THE STRESSFUL BOUNCE OR DROP .... my testimony

 Hugs right back to you Heather.... I am so looking forward to seeing you again.... Thanks you so much for your support and encouragement always.

Now where is the like button Fini?

Jane, that was ****ty. . .Martita doesn't cause any harm by taking pictures and posting them.  It's how she deals and what works for her. . .why would you judge that? 

That was so hateful.  Seriously.

What's wrong with you?

Marti, I enjoy your posts.  And if the gang is going to LI in the fall, I guess I'll just have to drive down too, or take the train.
Pat

 It would be awesome to meet up again Pat ... COME ON DOWN!!!! I would so love love love to enjoy your company once again and the OH Events ROCK! I have enjoyed all the ones I have been to.  This time Al, Candie and I are showing up and KenKen may want to tag along too ... he is always iffy .... 

We are driving down ... I still have to get directions so I can figure out whether we will take the ferry from Bridgeport over to LI.

Looking forward to see you again.

Marti
Oh hun..... My prayers and good thoughts sent your way and for your daughter and family!
You are a true treasure here on this site and your fun loving and postive spirit always makes so many people smile.

((((((Hugs)))))) and thank you for being YOU! If there is anything I can do, any assistance or help, drop me a PM. You are an angel m'dear!  Give the daughter extra hugs...Maybe the ferrets can visit her in the hospital for a Therapy pet visit?

As to the Dermatomyositis...If you want to ask ANYTHING on it...Ask me. I have it, have had it for over 10+ years, as well as Mixed Connective Tissue disease...Dermatomysositis is NOT a cancer sentence, honest it isn't. It is an autoimmune disease like Lupus or Rheumatoid Arthritis.

She might have to be on Prednisone, Enbrel (or other TNF med) biologics and even chemotherapy like Methotrexate, planquenil etc. Yes it can be a pain in the butt...But 75% of those with Dermatomysitis go into remission or total stabilization.

She is strong, like you! I went from having to use a motorized wheelchair and service dog (because I couldn't walk...Would choke when I ate, etc) to now being off all my autoimmune meds and working out at the gym and being healthy...And I'm an old woman! She is young and strong.

Hang in there. Email me if you need ANY information on Myositis (demato, Poly or IBM). There are some wonderful Myositis associatiations. She may have some other autoimmune disease going on as well...But basically the treatments are all the same. Steriods, Biologics and immunosuppressants.

Good luck!
Warmly,
Jackie

Lovely post!  Just beautiful!  Full of hope and reassurance!

 Thank you again my beautiful sista ... thanks from both Candie and I for all the support and encouragement you continue to send our way as we deal with this issue.... we thank you with sincere appreciation for your kindness and concern.

 I sent you a PM yesterday..... OMG I prayed for someone to come along like you to shed some light on dealing with this IRL ... I thank you so much ... for sharing your story.   I shared your PM with my daughter and she too thanks you ... you brought her much relief and peace to know that she will be able to go into remission and live with this .... thanks for paying it forward.