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I wish you the best with whatever you decide!
I have been corresponding with Dr. Peter Crookes at USC who is a DS surgeon and one of the leading foregut surgeons in the country. He has perfomed numerous surgeries to revise folks with DS to something resembling a RNY. The problem is if a person has reflux pre-op DS, they will have worse reflux problems post-op. The problem usually begins 7 to 8 years out. They didn't know about this issue when I had my DS because they need lots of patients and lots of years to assemble the statistics.
His surgeon is on the OH website and has excellent reviews.
Your post is contradictory... you say "the stomach is completely removed" and then "all that is left is a small sleeve". The latter part is correct, the former is not.
on 4/4/09 11:58 am, edited 4/4/09 11:59 am
I have never heard of this thing happening. It sounds awful. Good luck with your surgery.
BTW, your surgeon is not on the duodenalswitch.com website of vetted, experienced surgeons who do the modern DS procedure. I would think that a doctor who has been doing it since 2002 would be on there. Now, I'm really wondering if you had the old style procedure which so many people have had terrible experiences with.
Hello. I felt the EXACT same way after my surgery. Smells made me sick and water would make me throw up and i couldn't keep ANYTHING down.
about 1 month post op, i went to my doctor because i seriously had so much regrets and was so depressed, i seriously hated the decision i had made. So my primary care doctor and I talked and she recommended an eating disorder counselor and put me on a low dose of Wellbutrin.
I'm not a huge advocate of pills or therapy, but honestly, both did me so much good. I've learned to cope with the loss of not being able to eat, feeling like such a huge peice was taken from me and hiding behind the fat for so many years. The pills eased me back into feeling like myself. The combo has done wonders for me, and now i see what a great thing this surgery was! The more weight i lose the better I feel, and the more confidence I gain.
I swear it will get better, see a doctor you know and trust and explain the situation. I don't think this is as uncommon as we think. I know you will feel better!!!! and pretty soon, you will see that RNY is a great thing.
How big did your stomach start? Mine was only 100cc's to start with, which is about 2 oz. I know it stretches, but 2oz isn't that big a difference from those starting.
Valerie
DS 2005
There is room on this earth for all of God's creatures..
next to the mashed potatoes
Hello,
I had a BPD/DS in 2002. It was extremely successful and I lost 180 pounds and an incredible 144 inches. That's a little more than 12 feet! About one year ago I began having horrible problems with acid reflux. I don't mean a little hearburn, I mean waking up with a mouth full of acid or asperating the acid into my lungs and not being able to catch my breath. After many tests, CT scans, and MRIs, they found my body has constructed itself a fisutla that is dumping bile into my stomach and is resulting in the reflux. It's so bad that I have developed pre-cancerous lesions in my esophagus and the reflux is literaly eating my esophagus. My father died from esophageal cancer and my sister has problems too, so my risk factors are much higher.
Through research I have found that acid reflux is a common complication of the DS. When the curve of the stomach is removed much of the acid producing part remains, but the acid has nowhere to go. So, it comes up the esophagus. (I'm not a doctor so forgive me if this is not technically correct)
So, now I am scheduled for a gastrectomy in which my stomach will be removed, except for about 2 ounces. There is a whole list of other things they are going to repair like a hiatal hernia, undo the DS, 3 hernias, remove the fistula, and few more items I can't remember right now.
Anyway......I believe pre-ops should know that WLS is just a tool. You can eventually regain weight if you don't change your eating habits and there are long term complications with all the surgeries.
Would I do it again? Maybe I should wait to answer that question for about 3 months. I was 48 years old when I had the BPD/DS and it cured all my co-morbidities and saved my life. But now I am scheduled for a surgery on April 14th that will require 2 surgery teams, I will be in intensive care for 2 days then go back into surgery to be re-opened and re-tested and inspected. I will be in the hospital for 7 to 10 days and up to several seeks. This surgery has a mortality rate of about 20% to 25%. When I am done and healed I will have a 2 ounce stomach (the rest will be removed) and plumbing that resembles an RNY, but not exactly. Tough question!
Mike