Hello, I'm in the same situation as you. Had gastric bypass rny in 2000 and now gained even more back thanks to thyroid cancer and Ehlers Danlos. I have t had any luck finding a surgeon who does revisions. Have you had any luck? I'm in Rhode Island. Thanks! Sheri

Hello,

I can sympathize with you. I had gastric with RNY way back in 2000. I lost a little over 100 pounds and kept it off for about 10 years till I got thyroid cancer in 2010. About 6 months after my thyroid surgery and radiation they found another thyroid tumor attached to my left ovary so I had that removed along with my left ovary followed by more radiation. After that the weight has been creeping back on. All the radiation took it's toll on me and made my Ehlers Danlos (connective tissue disorder) much worse leaving me unable to do much at all for exercising. I injure very easily and my fatigue is debilitating. After the gastric bypass, for the first time in my life, I knew what the feeling of "being full" felt like. It was wonderful to know when to stop eating and actually feel satisfied. I don't have that anymore. Anyhow, I've gained back all of the weight I lost and then some and am now the highest weight I've ever been. I've tried everything and can't lose anything. I even tried reaching out to a Bariatric surgeon only to be told they don't do revisions. I feel defeated and don't know how to get proper help that will actually lead to success which brings me here. I've also since been diagnosed with immunodeficiency disorder, Addison's disease and my Ehlers Danlos is crippling with many co-morbidities. I just recently had tethered spinal cord surgery and neck surgery hoping to make things better but I don't have much hope of my other health issues getting better till I can get this weight off.

Prior to my gastric bypass in 2000 I felt lost in who I was. Trapped in a body that didn't feel mine then I had 10 wonderful years feeling happy, healthy and confident where I enjoyed eating properly and exercising daily. For the first time I felt like the person inside matched the outside. Now here we are in 2020 and once again, I'm completely lost. This isn't who I am and it's holding me back and hindering me immensely. I feel like this is a major key component in me getting healthy again and being able to live again. Right now I'm in a terrible lost state.

I hope you don't mind me following this thread. I wish you the very best and hope we both can get the help we need. I'm located in Rhode Island so if anyone knows of a doctor near who would do a revision or conversion to the sleeve or band, please let me know. I can't really afford it but I'll also do what I can to be able to fly somewhere. I'm desperate to get my life back since I'm now on disability and feel pretty helpless. I have premium health insurance so it should cover. It's united healthcare choice plus. They pay $16,000 per month for my ivig infusion therapy for my immunodeficiency disorder so they'd probably pay for a revision surgery if it's going to make me healthier, most likely costing them less in the long run. Thank you & best wishes!

How are you doing?

Yep, I agree with Sparkle. Depends on your insurance. A very good friend of mine had dilation of the upper part of her stomach and her band was now useless. Her lowest was 180 I believe and she regained up to 250. She had high blood pressure again so her doc requested a revision. They approved the removal of the band only and she was told that she would need to pay for the revision out of pocket. They initially said that revisions would not be covered but then her primary wrote a letter of necessity/passion and a week after her revision, she received a letter from the insurance company stating that they would pay for it (She'd already paid) so it was a matter of getting refunds from the surgeon, hospital and anesthesiologist. She didn't argue

Hi
I had Rny in 2010 and regained all of my weight I'm considering other surgery options other than the DS such as the distal and sips because I can't find a qualified surgery who excepts my insurance to do it. I'm in New York and it's been very difficult. I can't afford out of pocket. I have Medicaid. Anyone revised to the distal or DS and know of any doctors in my state New York with Medicaid. Can u share your experience?