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Are you positive for RF or anti-CCP antibody? Or are you negative for the blood tests for RA?
Regarding Plaquenil... it is by far the safest medicine there is for autoimmune disorders such as RA (but also the weakest and least likely to work). Don't worry about the "eye problem". Back in the old days, higher doses of Plaquenil were used and sometimes it would deposit in the retina causing a condition called retinopathy and causing blurred vision and blind spots. It was usually reversible by stopping the Plaquenil. These days we use much lower doses and it is rare for patients to get this any more. Most rheumatologists and ophthalmologists have never even seen a case of it. We just ask our patients to get an eye exam yearly just to make 100% sure... and the eye doctor would see something before you would ever notice a problem. To give yourself extra assurance, use an "Amsler grid" monthly. Just google search "Amsler Grid" and you can download one off the internet and print it out and follow the directions that come with it. That is even a more sensitive test for any retina problems than the eye doctor's exam.
Its worth the effort to see a rheumatologist. Perhaps the rheumatologist can work with your regular doc regarding treatments, blood work., etc, that way you would only have to make a trip tothe rheumatologist once a year or so....
Hope you feel better soon!
I have been diagnosed with RA for over 10 years. I was doing great until my divorce. After my divorce....I gained a lot of weight, and got so stiff and sore that i was having trouble excercising. Became a negative feedback loop...the heavier I got, the worse I felt, couldn't excercise, and i became heavier. Not to mention being on and off of prednisone didn't help matters. That is why I looked into weight loss surgery.
I too am allergic to sulfa drugs, so my options are also limited. I take a combination of Enbrel and methotrexate. I don't like taking the methotrexate, but my rheumatologist says the combination is really critical to preventing joint damage.
I have had great luck with the Enbrel. You get used to giving yourself shots, and it is better now that there is a once a week option. Other drugs like Enbrel are Humira and Remicade. I would check with our doc to see if they are an option for you.
Oh, and the poster who said that you should move and excercise as much as you can is spot on. The more excercise you get the better you will feel. Start slow, and progress because excercise is really helpful...but if you overdo it you will be sorry for a couple days.
Good luck!
August 16th, 2010 I woke up and could not walk, close my hnads, and every joint in my body has frozen up. My husband helped me to dress and got a walker and helped me into the car. We went to the ER and the doctors did lab work and told me my RA had all my joints frozen. I was given a shot of steroids and a pain med in the ER and sent home.
The steroids helped me to get better over the course ov a few days. I called my family doctor and he has put me on 10mg of prednisone every other day. YES it is helping me to stay mobile and not ache or have problems at this point. I do not have a rhumatologist close to me. If you find out of another type of management let me know. I have been on almost all the anti inflamatory pills made and I need something that works full time.
Darvacet works for mild pain but other than that you may need something like Hydrocodone or another med. Best of luck.
A few years ago I had problems with my left knee and after several x-rays and MRIs found out that the cartilage in my knee joint has several tears. Luckily they were not bad enough to need surgery to correct it, so my Orthopedic doctor recommended Ibuprofen and Naproxen as needed for pain and swelling when inflamed.
I haven't had any flare ups since late 2008 but this week it has been bothering me fiercely to the point I can't bend my knee.
I will be calling my doctor on Monday to make an appointment but want something to help me with the pain until then.
What do you recommend? Is there anything we RNY patients can take that would have the same effect as Ibuprofen and Naproxen?
Thanks!
Rose
~Starting Weight: 261 lbs~~Pre-Op Weight: 241 lbs~
~Current Weight: 155 lbs~
"Just when the Caterpillar thought her life was over, She began to fly..."
When you read about the side effects of methotrexate it is important to realize a few things. Firstly, they are a list of "potential side effects". The vast majority of patients taking MTX never get any of them. Also, many of them listed are done so because they are seen mostly when high doses of MTX are used in patients (for example to treat cancer) rather than the low doses used to treat RA. The most common side effects are mild and reversible with using lower doses if and when the do occur. MTX is considered the gold standard and first drug of choice for treating RA because after its being used for 30 years now by rheumatologists, it comes out way ahead of the pack as far as safety combined with its effectiveness for many patients.
In addition, you have to compare the disease to the treatment. While the vast majority of patients taking methotrexate will not get any side effects from the MTX; RA itself can be devastating across the board causing the pain, stiffness, difficulty with doing one's daily activities. Over time, it is a crippling disease. Not only that, it is a deadly disease. Patients with RA die about 10 years younger than their peers because of the systemic inflammation causing early onset cardiovascular disease. Recent studies suggest that patients being treated aggressively to get their disease under control are most likely having less problems with these complications of RA (to include heart disease). When I did my rheumatology fellowship in the early 90s, I remember our waiting room full of folks in wheel chairs and crippled up. These days, it is markedly less so, in fact, the orthopedists tell us they are not doing nearly as many surgeries on RA patients as they used to because of the much better treatment these days.
It is just very important to make sure that you do get your blood tests done every 4-12 weeks on the medicine (to make sure your liver enzymes and blood counts stay OK), that you drink very limited alcohol if any, and that if you do get any side effects (like diarrhea, stomach upset, rash, hair loss,etc.) that you let your doctor know. Also, your doctor should also have you on either folic acid or leucovorin to prevent side effects, so make sure you are also taking one of them. These days with so many really good medicines available, a large percentage of patients are able to get under control and be in "remission" on medications. If MTX doesn't do so, your doctor may talk to you about adding one of the biologics to your regimen.
Best wishes!
Thanks for your response. I try to exercise as much as possible. Something is bound to work eventually. thanks again