Hey guys!

Good morning guys, I am sorry I havent been around.  I went for a upper  GI and I passed out during it so they held me captive there in the hospital for a couple of weeks last month.  I have been feeling too icky to go online and the nausea is just horrible sometimes.  I have had one infection on the PICC line(which isnt that uncommon) but jesus mary and joseph did I feel like crap when that happened.  I had a 105 fever and I was saying my prayers b/c I felt like I was going to die! I hate this TPN b/c it makes everything spell like it b/c I guess my sweat spells like it.  My sheets to my clothes smell like TPN yuck.  It kind of smells like a really bad baby formula.  But I have to do what I have to do....alot of laundry.  heehee. I have gotten a couple surgicial opinions and I am pretty sure I know what I am going to do at this point.  I just a major setback b/c my surgeons father passed away and he was gone for a couple of weeks, so it just set everything back b/c none of the other surgeons could talk to him, to give their opinion and hear his.  Anywho, he is back and I saw him on friday.  He says I need to put some weight  on for another  4-6 on the TPN and we are trying to figure out if I am going into liver faluire or the TPN is just acting up on my liver.  So I am getting an MRI of my liver this week.  Fun stuff. The surgeon told me to call me today  b/c he was going to speak to this surgeon I saw in the city and hear his opinion on me.  Then we can move forward already. I have been seeing this pain management doc who has been doing nerve blocks and giving me these pain patches and they make life a little put easier.  I did a scope which showed my small bowel just under my pouch is very thin and my GI doc says it's probably like that around my system and he said most likely from just not eating. Anyway, I hope everyone is doing well and I was reading this board just now quickly and I am glad to see how everyone is doing so well.   I figure all I can do is just look to the future and see how to make it better and dont dwell at the past b/c it will swallow me whole.  I am trying to be as normal as possible b/c then I will lose my mind!  I have been trying to go out with my family and we have had friends over but its hard b/c people I have known for years hate seeing me like this and get so upset.  I saw "underdog" (I have a 5 year old and 4 year old nephew) and it was not has bad as I thought!  I thought I was going fall asleep but I didnt!  I am used to watching movies/TV shows like this.(for those parents out there you know what I am talking about!)  My son is really getting into 'dinosaurs' and I never know how to pronounce the names so I saw lets ask daddy when he gets home.  heehee.  (I can see that my nyu education paid off well!) Well, good luck to everyone and I miss hanging around here to be honest.   Thanks so much for my group of gals who always stay in touch, love ya!  Be well and love to all of  you guys.

Hey sweetie!!!  When I saw that smiling face on the board, it put a smile on my face!  Sorry to hear things weren't going so well.  Sounds like you have some really good medical people in your corner!  You know your well wishes and prayers are always here!

Big Hugs & smoocheroonies!

Yavia, Tavia, Tavia So good to see you posting hun and I am so sorry that you are still having to deal with all of this! Though like Cheri said, you have some awesome medical staff in your corner. Please take care of yourself and know that you are ALWAYS in my thoughts and prayers! If you need ANYTHING please feel free to let me know and if I can help I WILL!

Many prayers and hugs and get well vibes sweet one.  Hang tough baby....we all hope this gets fixed soon!

Hi Tavia.  Whatever route that you decide to take...just know that I wish you all the best. I hope that sometime in the VERY near future you will be able to enjoy your health. Take Care~~ Diane

Tavia - I'm just glad to see you are back posting. We miss you when you aren't on the NY board. I am so sorry  to see that  you are still having problems. Just know we all feel your frustration. I will keep you and your family in my prayers.  Hugs - Donna

Tavia, It is good to see you on the board; although I am sorry to hear that things havn't been going better for you.  You've been in my thoughts. Mary