Recent Posts

(deactivated member)
on 6/12/13 8:13 am - TN
Topic: RE: Hello, Can We Talk?! Long But Informative

I'm happy to know you are doing better and feeling better and I wish you a very happy life. They were also looking for the non benign tumor that causes bariatric patients to release too much insulin but found nothing. So, I suppose these are my cards and I'll just have to play the hand I've been dealt! 

You have been very helpful and thorough and I appreciate you taking the time to even allow me to know such information. Thank you again and if I should happen to have any other questions or anything I'll more than likely send you a message. Take care!

 

Carla 

H.A.L.A B.
on 6/12/13 7:35 am
Topic: RE: Hello, Can We Talk?! Long But Informative

ouch... I am so sorry to hear that.  I can relate. I had a few moments myself over last few months..  

I know it sucks.  And when they told me that my pain is due to constipation.. but dealing with so many things - I knew there was more stuff.  I just had surgery and so far I can eat. Not much and only some foods, but with the cortisone replacement and with the surgery I just had - I see some light... 

I still need to make sure that the dark spots in my pancreas is not a cancer but a cysts.. (6 month follow up MRI next week) But all the indications are that it nothing major. 

Best wishes and hugs... 

something we are dealt more that we wish. 

My saying is :  

"God does not give me anything he does not think I can handle, but I wish he did not believe as much in my ability to handle what he gives me...." 

Hala. RNY 5/14/2008; Happy At Goal =HAG

"I can eat or do anything I want to - as long as I am willing to deal with the consequences"

"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."

(deactivated member)
on 6/12/13 5:27 am - TN
Topic: RE: Hello, Can We Talk?! Long But Informative

Thank you for your reply! I have been to two Endocrinologists and have been tested inside and out, for possible problems with thyroid and pituitary and anything else that may be the cause of the things that I'm dealing with. Thank God I don't have any thyroid or pituitary issues or any other things that are the cause of the current problems. Trust me these were very good Endocrinologists, one worked primarily with bariatric patients and the other is well known for being able to find things that other doctors may have missed or overlooked. I was put through the ringer twice with all day testing and labs and am certainly not interested in doing those things any more. I'm not one to rule out that most if not all of my illnesses were perhaps genetically recessive and became dominant with significant weight loss. I have talked things over with my PCP and she knows I no longer wish to be poked and prodded on as if I were a piece of meat, even if something else inevitable should be found and diagnosed I'm not interested in sticking around in this cold, cruel, world any longer BUT I'm not going to hasten my expiration either, that's God's job not mine, I just plan to play life down naturally while learning new coping skills.Thank you again for sharing! 

H.A.L.A B.
on 6/12/13 3:36 am
Topic: RE: Hello, Can We Talk?! Long But Informative

I do have SAI - secondary (or central) adrenal insufficiency.   My pituitary do not make enough hormones to stimulate the rest of the glands.  

That explain some of my low BS - hypoglycemia, severe RH, and overall feeling tired.   The solution: hormones supplementation - so to all the vits and herbs - I need to add 1-2 -3-4 times a day (as needed) hydrocortisone. Too much makes me *****y, not enough make me very tired, with possible low BS and low BP.  Now it is clear why I had a such a hard time dealing with major stress at times, and every time I deal with a lot of stress (good or bad) I literally I felt like I could not face the world, and got ill. 

Most likely I had that issue before RNY and as I am getting older - it only gets worse. Most likely the very strict - starvation mode I was under early on after RNY contributed to worsening the condition of my pituitary glands.    

I already found a support groups for that kind of condition and I am trying to learn how to deal with that day to day. 

I do hope that with the supplements I will be finally able to get back to exercise, and be more active.  But one thing at time. 

My last surgery too a year from my life - and during the same time - I developed a severe menopause symptoms. (very typical for SAI) 

I started the hormones a month ago, and I can see a huge difference.  So far my weight is the same - but I may see some gain initially, due to minerals balance (SAI can cause sodium deficiency) and water gain - but that would stabilize my BP.  (so far no weight gain - and that indicates good - not to much supplementation) 

 

Note: 10 days weeks ago I had a abdominal lap surgery to try to fix my belly pain after eating. The recovery from surgery was a blast. So far so good. I can eat normal food (normal for me - before the pain started - like meats and veggies) and I am doing better than I expected to be doing. 

On one month on hormonal supplements - I feel like a newer person.  My depression is lifting... and I feel so much better.   My BP is normal, I no longer has postural hypotension, or low blood sugar if I don't eat.  In the past - I had to give up exercise because even yard work may caused my BS to drop too low. At the time of the testing - I only left low BS when it would drop below 40. Now I know when my sugar is getting low when it is in 60's...(I still get RH when I eat too much sugar - carbs - o well..)  . 

Some people with low cortisone - develop Fibromyalgia... allergies, low blood sugars, low blood pressure, etc.  

You may try to look into that,,,, 

It took me 9 moths to be able to see a endo who is great and deals with that.  That was worth waiting for. Not all docs see that as issue.  

check that site - someone who is dealing with a lot of issues collected some of the stu

http://www.mdjunction.com/adrenal-insufficiency

http://bob3bob3.mywebcommunity.org

 

 

 

 

Hala. RNY 5/14/2008; Happy At Goal =HAG

"I can eat or do anything I want to - as long as I am willing to deal with the consequences"

"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."

H.A.L.A B.
on 6/11/13 9:46 pm
Topic: RE: Hello, Can We Talk?! Long But Informative
I hate to tell you but you may be dealing with one more thing - adrenal insufficiency. That may cause some of the symptoms you have. It require a good endo that is familiar with that and willing to help and test you. I don't have time now - but if you are interested I can share some of my issues. Since I was put on cortisone replacement protocol - I feel better and some of my issues are resolving.

Hala. RNY 5/14/2008; Happy At Goal =HAG

"I can eat or do anything I want to - as long as I am willing to deal with the consequences"

"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."

(deactivated member)
on 6/10/13 6:28 am - TN
Topic: RE: Hello, Can We Talk?! Long But Informative

Thank you! I am currently looking for research studies and clinical trials to get involved in. It would be nice to leave a legacy that I helped others in more than one way. So that's where I am now. There's nothing left so it may be my destiny.

 

Thank you again for your reply, many have read but none have replied...until you. Congratulations on your weight loss by the way!

juleskar
on 6/10/13 2:47 am
Topic: RE: still no answer x-post
I hope & pray your doctors can find the answers needed to get you well. Keep us updated!!
StrawWalker
on 6/10/13 2:39 am
Topic: RE: still no answer x-post
If you are taking Vitamin D.....try stopping it. Some people are VERY sensitive to it. Symptoms are vomiting, constipation, residual pain anywhere in abdomen and chest cavity. Worth a shot. Let me know if you try it how it works out.
Take care
StrawWalker

Start 290, Current 180, Goal 150
StrawWalker
on 6/10/13 2:36 am
Topic: RE: Any tips on non-jumpy appetite control thing out there
If you had RNY, then your stoma could be stretched. Something to check into.
Take care
StrawWalker

Start 290, Current 180, Goal 150
StrawWalker
on 6/10/13 2:34 am
Topic: RE: Hello, Can We Talk?! Long But Informative
My heart goes out to you.
Take care
StrawWalker

Start 290, Current 180, Goal 150
Most Active
Recent Topics
Endoscopic sleeve
stephgfl · 2 replies · 999 views
The last 35 month
julielynn · 3 replies · 8588 views
Misery Loves Company
lbmg · 1 replies · 9143 views
I want it reversed!
fatfifty · 8 replies · 11131 views
×