Elizabeth Grace -- Sunday PM Update - No New Update Today
This update is from yesterday afternoon. I'm sorry for the delay. We went up to the lake and then I ended up in Urgent Care with Leah (UTI) as the doctor wouldn't call in an antibiotic and insisted she be evaluated. What a waste of time and money! *shaking head* Anyway, that is little trouble compared to what Michelle is going through with Elizabeth!
I keep hitting the refresh button on her page. I'm scared out of my mind. I do NOT want to go to a baby's funeral! *sigh*
Sunday, July 26, 2009 4:33 PM, CDT
Day 304
I just read all the guestbook entries. It is so comforting and amazing how many people are praying for Elizabeth, Us and it gives me much HOPE and PEACE! Thank you. Today is Sunday, the first Sunday in a long time I wasn't able to make it to Mass, but I have talked to God alot today and I have Peace in knowing that He knows what will BE and I have Hope that it is He who can perform Miracles. I have gotten two anonymous emails from people who never believed in God OR Prayed until they started following Elizabeth's journey. It is amazing that a two year old can do that and lets all thank God for that and PRAY He gives her a lifetime on Earth to continue His Work. I am still believing, still trusting and always praying. Thank you all for doing the same!
It was a long night trying to get the blood to stop in her neck where they had to put in a new line. It was hard on her and Me. Around 4:30 I tried holding her again but wasn't able to comfort her this time. I tried til 6:30 this morning and then switched out with DJ. I went to the parent room to rest but I have been so afraid to go to sleep, to wake up, to look at my text messages, to walk in and out of her room. This hour to hour journey in ICU has only been going on for 17 days and it feels like forever. Today has been more peaceful and better. She and DJ fell asleep in the bed. Her movements are less and she has OPENED her eyes a little bit a few times! Praise God! The doctors aren't sure what is going on so we just have to keep trusting in the Great Physician. Her neck just started bleeding again and ahe is still having high fevers that come and go. Her bilirubin is about the same 8. Her breathing has been GOOD. We are not doing anything today but trying to let her rest. Remember all our friends who are fighting cancer. KEEP PRAYING KEEP BELIEVING love, Michelle
I have two sides to my brain - a right side and a left side. The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252 GW 140 CW 140