Any surgeons take medicaid?
As of June of this year, Medicaid will not pay for this surgery in any form. (check with the case worker as this may have changed since then, but I don't think it has). There may be a way to get around the medicaid if the patient is under 18. I know that Medicare paid in the past, but not sure if they still do.
You might find a support group meeting and go to one of them...if anyone has used medicaid in the past for this they could tell you about it.
Good luck!!