UGH...I guess I just need support

Melissa C.
on 5/11/09 12:37 pm
Hey All,
Sorry I have been MIA for the last couple of months, things have been beyond crazy around here and two Fridays ago I got the shock of a lifetime.....
A little background; 10 years ago I was DX with Graves (hyperthyroid) I had a life threating Thyroid storm and was in a coma for 10 days, life support and all~ Six months after that the surgeons removed my thyroid and right nodes, and a parathyroid; the pathology report came back with stage 1 thyroid cancer, easy enough...one round of radiation...and of course they just removed both lopes of the thyroid...I was told to go live my life and take my meds each day...fair enough...Now I am Hypothyroid and somewhere along the line was DX with Hasimotos Thyroidis
Over the last couple of months (6-12) I noticed some weight gain, so I cut out all extra eating; LOL  even called my surgeon and talked about a revision...Dr. A just laughed....I did not find it funny...LOL 
So my PCP who normally runs all my labs has been noticing a pattern in my labs....my last lab at the end of April was horrible...I was over surppressed in Thyroid medication....however upon exam she felt a mass in my thyroid area....again I reminded her I have NO THYROID....she then orders a U/S of the thyroid......I no more got back to work and the doctor is calling me to get back up to her office.....I'm freaking out thinking omg the cancer is back....I did not go to the office, I went home instead and called the doctor and begged her to tell me over the phone..she finally did.....
My right lobe of my thyroid is still freakin there!!!!!!!!!!!  9 hours of surgery 10 years ago and my freakin right lobe is still there!!!  My path report states total thyroidectomy, my consent form states it....my world fell apart...the thought of living through all that again scares the crap out of me!!! 
I am having a FNB this coming friday to look at cells...I'm looking at the possibility of surgery, or radiation to kill the remaining lobe...right now my thyroid levels are bouncing back and forth from hyper/hypo..The endo doctor has taken me off of the 200mcg of synthyroid down to 75mcg...I feel a little better on 75mcg....but I'm still very shakey and then ran down at night.....
Oh this has just been crazy...I never in a million years thought I would have to relive any of this crap.....and now I am....
We have retained an attorney; and we are waiting for some more information to come in......I just feel like the last 10 years was a lie on my doctors part...which it was according to reports!!!  I'm angry, frustrated and pist all at the same time; when I really stop and think about it I freak out!!!
Anyways~If I can just ask for simple prayers, swinging of chickens, frying of eggs, what ever, I just really need some much needed prayers!!!
OXOX
Mel


Stephanie G.
on 5/11/09 12:51 pm - Rowlett, TX
Oh Mel, I'm so sorry to hear all this.  I bet you are mad, scared and everything in between.  What a mess!!  I'm glad you posted so we know what's going on.  Let me know if there's anything I can do to help or I'll just be a sounding board when you need one.  Wish you were going to Galveston with us, sounds like you need some "girl time".  Keep us posted.

~Stephanie~
RNY revision from lapband 7/30/07...TT/BL 10/9/08 and at GOAL

Melissa C.
on 5/11/09 12:56 pm
((( Stephanie))) I sooo wish I was going; I just think right now I'm scared to leave Terrell...lol
Call me or e-mail me when you get back, maybe we can hook up for a bite of lunch
Enjoy your weekend, give lots of hugs and kisses for me;
OXO
Mel

vickie O.
on 5/11/09 12:53 pm - amarillo, TX
i'm fairly new to the board, since last dec. so i don't know you. sounds to me like u are going thru hell.  i hope your doctor now will follow up and u can trust her. sounds like she is on the ball.  good luck to you. i will keep you in my thoughts.  vick

 

EXPERIENCE WITHOUT REFLECTION IS HOLLOW

Melissa C.
on 5/11/09 12:58 pm
Thank you Vickie I can sure use all the good thoughts and prayers!! 
Right now it is very hard to trust any doctor, My PCP know this, and I will say this she calls me every other day just to check on me!  I just really want the "shock" feeling to go away!!
WELCOME to the TMB..I have been around since 2003 and I can tell you these peeps are truely the BEST!!!  

OXOX
Mel

beckyhagens
on 5/11/09 12:59 pm - New Braunfels, TX
Awww Mel,  I am so sorry you have to deal with this. How horrible for you.  You have every right to be angry and frustrated and pissed.

I will keep you in my prayers for resolution and I know you will get through this.

Many hugs!

Becky

forgiveness is giving up the hope that the past could be any different

Melissa C.
on 5/11/09 1:01 pm
Aww thank you darlin....It is hell, but I know "this too shall pass" or make me crazy one!!!  LOL

OXOX
Mel

cajungirl
on 5/11/09 1:02 pm, edited 5/11/09 1:02 pm
Oh no Mel, I'm so sorry for you ladybug.  I can only imagine the whirlwind of emotions you've been through the past couple of months.  Hang in there sweetie and think positive thoughts.  I'm definitely going to be praying for you girlfriend.

If you want to chat give me a call, if you don't remember or have my number let me know.  I'm here for whatever reason you need me as much as I can be.

Edited to add:  I've no experience personally with thyroids but wanted to mention my coworker just had hers removed and getting her meds right has been a living hell for her.  Too high, too low rapid heartbeat to sheer exhaustion, it's just so amazing how it affects someone so much.

Love you,

Proximal RNY Lap - 02/21/05

 9 years committed ~  100% EWL and Maintaining

www.dazzlinglashesandbeyond.com

 

Melissa C.
on 5/11/09 1:04 pm
Thank you Dana,
You know I told a co-worker, It's kinda like being told your pregnant when you have had a complete hystrectomy!!!!  LOL
Shoot me your numbers I would love to chat with you! are you going to Houston this weekend???

OXOX
Mel

cajungirl
on 5/11/09 1:09 pm
No I can't make it to Houston, it's Cutter's birthday on Saturday.  My baby is going to be 8, that makes me so old, lol.

I PMed you my numbers.  Call me sometimes, I'm about off to bed now that the darn charlie horses in my feet have settled down.  My faul****er intake is almost nil today.

Proximal RNY Lap - 02/21/05

 9 years committed ~  100% EWL and Maintaining

www.dazzlinglashesandbeyond.com

 

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