Caution...Photo Share ... Early morning meet and update!!!

 We met for early breakfast with OH sista MSW will not Settle (those are the initials of her name BTW).... MSW's DD ... me and my DD ... for 5:00 a.m breakfast before Marcia heads off for her monthly treatments.  We had fun and a wonderful time together where we thoroughly enjoyed each other's company.  MSW really helped my DD with some concerns she had regarding the treatment modalities that are quite similar and the side effects.  So far DD is recuperating at home and today we get to go to the rheumatologist hoping the results of her muscle biopsy are in and they can best determine what treatment modalities she is going to follow in addition to what she is currently on or in replacement of...

Here we go ... Did our daughter's not keep their baby faces? LOL I know mine will ALWAYS be my baby.


Candice's  rash from the dermatomyositis has resolved a lot as well as her lower extremity weakness however she is still very weak in the upper extremities and neck ... so much so I have to assist her in getting dressed as she cannot raise her arms or pick her upper body up from a laying position.  She spilled her coffee at breakfast when she tried to pick up the cup and had a moment of weakness in the hand and dropped it ... mom to the rescue and no major damage.... hopefully we are in the final stretch to determine what agents are going to work best for her....

This is my journal entry today.... me and my beautiful DD at breakfast with our OH friends....


My journal entry last week... a picture a day keeps the pounds and the inches away...


I will embrace joy each day and make it happen to me ... I do not know if I will live to see tomorrow ... but I have today and I will live this day like it is the best day that was ever given to me ... ..  Thanks for allowing me to share. 

I laugh every time I read your photo warning to those too slow or too weak minded to stay away from posts that will upset their tiny little worlds.

You all look lovely and it's good to see Candie out and about. After you get the bx results you will be able to begin a course of treatment that should see her back to her old self very soon. Best wishes to both of you!

We are finally back in from being tied up all afternoon ... her second biopsy confirmed the diagnosis of dermatomyositis which is good cause now we have an action plan with no new surprises.  She was started on a second agent and hopefully it is up from here ... she is a fighter, a trooper and is in good spirit and can't wait to resume her normal activities which she has not been cleared for yet but we are getting there.  Thanks for being a pillar of support for both of us ... I must have texted you to death LOL

Yay! You have a dx and a plan, plans are good!

 They are more than good ... they are excellent.  We just came in from a short stroll on the beach (baby steps) and managed to stay close to the house which is a plus ... all scripts filled and first dose taken I know it takes a few days to kick in but she is upbeat... After being disturbed at not being able to get up from the sitting position without assistance at the docs office and at home she tried a few times once we came in and after 4-5 tries she was able to do it ... her voice is more like her own and she says she feels much stronger today than she has since this all started ... so YAY for plans ... it is like a cloud lifted .. we know where we stand and we are going to act upon it and move on ... thank you... thank you thank you..

Perhaps we should petition the moderators to REQUIRE a photo caution warning along with a open at your own risk disclaimer for every thread with pictures.          

I had a blast today as did my DD.  Our kids are our babies forever.  Even when they are changing our adult diapers, LMAO.  We are blessed to have close mom/ daughter relationships with these vibrant young women.  

Did you realize that us four losers have dropped about 500 lbs between us?  That's FIVE HUNDRED POUNDS; or, the equivalent of three people or so.   We have so much to be proud of and more important to be thankful for. 

I'm glad to have the opportunity to share my experiences with your DD.  I know the value of talking to someone who understands by experience what it is like to have lapses in control over one's hands.  Or any part of the body for that matter.  As we were saying, we just take up out pallets and walk. 

There I am below carrying my pallet.  In spite of the hormonal and metabolic issues; the multiple meds that cause weight gain; the cycles of swelling and edema; blah blah blah, yak yak yak...  I'm doing what I need to do to maintain year over year for the rest of my days. 

Ooops!  Forgot the disclaimer.  Oh no I didn't.  Don't want to see?  Perrhaps you should not look. 

Forever.  No complaining, that's the plan.  To stay at zero and maintain forever.  Sizes may change but these measurements are set in stone for me.  I HAVE SOMETHING TO SMILE ABOUT!   

This time last year I bought my first size zero jeans.  I'm grinning from ear to ear because I am still wearing a size zero jeans.  There have been ups and downs and at the moment I'm at an up; however, basically I'm maintaining.  
                                          

.........................................................JUNE 17, 2011 - I'M STILL SMILING...........     
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I CAN SMILE A YEAR AFTER TAKING PICS IN SIZE ZERO JEANS BECAUSE TODAY I'VE TAKEN PICS IN A NEW PAIR OF SIZE ZERO JEANS. SAME MANUFACTURER. SAME SIZE CHART. I'M UP TEN POUNDS AND I HAVE A HUGE GUT BUT THERE WILL BE NO BUYING A BIGGER SIZE FOR ME.  EVER.  



......JUNE 17, 2010 - ITS DOWN TO ZERO BUT I'M NOT MAD ABOUT IT!.
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I'M STILL HOVERING A FEW POUNDS NORTH OF GOAL. HOWEVER, I'M WEARING MY FIRST PAIR OF JEANS IN A SIZE ZERO. 



...............................MAINTAINING! - STILL A FAT ZERO A YEAR LATER. 
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I'M CARRYING THICK THIGHS AND A BELLY LOADED WITH AN EXTRA TEN AT THE MOMENT; BUT, HERE I AM WEARING A SIZE ZERO JEANS AND SMALL TOP. A YEAR AGO THIS WAS MY GAP/ OLD NAVY SIZE AND I'VE HELD IT IN CHECK. NOW TO LOOSE THE GAIN THAT HAS BEEN MY NEMESIS SINCE APRIL.

 Mi panaloca linda ... it is always a pleasure breaking bread with you ... and yes I see we share that close mom/daughter relationship ... When we add the numbers up we did drop about 500 lbs between us WOOT WOOT ... I weighed in at 117 pounds today .. I was worried about being lower than my maintenance goal but I am fine with it now and may just keep it there ... and you my dear were as gorgeous as always ...

Love the pictures and thanks for the update. Hope your DD recovers fully VERY soon.


You are all so beautiful.


~Lori

 Thanks Lori.  I am hoping for the same.... we were given more hope today with new medication added.  She is upbeat and ready to kick this thing and get back to her normal state of being.  Thank you so much for your support and encouragement my beautiful sista.

Honey I'm wishing you both the best of luck.  It is awful that she is going through this. Keep us updated on what happens.

Sending love.
xx