OT Round 2 ...Sarah's surgery

Dear Shelli,

Thanks for the prayers and the advice. I'm a strong proponent of polite, firm, diplomatic and constant advocacy. Since I will be up there by myself with Sarah, I'll probably be at the hospital 'round the clock unless I'm absolutely convinced that one of the RN's has her back ... I'll just sleep at the hospital and will bring changes of necessities. She'll be in for 5 days.

Thanks again,

Barb

I wish you both the best.  You and Sarah will be in my prayers. Hope everything will go well! Elena

Thank you.

b

It brought tears to my eyes just reading your post. How brave your Sarah isto want to go ahead with a procedure that she knows will cause her such pain.  Please let her know what an inspiration she is to all of us here on this board.  I will certainly keep her in my prayersthat God will be with her and her doctors during the surgery and afterwards.  As a mother, we can all relate to what you will be going thru as you watch your brave little girl fight thru this battle.  Please remember to take care of yourself and know that we are all right here if you need us.   Much love and hugs to you and Sarah, Donna :-)

Donna,

Thank you for your lovely, thoughtful note. I want you and everyone else to know that I truly take a great deal of comfort from the gracious warmth expressed by you and the rest of my friends on this forum.

Barb

Barb, you and Sarah will be in my thoughts and prayers. I pray everything goes as planned!  Keep us posted!

Thanks... I'll keep everyone posted ...

Warmly,

Barb

Hey Barb, You, Sarah and the rest of your family will be in my thoughts and prayers.   It is so painful to see our children in pain.  Make sure you take care of yourself also and get your sleep where you can.  Do they have recliners or anything in the kid's room where you can sleep?    You have a very strong daughter to be able to face this.   My husband has cerebral palsy and had surgery on both his legs at the same time and was in bed most of the summer recovering when he was 16 yrs old.   Because of that surgery, he is 57 yrs old and still walking.    Take care and God Bless, Pam

Hi Pam,

Thanks for the well wishes and prayers. I truly appreciate them. As you say, she is one strong girl and she will get through this, but you are so right... It is very hard to see your children in  pain. If there was anyway I could take it away I would. I am hoping for and believe that in the end she will have a very good outcome, it's just right now the road is a bit rocky.

Thanks for your concern for me. I do have a 'sleeping' chair and there is a little deli nearby that I have used a couple of times so that I'm eating decent food. I had a grilled chicken ceasar salad last night for dinner.

Thanks again,

 

Barb