regular sonogram they thought they saw extra skin tissues. And not to worry because they did not feel it was a tumor or anything to worry about. So yes it is my fault that I waited a few months to go in and have the extra testing done. Seeing how my one and a half hour appointment turned into a two hour appointment. Seeing How they found a deep benine tumor that is so deep and was unable to be felt thur the skin. See I am earning my self to a breast surgeon office for her to tell me what She is going to do about it. But according to the office I can not see her for another 2 months. My question is should I try and call to remake the appointment myself ir just wait till then and hope it does not grow. Right now they have the area mark with a marker with a silver bead on it. The one thing they said I have in my favor is the tumor is high up on the breast. And that having wls help them to see it this time around. Seeing how before my surgery I was a 60ddd and now they are a 38 d I wish you all the best of luck and thank you all in advance Taichi
Bern
on 8/1/08 6:36 am
I would call myself and see if you can move up the appt..

Why wait??

I was diagnosed a year ago and finished my last radiation in June after chemo and surgery....

It sounds like you are looking to have a biopsy done so you know what to do....

You might also want to call an oncologist because depending on what the biopsy shows- you might end up needing chemo before surgery....(you can always cancel)

Get the films in your possession and copies of all reports.....the surgeon and eventually oncologist will want to see everything....

Then after the biopsy- get those pathology reports, films, and slides. It is important to know if you are HER2 pos or negative...and a few other things the path report will show

They will release copies to you & often if you get them as they are done- noone will charge you that lovely 1.00$ per page so many Dr's are allowed to and do charge to make copies of records...
You may end up at many different Doctor's. You are the best person to have copies of everything to let them copy for your file.
NEVER give up the copies...always make sure you have one...
Here's an informative compilation of breast cancer treatment algorithms.
http://www.nccn.org/professionals/physician_gls/PDF/breast.p df    (National Clinical Guidelines in Breast Cancer)
If you have any redness, swelling of one side, orange peel appearance to the skin- make sure the Dr. you call knows so they can get you in ASAP to rule out inflammatory breast cancer...

Bernadette


 

marylin99
on 8/1/08 8:53 pm, edited 8/1/08 8:54 pm - MO
I don't know a thing about breast cancer, I just want you to know that I am thinking of you and wish you the best.  I would call anyone and everyone till someone got you in when you need to get in.  I hate that they make you wait and wait.  I talked to my Ono doctors nurse she called me to tell me they wouldn't make me wait, that we got plans on the table.  I will probably retake my labs because they changed the kit that they used to do the chromogrinin A test so that may be why I tested high, if it is still high after the second test then we are going to do every scan out there to find the little bugger. I know I felt 100% better after I knew what was going to happen.  You have to take care of yourself and don't take no for an answer.  Good luck and God Bless.
Marylin
Sophia Maria
on 8/16/08 11:52 am
Taichi how are you did you get in earlier to see the dr?

please psot and let us kn ow how you are doing?



    
judithscott
on 9/8/08 10:44 am
rob22
on 9/22/08 9:13 am
Thanks  for  information.

-----------------------------------
Breast Cancer Awareness


" I never knew my best until I gave my all."



rob22
on 9/22/08 9:32 am
Thanks for information

------------------
Breast Cancer


" I never knew my best until I gave my all."
Pamela K.
on 12/22/08 12:33 pm - Reedley, CA
I'm with Bernadette get a copy of each and every report, dr notes surgery notes and scan, xrays and such. I had bi-lateral breast cancer and there are so many different drs that you end up going to they never seem to have all the reports in front of them when they are talking to you. I took them all to each visit in a big shopping bag and it saved time and traveling hunting lost records. Especially if your tumor is benine this time you'll still need to have record of what goes on this time so they can track future changes of your breasts.
Best of luck and sending good thoughts and prayers for you too.
Chagrin21
on 12/29/08 4:39 am
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