Fibromyalgia Anyone?

Hello All, I just wanted to know if anyone here could tell me if they have thsi diagnosis.  I just went for a round of tests and the rhuemetologist seems to think this is what is going on with me.  SO I am curious about how people post op are dealing. maxine

Hi Maxine, I have been diag with Fibromyalgia about 12 yrs ago. i thik I have had it longer though. I also have severe arthritis.  It is hard to deal with them both, but I guess I try to keep going it is hard at times when you HURT all over.

Yup - you're not alone. I was diagnosed with fibromyalgia in 1986 - and I also have osteoarthritis.  The one thing I have found to manage the fibro is to exercise regularly. Don't over-do the exercising - because if you do too much at first you'll be really sore that you'll want to stay in bed. THEN staying in bed makes the fibro worse. So - it's a matter of exercising - and gradually doing more each time. It's a long, slow process - but once it becomes part of a routine - the fibro doesn't act up as much.

I always wondered if I had fibromyalgia. I have 6 herniated discs in my back and degenerative disc disease. I feel like I am always in pain...can't even sleep. What were you feeling and how were you tested?

I won't go into all the details of what i was feelign but to summarize it I was and I am still experiencing Chronic Fatigue Swollen Joints Sensitivity to light Skins pain (hurts to be touched) Confusion or brain fog Nerve Pain Now what the docotr explained is that it is not one particular test that is done liek with diabetes.  But a series of tests that rule out other conditions. For example I had an EMG done which came back to show it is not carpel tunnel.  I also had sugar test done.  Let's say dumping was the elast of my concern I thought I would die.  Anyway I hope this helped. Maxine

hi. I too have Fibromyalgia and have been diagnosed with it for five years. i went to a pain clinic and they put me on Methadone which really helped at first but now it is still bad, especially in my right knee.  i can't exercise so it makes it tough.  With the Methadone comes constipation so I am on a plateau for two weeks and I am so upset.  I go to the knee specialist on Tuesday to see what they can do with my knee.  Fibro is one think that won't go away and I have found weather change really affects it. good luck

I have had no success at all and I am gettign a second opiniion because I have also been diagnosed with Lupus and and it seems there is no help for the pain.  Just curious though have you found over the past few years that treatment is more available?

I have fibromyalgia and juvenile rheumatoid arthritis.  I got the JRA dx when I was 13, then the fibro dx when I was 37.  I was in the middle of a horrible LONG flare (ended up having to quit working and am now on disability), so when the rheumatologist added fibro onto the stack of issues, I was like "WHAT ELSE?!!!" I haven't had WLS yet, so I don't know how to deal with it post-op.  At first my rheumatologist put me on Neurontin for the fibro pain, but I had to quit taking it--it did nothing for the pain and just put me to sleep, which I could not have happen when I had to be the sole driver for my DH (seizures) and kids.  So I went off that and just stayed on methotrexate shots for the JRA and prednisone pills when the flare was too hard to deal with and lots of resting.

I know this is an old post so thanks for posting a response.  I am still battling with issues and have no clue what is wrong with me.  I am going for more tests this weekend and next week.  I think I am just going to let it go this is my life as I know it and the doctors really don't know what is wrong.  I am tired of spending my hard earned money for nothing.

I have fibro too.  My rheumotologist put me on flexaril muscle relaxer for the pain and it works really good. I take about 2-flexaril a day.  Pattie