XP... SHARING SNIPPETS....thought I needed the wambulance...

  Yesterday I got thrown for a loop by an email sent to me by my beautiful daughter .. an otherwise very healthy athletic young woman recently diagnosed with dermatomyositis ... 
I freaked out when I got the email ... sent to me right after I left home for work yesterday ... my journal entry looked like this .. on yesterday morning...

DD JUST EMAILED ME THIS ... IT MADE MECRYYYYYYYYYYYYYY............ I NEED THE WAMBULANCE!!!!!!! she sent me the following e-mail with the picture of us attached ... a picture we had taken about a year ago .... or was it that long? I can't even remember ... the two of us ... right after her giving a zumba class ... and her subject line struck me ... hard ... when she says Oh How The Mighty Have fallen....and she attaches our year old picture.... oh my heart ached for her ... so strong and healthy and always joyous and still is today dealing with her diagnosis and treatment for dermatomyositis....

From: Candice XXXX 
To: "[email protected]" 
Sent: Tuesday, July 19, 2011 8:28 AM
Subject: Oh How the Mighty Have fallen...

This was just a year ago....   

  

but but but but.... I TURNED THAT FEELING OF ACHE AND SADNESS AROUND REAL QUICK .... just yesterday she went to physical therapy and she posted on Facebook that "FEEL MY MUSCLES WAKING UP" .... YAYYYYYYYYYYY .....so I don't need the wambulance now ...OHHHHHHH SHE SAYS HER MUSCLES ARE WAKING UP!!! SHE CAN NOW FEEL THEM!!! OH  I AM NOT STRESSED ... I AM BLESSED .... SHE IS FEELING HER MUSCLES AGAIN.... SHE GOT INTO THE BATHROOM ALONE AGAIN.... THIS MORNING SHE GOT DRESSED MOSTLY BY HERSELF AGAIN .... SHE GOT UP FROM THE TOILET ALONE WITHOUT ASSISTANCE FOR THE FIRST TIME THIS MORNING ... SHE WAS ABLE TO GET UP OUT OF BED ALONE THIS MORNING WITHOUT ASSISTANCE ...

YAYYYYYYYYYYY I DON'T NEED THE WAMBULANCE I AM SHOUTING AND PRAISING AND CELEBRATING... MY DAUGHTER IS MOVING ON HER OWN A LITTLE BIT MORE EACH AND EVERY DAY AGAIN .... I AM NOT STRESSED... I AM BLESSED!

I AM NOT STRESSED ...I AM BLESSED!
I AM NOT STRESSED... I AM BLESSED!

F@#@ THE WAMBULANCE ... I AM TOO BLESSED TO BE STRESSED WITH THE DEVIL'S MESS!!!!! 

MY DAUGHTER IS MOVING AGAIN!!!!

AND I REPLIED TO HER SAYING ... DON'T WORRY BABY ... YOU ARE NOT FALLEN!!!! YOU ARE MIGHTY STILL INDEED ... YOU WILL GET THERE AGAIN SOON ... IN THE INTERIM OCCUPY ... YOU ARE BLESSED!!!!

Her muscles are impaired by this disease of sudden onset ...  that I have been having to assist her in all her ADLs including her not being able to stand from a sitting position, raise her arms or flex/extend hands wrists without great challenges ... but she is doing it on her own again now ... little by little ... with love. care. and tons of TLC from family and friends .... she is getting back up on her own AGAIN ... YAYYYYYYYYYYYYYYYYY I AM SOOOOOOOOOOO HAPPY I CELEBRATE!!!

As I celebrate my health and my mobility each and every day .... my husband is back in a cast with Charcot foot on one extremity and I am able to assist both DD and DH with help of my son and myself ... I would have been hard pressed to do that 4 years and 5 months ago with my mobility impaired by morbid obesity and 5 related co-morbidities ALL IN REMISSION TODAY...

My before and after ... the same woman in a smaller frame ... 

This is my journal entry in my empowerment journal a picture a day keeps the pounds and the inches at away.....

I wore this yesterday afternoon ... sitting on my deck enjoying quality time with my family and my ferrets...

Over the weekend I stayed in ... the house was clean ... the laundry done ... We canceled our event where we were going out with our group of friends in our club Oldies Keeping the Flame Going ... DH foot was hurting and he was recently casted so we decided to say in...

I amused myself in our huge old house ... I spent quality time with my family,,, with my sewing machine ... with my ferrets an with my paintbrushes and my canvas ...

I painted a few canvases to send out to my OH friends .... and shared on my OH group Share-it! opened to all .... no sales pitch here ..my talent is a gift and thusly treated ... no prices or strings attached to it ever...

Iris at her Steampunk event...

Alapaula and her horse ...

I also did sketches during the week ... here is one of our beautiful OH sista Natonna..


My cir****tances do not dictate my outcome... I am destined to be joyous and I am destined to be free ... I embrace joy and make it happen to me each and every day ... Joy is not a feeling and is not based on happy or sad... it is not based on material things ... and is not predicated upon the words of men .. as a believer I say the Joy of the Lord is my Strength .... my very dear friend embraces JOY as her inner strength and shared these wonderful words with me... I have them as my wallpaper and I painted a beautiful canvas of them to send on to her...

 ..."there is misery and joy in equal parts in this world. Misery will find us if we make ourselves a target. Joy is just waiting for us to acknowledge it. I find joy every day in all parts of my life and I just let it happen to me. Misery is there but I'm sure as hell not going to invite it in".....

Thanks for allowing me to share ... snippets of my journey ... 

You are invited to join us ... see link in signature line....
 

I'm praising God with you on the improvements that your daughter is making.  God is truly good!

Michelle