Need help finding Dr. ASAP

katlady
on 3/9/10 10:34 pm - Pittsburgh, PA
LOOOOONG story short:  My WLS went bad, I am in a rehab center and I have a trach.  The trach was supposed to come out, but none of the Drs want to take the responsibility to do so.  The surgeon who did my surgery SHOULD take it out, but i pretty sure he;s convinced I will sue the crap out of him for what happened, so he refuses to do anything to help me.

I need to get this trach out NOW.  Since I have a small neck/esaphogus, the trach is harsh and I am always coughing up blood.  The blood is from the trach, not anything else.  I am crying all the time because I am choking on blood and in pain... and I just want someone to help me.

I am in Pittsburgh, does anyone know ANYONE in the area who can help me?  I am desperate here.  I need to get this trach out... i can't handle it anymore.
Liz R.
on 3/9/10 11:03 pm - Easton, PA
Aww hun so sorry! Get ahold of the people at Magee. I know several of the ladies here have had surgery there and have had nothing but great things to say.

Hang in there and keep us posted! That Trach sounds evil! I'd be screaming for someone to take it out!
Nicole0216
on 3/10/10 7:24 pm - Lancaster, PA
I am not from Pittsburgh area so I dont know of anyone to send you to. But I do want to send you a big hug and tell you not to give up. I am so sorry you are going through this
lynnc99
on 3/10/10 8:21 pm
Can you give us an update? How are you doing today?

Do you have a family member who can advocate for your care and urge the doctors to remove the trach?

Can you get a patient advocate involved via the hospital or the rehab center?

katlady
on 3/10/10 11:49 pm - Pittsburgh, PA
Bottom line is that EVERYONE refuses to remove the trach.  I have an appt on the 23rd to have them look at it, and decide if they want to downsize it (WTF?  I don['t care if it is smaller.... I want it out).  Everyone... from my family to nurses here, has talked to the surgeon and he refuses to budge about the issue.

Nobody is willing to go against what he says/wants. 
The thing is... the only reason I have to wait until the 23rd is because he had no earlier appts.  I mean, if he wasn't an ass he could squeeze me in sooner and take care of things,  But he is making me wait because he simply doesn't have the time and doesn't see it as a priority.

I almost got thrown in the nuthouse yesterday.  I was about to rip the trach out myself after choking on blood all day.
Nobody seems willing to do anything more to help me,.  They all keep telling me just to wait.  Well **** you... I can't just sit  here... wait... choking all the time.
I have no idea what to do, and I hav e nobody left to help me.  It is not like I can pick up the phone to call someone... I haven;t been able to talk in over a month :(
Nicole0216
on 3/11/10 7:13 pm - Lancaster, PA

 I am so sorry, Call the patient advocate. Call the head of the surgery department, Call the head of the hospital. Is there someone in your family that can call everyone under the sun including any attorneys that may do medical claims? Hell your congressman? It seems awful that you would be held hostage this way. I am so sorry. Please hang in there.

katlady
on 3/12/10 2:46 am - Pittsburgh, PA
On March 12, 2010 at 3:13 AM Pacific Time, nicole L. wrote:

 I am so sorry, Call the patient advocate. Call the head of the surgery department, Call the head of the hospital. Is there someone in your family that can call everyone under the sun including any attorneys that may do medical claims? Hell your congressman? It seems awful that you would be held hostage this way. I am so sorry. Please hang in there.

I would call all those people and then some....
But I can;t talk!  I have the trach, the whole problem here, so I can't talk at all.
My mom is being a total ***** and left the second I asked her to call the surgeon again.
My mom and this rehab center's staff keep telling me that my surgeon will not see me any sooner, and there is nothing I can do about it.
So because he is ******g busy, *I* have to suffer?
I don't know what to do!  I want to call someone myself and beg for help, but I can't.  And nobody here is willing to help me.  They keep saying the surgeon is the one in charge, and I have to wait for him.  Well, he seems keen on torturing me.,.. why the hell would I listen to him anymore?

This is worse than prision.  At least in prision, you get phone calls.  I can't talk, so I am completely screwed here.
Nicole0216
on 3/12/10 5:14 am - Lancaster, PA
I am sorry I know YOU cant talk. But I was hoping there was someone who could do it for you. I wish I could help
Ready4 AChange
on 3/13/10 12:33 pm - Upper Chichester, PA
Just a suggestion.....DOCUMENT EVERYTHING  !  And yes, talk to a patient advocate. If that doesn't help if it was me....( not saying to do this it's up to you ) I would get a lawyers opinion. Have someone find out the specifics of why this doctor doesn't want to remove it . It may be a very good reason he doesn't want to.
Sending lots of huggs your way.
Sandy

Sandy  
        
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