OT: Peripheral & Autonomic Neuropathy

S. M.
on 6/1/08 10:51 pm - In The Country, AL

Does anyone here deal with either or both Peripheral  & Autonomic Neuropathy?  I was just wondering if you could share your experience with these diseases.  Anything helping the pain?  Will it ever go away?  Can it cause permanete damage? I have both and OMGosh my hands and feet are the worst with pain and tinggeling!  It hurts to even type at times. Any suggestions OTHER than lower my blood sugar (which I am working on)? Nanci, did you have issues with this too?  I dont ever remember you saying anything about it.

~ Susan 
(deactivated member)
on 6/2/08 1:41 am
It sounds terrible Susan. I'm so sorry you have this and will be praying for you.

DebbieDoo
S. M.
on 6/2/08 2:02 am - In The Country, AL
Thanks for the concern.  It can be extremely painful and irritating, thats why I was hoping someone could relate to me and give me a few pointers on how to help "deal" with it.  I hate meds so Pain meds is a big no no for me.  I mean if ABSOLUTLEY needed I will do as the Dr says and take my meds like a good girl but YUCK! Thanks again Debbie!  Hugs, Susan
~ Susan 
Rie73
on 6/2/08 2:07 am - Tuscumbia,, AL
I have Peripheral Nueropathy. there are med's out there that might help you. I have tried 2 different ones. but it doesn't really help. It is permanete damage, nerves once damaged cannot be fixed. At least that is what I have been told. Mine is worse at night. I ended up going on disability because I could not stand on my feet of very long. I was a preschool teacher/ director. I just could not do it any longer. I also have it in my hands and sometimes they just burn just like the feet. But you need to see if the doctor will put you on something to see if it will help the pain.
S. M.
on 6/2/08 2:14 am - In The Country, AL
Rie73, Thanks for the info.  The last 2 times I have been to the Dr it was due to this issue and he gave me meds.  Neither have worked.  The pain, the burn....those darn little needle feelings hurt.  My DH will rub and rub my fingers and it helps for a minute or so but then its back to normal.  The Dr 1st thought it was carpal tunnel (sorry cant sp for crud) but then when it started in my right foot he changed his mind. May I ask how long you went through the pain before deciding to go on disability?  And was it a hard process?  I dont want to go down that road, but my dad says I may end up doing it.  Also what meds have you tried? Right now one of my biggest issues is writting, typing and unloading our truck once a week.  I drop those darn boxes all the time.  My foot I have gotten use to but my hands...........! Thanks again for your help!
~ Susan 
Elle Felts
on 6/2/08 6:36 am - TUSCALOOSA, AL
My neuropathy got so much better after I lost weight and WLS.  Are you still considering surgery?  Or have you had  it yet?
                     
                                
S. M.
on 6/2/08 1:24 pm - In The Country, AL

Oh Elle, I'm still in the waiting game.  We have been saving $$$ so I can go to Mexico.  Mayeb with my new position I can get it done with this companies insurance.  I will find out more about the insurance next week.  I am keeping my fingers crossed.  If I am correct I believe we have BC/BS insurance.  I've been doing some colorie counting and watching everyting that goes into my mouth  (ok ALMOST everything) I have dropped a few pounds but still have so much to loose!  Thanks for sharing your experience.

~ Susan 
Elle Felts
on 6/2/08 10:25 pm - TUSCALOOSA, AL
I wish you the best in your venture.  I hope everything works out for you.  WLS is the BEST thing that's ever happened in my entire life.  I am actually LIVING again.  Oh, and the diabetic neuropathy is SOOOOOOOOOO much better.  I haven't have the pain at all like I used to have, but I have lost a great deal of feeling in my feet.  All in all, WLS has been a WONDERFUL experience for ME!!  Wishing you all the luck in the world.
                     
                                
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