count down is on....

19 more days------till surgery!! Monday- I have appts/ with the nutritionists...... Does anyone have specific questions they think I need to ask?? I'll let you all know how it goes.... http://s3.invisionfree.com/Mi_Casa_es_Su_Casa/index.php?act=idx (((( messgae boards... COME JOIN US!!)))) http://www.caringbridge.org/tn/stefanywilliams/ ( my daughter's journey with pre-luekemia)))

Hi Marie, what type of Leukemia does your daughter have? No mother should have to go thru this, watching their child possibly dying. I have Chronic Myelogenous Leukemia. I was diagnosed on July 7, 2005. I take Gleevec 400 mg everynight, the draw back is it's eating up my potassium causing me to constantly be admitted into the hospital. I am hoping that my Oncologist can put me on something that won't mess with my potassium. How is your daughter doing? She and her family are in my prayers. It's hard for an adult to have to go thru this, but no chile should have to go thru it. My heart is heavy for you and for Stefany. I would gladly donate my blood and bone marrow, but as I have leukemia, I wouldn't be much help. For that I am truly sorry. If you ever just want to talk to someone, don't hesitate to contact me. May God be with your family. Love Kathy

KATHY..... Stefany has had a bone marrow transplant.....and is 100% in remission. THANK THE LORD. She was diagnoses with PRE-LUEKEMIA.... MDS--with some chromosone abnormalities---(((http://www.marrow.org/PATIENT/myelodysplastic_syndromes.html ))) ....luckily they found a "match" for her.... after radiation and chemo... she had the transplant. Now...I;m not sure if I have mentioned this before..........but our baby... ( she is 3) was just diagnosed with the same illness.!!! CRAZY !! It is very crushing for our family!! We willbe going through treatment with Emarie- next month... with a transplant scheduled for MAY. We are very fortunate to have a great support system... and we also feel and believe that our children were brought to our family for a reason....(( see we adopted 5 children) all share the same birth mother)) and HE chose us to care and love and to see them through this awful illness................. anway...life is a rollercoaster ride........... so we HANG on.... and do thebest we can!! KAthy.... so... did you have the WLS first....(I'm supposeing)) then diagnosed with luekemia?? Where are you from? and If I may ask... where are you being treated? We live in COOKEVILLE.... but go to VANDERBILT CHILDRENS HOSPITAL in NASHVILLE for treatment........... We styaed at the RONALD MCDONALD HOUSE too--- during outpatient treatment... anway... boy.. you have alot on your plate too- I will keep you in my prayers!! MARIA