this is my life

Hi guys, I went for my upper GI with small bowel follow this morning. The radiologist says he sees necrosis which is more than half of my small bowel is dying/dead from losing it's own blood supply which is why I have such paralysis in my bowel. Then he begins to mumble "oh but we need to print out the films and write up a report to your doctor blah blah" (They all just want to cover their own butts) Now I know I will defintely get put on TPN. If the TPN doesnt strengthen my small intestine, that whole section of intestine needs to come out. It is just a matter of when and what else I want done at the same time. I am beginning to think this surgery will never work for me. I am not saying that in a bitter mean way, just a realistic way, you know? I guess I am one of the lucky ones w/horror stories people pretend don't exist.(not you guys!) The only potential problem that can occur if I want to keep the bypass in place is something called 'short bowel syndrome' which is like major dumping/malabsorption b/c so much of my small intestine will come out. What they can do is attach the pouch back to the old bypassed stomach to try to avoid 'short bowel syndrome'...which is pretty much reversing the bypass surgery. This is pretty much my call. I am not at this point yet so I am hoping the TPN will help. I am just beyond frustrated and confused on what to do. On top of it, the doctors are driving me crazy and I got barium all over my shirt which is going to stain. Triple blah!!

Tavia, ((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))))))))))))))) I think you have an amazing attitude. It is certainly OK complain and vent. I just cannot beleive all that you had gone through and are going through. I want you to know that you are in my prayers. Hugs, Britt

Ditto what britt said tavia you are certainly one of the strongest I know to endure with asuch a smile what you endure keep the chin up and leep us posted you are in our prayers for sure fern

Tavia, I'm not extremely religious, but I do believe in the power of prayer. Have you ever heard of Padre Pio? This is a link I want you to read about him. http://www.padrepio.org/default.asp?page=home I am asking anybody *****ads this to please say a special prayer to Padre Pio for our TAVIA! I was introduced to his miracles during my last trip to Italy. The stories are truly amazing! Come on OH buddies, together we can help make a difference! Love you, Maryellen

Tavia Tavia Tavia.....You know how i feel...Hang in there and i cant wait to see you Thanksgiving!!!!!!!!!!!! Love Ya LisaMarie

(((((HUG)))))))!!!!! not sure what to say.... but i will add i cant wait to hug you in person at the holiday bash and see our little ones play together!!!!!

Tavia, I know I have not been on the board long, but what I have read, you have been through so much. You seem like an amazing person and I wish all the best for you. Betsy

Tavia... Hugs to you. You have no idea how amazing you are! I pray for you frequently that all of these issues will resolve! Love & Hugs... Lori

Hi, Tavia. God, you've been through so much, yet you keep such an upbeat attitude. You must be one of the strongest people I know! I contine to pray for your strength and healing! Traci

YOUR ALWAYS IN MY PRAYERS! Love you and your spirit! All the best! Kenny