I have another sleep study
I am having another sleep study tomorrow evening after I see the kidney specialist. The last one wasn't done right, so how could they give me a report when wires kept coming off and they never put them back on? My ENT Dr. that reads the reports, has me going to a different place tomorrow evening for another test. He knows that with my machine at level 18 with 2 liters of oxygen that for me to not have to use anything when I am sleeping is not normal. I will always have to be on one, just maybe not as high a level, because of the leukemia and one right lung shrinking. Both times Ihave gone to the first center I have had inconcusive readings. So hopefully I will know know something next week as to the level I need. He also knows that when I am asleep my oxygen drops, the center never gave me any oxygen, saying I didn't meet their criteria. Well, of course I wouldn't when I am wide awake.
I'll keep you posted. Love y'all Kathy
I was unable to do my study last night, I ate two bites of food and was sick the rest of the night. My landlord just got off a bad stomach virus and I think I picked it up when I went over to get the water bill. Hopefully it's only a bug and will go away in a couple of days.
I haven't been on my chemo now for 10 days. There is supposed to be a new drug coming out that will do the same as the Gleevec that I was on, just not affect the electrolites. But I know my Medicare D plan won't cover it as it's new, they won't even cover my Gleevec as it's $3000 a month. I know the VA medical Center won't try it until it's been on the market for at least 3 years. So I will either have to go back on the Gleevec and have problems with weight gain and low potassium, or I go on chemo treatments. I don't know yet what my oncologist is going to do, she's waiting to hear what the Dr. who invented the Gleevec to see what he recommends for me. I too am waiting as I can't be off any chemo for any length of time or my white cells will start going up to high, and the leukemia could end up in 2nd phase. Don't want that at all.
Love Kathy