Elizabeth Grace - Updates
-
Wednesday, July 29, 2009 8:36 PM, CDT
Day 307
We will be starting the chemo in about an hour. She will get low dose cyclophosphamide, vincristine and then dexamethaso ne and a higher dose of hydroxyurea. Right now our hope is in these drugs and our TRust is in the Lord. We were told today we could do this or keep her comfortable. I hope and pray we do both, cure her and keep her comfortable. There is comfort in knowing God knows. I hope we are doing the right thing, giving up on Elizabeth was never in our plan and we will not start now. However, we do not want to cause her any more harm either. The problem lies in that no one really knows what exactly is going on with Elizabeth except that she has PTLD in her liver. That is the only thing we have been able to confirm. We believe the Rituximab helped but was also causing alot of side effects so the next course for treatment of this disease is chemotherap y. So that is what we will do. As far as the brain goes we had another opinion today by a neurologist. And I'm sure you won't be surprised to know it is a different opinion. Her best guess is the swelling and damage is from drugs and the damage done can not be fixed. So, as of now her brain could be effected from cancer, drugs, lack of blood and oxygen or who knows maybe all or none. I respect and appreciate everyones opinions but my I'm putting all my trust, faith, hope and love in God. He KNOWS exactly what is wrong and HE CAN FIX IT! I get through each hour of each day BELIEVING in that. Pray it be HIs WILL. I will try and update tonight after we start the chemo, in the meantime KEEP PRAYING AND KEEP BELIEVING... IN A MIRACLE for our baby! OuR LOve, The Dunford Family -
-
Wednesday, July 29, 2009 11:19 PM, CDT
Please say with us
O Holy St. Jude!
Apostle and Martyr,
great in virture and rich in miracles,
near kinsman of Jesus Christ,
faithful intercessor for all who invoke you,
special patron in time of need;
to you I have recourse from the depth of my heart, and humbly BEG you, to whom GOD has
given such great power, to come to Elizabeth's
assistance: help Elizabeth now in her urgent need and grant our earnest petition.
I will never forget thy graces and favors you obtain for Elizabeth and I will do my upmost to spread devotion to you. Amen
St Jude pray for us and all who invoke thy aid.
(say 3 Our Father's. 3 Hail Mary's. and 3 Glory Be to the Father after this .)
Elizabeth just started the chemo. Keep Praying and Keep Believing in her Miracle! we love you
Thursday, July 30, 2009 10:44 PM, CDT - Day 308
The prayers being said for Elizabeth are AMAZING! If any of you have time you should read the guestbook. You will see the love of God. Today has been a quiet day. She really hasn't opened her eyes very much at all. She seems to be resting more comfortably. The chemo ran through the night and besides high fevers all day today we think she handled it well. Her bilirubin was down to 4.8 this morning. She is getting a blood transfusion tonight and has continued to need platelets everyday. The fluid coming out of her belly is less. The two chemos ran last night and now she will get dexamethasone twice a day for 4 more days. If all goes well, we will repeat this next week. Physical therapy came today to do some exercises with her legs and arms and I have continued to do them all day. Her body is so incredibly weak. We will help her though. In the doctors opinion today was a good day. I think we have a concensus from most doctors that really time will tell what damage has been done to her brain. We will keep praying, hoping, trusting and believing she will be restored to total health. It is hard right now. We are getting through each day with God's peace and it will get better! Believing in that.
Dax and Alex are in ICU tonight with us. Dax had some breathing problems probably associated with the chemo he started last night. Alex is having some breathing troubles, liver issues, fluid on his lungs and pain. He will get another BMA in the morning. He REALLY needs our prayers. The three M7 babies all need a MIRACLE! I feel bad Elizabeth was leading this trio and was doing such a good job. She was cancer free, flew through transplant and was always SO HAPPY. Now they have all followed her to ICU. This is such a hard place to be. We have been here 3 weeks today. Elizabeth had her seizure 21 days ago, a very, very long 21 days. We thank Jesus for getting Elizabeth through another day and we go to bed with Hope in tomorrow. Keep Praying Keep Believing Love, Michelle
http://www.caringbridge.org/visit/elizabethdunford/journal
I have two sides to my brain - a right side and a left side. The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252 GW 140 CW 140
Most Active
Recent Topics
