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Topic: RE: RA??
I'm so glad you replied..I've been doing nothing but worrying and the reason I worried so much and of course anybody would is because in my family..Cancer is in our genes bad. Thanks so much..its kinda givin me a little peace of mind that there is something out there that can help.
Topic: RE: RA??
Sounds like the Plaquenil isn't working. Sounds like you have a LOT of inflammation. Can you take NSAIDS? Celebrex was a miracle drug for me, but I had to stop taking it because of heart issues (caused by RA, unfortunately). I was diagnosed with RA about 15 years ago and been on just about every kind of RA drug. Right now, I am on Enbrel, a biologic, and yes, a side effect for a very small group of people on biologics is a form of cancer. Infection is more common and requires constant monitoring.
If you aren't ready for a biologic, you might try Methotrexate. It is a chemo drug, but you take a very low dose once a week. I couldn't tolerate it, but lots of people do well with it.
If you don't get your RA under control soon, you could suffer extensive joint damage, causing not only pain, but maybe requiring surgery.
I will tell you that I mourned my life I expected to live after being diagnosed with RA. I tried to live the life I had planned out for me, but it didn't happen. After spending years in college, training for my dream career, I have to say that now I'm pretty much permanently disabled. In 15 years I can't say that my arthritis has ever gotten better or went into remission. Some days are worse than others, for sure, but no day is a perfect RA day. It is just the cards we drew, and we gotta play em. Good luck.
If you aren't ready for a biologic, you might try Methotrexate. It is a chemo drug, but you take a very low dose once a week. I couldn't tolerate it, but lots of people do well with it.
If you don't get your RA under control soon, you could suffer extensive joint damage, causing not only pain, but maybe requiring surgery.
I will tell you that I mourned my life I expected to live after being diagnosed with RA. I tried to live the life I had planned out for me, but it didn't happen. After spending years in college, training for my dream career, I have to say that now I'm pretty much permanently disabled. In 15 years I can't say that my arthritis has ever gotten better or went into remission. Some days are worse than others, for sure, but no day is a perfect RA day. It is just the cards we drew, and we gotta play em. Good luck.
Distal RNY 6/11 SW 456 CW 311 Complications: Small bowel strangulation 12/23/2012, non healing surgical incision--ongoing. Still.
Topic: RA??
I'm 27 years old, with lap Band and have had RA for over a year now...Within the past 9 months everything has progress worst and they are telling me that it only gets worst as the years go by. Having them to tell me that is just heart breaking to me because I wake up soo so sore and soo swollen and stiff every morning. They have put me on Plauqanil ...Not sure if I've spelled that right or not. I've been taking it for two months and haven't notice any change at all. I've got huge swelled lumps on top of my hands..back of my neck..one of my ankles and one knee. If the swelling would go away it wouldn't be so bad I don't think. I'm just wondering...what type of medicine would they try next from plauqanil becaues I've heard of some awful side effects to some of the RA medicines. Some that even causes cancer. Just wondering what all types they have out there because I'm not willing to take a chance on medicines that can and have been known to cause cancer. Thanks in advance everyone!
Topic: RE: Knee Arthritis
thanks for the info, both my knnes need complete replacement, just had wls on monday, is walking in the swimming pool good, w ill be doing straight leg raises per above. thanks again.
Topic: RE: 2 new knees!!!
I was diagnosed in early 30's as well. I am 47 and supposedly too young still. I am at my wits end!
Topic: RE: 2 new knees!!!
I was diagnosed with arthritis in my knees when I was in my mid-30's.
Congrats to the OP! Now get out there and "walk" life
Congrats to the OP! Now get out there and "walk" life
Winning isn't everything, but wanting to win is.
DONT BE AFRAID TO FAIL......BE AFRAID NOT TO TRY!
highest weight 313/ surgery 255 / current 185 / goal 135 Height 5'6"
DONT BE AFRAID TO FAIL......BE AFRAID NOT TO TRY!
highest weight 313/ surgery 255 / current 185 / goal 135 Height 5'6"
Topic: RE: 2 new knees!!!
Do you mind if I ask how old you are? I keep hearing I am too young. I am in so much pain all the time. 
Topic: 2 new knees!!!
I am soooo excited!!! March 28th I got a new right knee and on August 8th I got a new left knee!!!! WooooHooo!!!
Recovery was challenging for sure but I was determined. "Arthur" (itis) had me long enough!!!
After loosing 136 lbs I was approved for the much needed surgery to restore my mobility and I was thrilled!!! The first doc said no... 136 was not enough and I was sad for 3 months then.... I realized... he's not the only surgeon on the planet!!! I went to the surgeon who did a fantastic job with my Mother's knees 9 & 11 years ago and he has done a fantastic job with mine!! I am soooo happy!!!
Every ounce of effort with the weight loss was worth the joy of my mobility!! I have a long list of places I want to walk through! Back to NH to see so many places... to Maine to walk my favorite paths!!!
Starting this weekend!!! Going to walk Rachel Carson and Margian Way!!! The beach of course!!!
I even have permission to start training for the Pan Mass cycling event in 2013!!! WoooHooo!! That I do have to work off a few more pounds for... but I can't wait for spring when I can purchase my bike for training!!!
Don't let Arthur (itis) get you down!!!
Recovery was challenging for sure but I was determined. "Arthur" (itis) had me long enough!!!
After loosing 136 lbs I was approved for the much needed surgery to restore my mobility and I was thrilled!!! The first doc said no... 136 was not enough and I was sad for 3 months then.... I realized... he's not the only surgeon on the planet!!! I went to the surgeon who did a fantastic job with my Mother's knees 9 & 11 years ago and he has done a fantastic job with mine!! I am soooo happy!!!
Every ounce of effort with the weight loss was worth the joy of my mobility!! I have a long list of places I want to walk through! Back to NH to see so many places... to Maine to walk my favorite paths!!!
Starting this weekend!!! Going to walk Rachel Carson and Margian Way!!! The beach of course!!!
I even have permission to start training for the Pan Mass cycling event in 2013!!! WoooHooo!! That I do have to work off a few more pounds for... but I can't wait for spring when I can purchase my bike for training!!!
Don't let Arthur (itis) get you down!!!
Topic: RE: Surgery booked for gastric sleeve, very nervous!
Jane, I just had the mind set that my life was over and thought “Is this all there is? Do I just roll up and die now?". I was 57 years old at the time. I was just not ready to roll over. I have right side numbness from head to toe from Embral. I still have the numbness to this day. I walk with a cane but I can live with that. I went from having someone else brush my hair to being able to do everything myself. Yes, I was scared, but more scared of not being around.
I have my doctors name below my avatar and people mention their doctors all the time, I don’t see why you cant. I am sorry that you are having so much trouble with allergic reactions. I hope you find what works for you. Living with RA and other co morbidities was not something I would of chose for myself but I take one day at a time. There was always that ring of hope that I hung to. I wish you the best on your journey. Sounds like you’ve been through a lot. I would say you are pioneer stock to go through what you have… Hugs Mattie
Topic: RE: arthritis and artificial sweeteners....
Do you feel that the artifical sweetners made your pain worst. Do you still have pain since you are off the sweetners?
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