Sickle Cell - Serious Questions
Lavender
on 7/30/09 4:12 am - Northern, CA
on 7/30/09 4:12 am - Northern, CA
hey sue
i sent this to my good friend and her daughter who is an adult with sc to answer the questions, once i receive them back i will forward them to you.
i sent this to my good friend and her daughter who is an adult with sc to answer the questions, once i receive them back i will forward them to you.
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Does it have to be adults? The reason I ask is SCA is harder on youths...my brother had attacks very often until he reached 21...he is now 47 and though he still has scary, full-blown crisis....they are not NEAR as often.....
However, for any person with SCA....when going through a crisis....the pain....OMG is crippling...they want to feel comfort.....not many bright lights.....massages.....we rotate with warm and cold towels for Snoop.....those towels that are steamed....he loves those!
The massages helps him to relax....when have an attack (this is before a full-blown crisis)...he starts to go into the fetal position....his joints.....they like aches....so all he can do is ball up....
the alternating of the warm, cold, and massages helps him to relax and stay stretched out...
He also goes from being hot to cold...(drop in iron)....soaking in a whirlpool tub is a good idea
The walls should be painted soothing coolers.....when we were at home...Moms had his room in grey and yellow (don't ask why)....
But the thing is everyone with SCA is different and their crisis, attacks are different...
Some don't want pain meds....Snoop tries to stay without them until he can't take it anymore....they used to give him Nubain (or something like that) shots....now it's morphine..
Oh, as you know their immune systems are weak....it's hard for them to fight off infection....they are easy to get pneumonia!! That is scary....
Hope this helps....I'll call Snoop tomorrow ~aww....later today...~ and get his input also LOL
However, for any person with SCA....when going through a crisis....the pain....OMG is crippling...they want to feel comfort.....not many bright lights.....massages.....we rotate with warm and cold towels for Snoop.....those towels that are steamed....he loves those!
The massages helps him to relax....when have an attack (this is before a full-blown crisis)...he starts to go into the fetal position....his joints.....they like aches....so all he can do is ball up....
the alternating of the warm, cold, and massages helps him to relax and stay stretched out...
He also goes from being hot to cold...(drop in iron)....soaking in a whirlpool tub is a good idea
The walls should be painted soothing coolers.....when we were at home...Moms had his room in grey and yellow (don't ask why)....
But the thing is everyone with SCA is different and their crisis, attacks are different...
Some don't want pain meds....Snoop tries to stay without them until he can't take it anymore....they used to give him Nubain (or something like that) shots....now it's morphine..
Oh, as you know their immune systems are weak....it's hard for them to fight off infection....they are easy to get pneumonia!! That is scary....
Hope this helps....I'll call Snoop tomorrow ~aww....later today...~ and get his input also LOL
I focus not on my disabilty; my focus is on my ABILITIES.
(Dedee, 2009)
My hearing impairment ENABLES me, not disables me.
(Dedee, 2008)
~Dedee
I was up and couldn't get any sleep. And seen your topic one near and dear to me and wanted to know what other thought. I've always wanted to get with a SCA group since may daughter pass
away from SCA. I love to see someone that can help the SCA patients get the meds that they need. And help other understand they are not drug addicts just looking for drugs when they are in
crisis's. For people not to say things like they just don't won't to either be responsible adult or kids. I was reading DeDee posting and she was right on time. We used to hold my DD for the warm of our body use to help her alot :)) no we wasn't just spoiling her it was just one of a few trick that we had to use. I would to see what you finally come up with. I have been looking for a leaflet that I put together for my church a few years ago for National SCA month can't find one. If I do I'll be send you the inform, I know you have been on line to the Sickle Cell site great information there good luck.
away from SCA. I love to see someone that can help the SCA patients get the meds that they need. And help other understand they are not drug addicts just looking for drugs when they are in
crisis's. For people not to say things like they just don't won't to either be responsible adult or kids. I was reading DeDee posting and she was right on time. We used to hold my DD for the warm of our body use to help her alot :)) no we wasn't just spoiling her it was just one of a few trick that we had to use. I would to see what you finally come up with. I have been looking for a leaflet that I put together for my church a few years ago for National SCA month can't find one. If I do I'll be send you the inform, I know you have been on line to the Sickle Cell site great information there good luck.
"A Man's heart plans his way, But the Lord directs his steps.
Proverb 16:9
May not be where I want to be but I glad to be where I'm at.
Working at getting the rest of the way.
12/10/2012 I'll be having LBL, BL/BA, thigh & arm lift, eyelid
Body by Dr. Sauceda booked to 12/9--12/22
Proverb 16:9
May not be where I want to be but I glad to be where I'm at.
Working at getting the rest of the way.
12/10/2012 I'll be having LBL, BL/BA, thigh & arm lift, eyelid
Body by Dr. Sauceda booked to 12/9--12/22
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