Great News!!!
I saw my surgeon yesterday and he is taking me off ALL tube feeds! I was 116 lbs. in my clothes in his office, so up another 6 lbs. from last month. He wants to see me back in 2 weeks to see about taking out my tube!!! He wanted to take it out yesterday, but I reminded him what he told me last time about being off feeds for a month and see if I am stable, and then he decided 2 weeks was enough.
I'm SO excited! I can't wait to get this thing out. It's been causing me pain lately. I have a granuloma that developed and it's gotten huge and it bleeds. So he used some silver nitrate on it yesterday and now I have this blackened, charred lump that is shriveling up and will fall off. Yuck! It's still oozing. It's like it doesn't want to die. LOL!
So last night was my first night of not being on a tube feed since before my surgery last November. I can't tell you how good I slept! I was finally able to turn on my left side without fear of my tube coming undone and leaking all over the bed and me. I am sore from the silver nitrate treatment and just in general in that area, so I felt that, but I still slept really well.
I can almost see the light at the end of the tunnel. I'm back to work full time starting this week. I'm eating better without the pain on swallowing except just very occasionally. And I am learning when to stop eating to not overeat and get uncomfortable or in pain. We've actually started going out to eat again. I still bring ALOT home, but I eat enough that it seems like a "meal" to me. My acid reflux is under control with the Prilosec and doesn't bother me except very occasionally. And then I take Tums to get me through.
I cannot wait to get this hole healed up so I can take a bath and swim again. I miss that.
I would be happy to be around this weight. I actually feel flabby in the middle. I need to work out, but I can't yet. I hope I can get rid of the pudge there when I can start working out. I have suits I bought that fit in the jacket, but the skirt won't close. I have never been larger on the bottom than the top. It's weird. Oh, and I'm getting some of my boobs back. I hope they don't get huge again!
And did I share with you I got my period back? I haven't had one since June last year. So I feel like my body is adjusting and slowing coming back to normal.
Anyway, just wanted to share a positive note with you all. Thank you all for your continued support. I couldn't have done it without you all!
I'm SO excited! I can't wait to get this thing out. It's been causing me pain lately. I have a granuloma that developed and it's gotten huge and it bleeds. So he used some silver nitrate on it yesterday and now I have this blackened, charred lump that is shriveling up and will fall off. Yuck! It's still oozing. It's like it doesn't want to die. LOL!
So last night was my first night of not being on a tube feed since before my surgery last November. I can't tell you how good I slept! I was finally able to turn on my left side without fear of my tube coming undone and leaking all over the bed and me. I am sore from the silver nitrate treatment and just in general in that area, so I felt that, but I still slept really well.
I can almost see the light at the end of the tunnel. I'm back to work full time starting this week. I'm eating better without the pain on swallowing except just very occasionally. And I am learning when to stop eating to not overeat and get uncomfortable or in pain. We've actually started going out to eat again. I still bring ALOT home, but I eat enough that it seems like a "meal" to me. My acid reflux is under control with the Prilosec and doesn't bother me except very occasionally. And then I take Tums to get me through.
I cannot wait to get this hole healed up so I can take a bath and swim again. I miss that.
I would be happy to be around this weight. I actually feel flabby in the middle. I need to work out, but I can't yet. I hope I can get rid of the pudge there when I can start working out. I have suits I bought that fit in the jacket, but the skirt won't close. I have never been larger on the bottom than the top. It's weird. Oh, and I'm getting some of my boobs back. I hope they don't get huge again!
And did I share with you I got my period back? I haven't had one since June last year. So I feel like my body is adjusting and slowing coming back to normal.
Anyway, just wanted to share a positive note with you all. Thank you all for your continued support. I couldn't have done it without you all!