Ouchy, poor pouchy

My poor pouchy has been in a foul mood for these last few days. My food choices have become softer and softer. I just find it very hard to tolerate anything dense. I'm having a real hard time trying to eat meats and bread, veggies and fruit. I do alright if these foods are canned and soft but can only eat a couple of bites if it is fresh and home cooked. The last time I was in Moncton Lise suggested I may have some scaring where I had my stenosis or may be developing another stenosis and thought I should mention it to Dr. B. and he might do another gastroscope.Nope, no, no thank you, naw, no that's O.K. If it gets so bad that I am back on soup I MIGHT go looking for a gastroscope, but until then I will find a way to eat. I have had nothing in my life as awful as a gastroscope.I've had gastric lavage, NG tube, drains of every kind but found none of these as bad as the gastroscope. Hoping pouchy will bounce back and behave itself. Hoping it is not a stenosis.   Wish me luck!!!
                               

I hope that all is OK with pouchy !  What is a gastrscope ? 

Dr. B.passes a tube down your throat and into your pouch/stomach. it has a camera attached so he can see what's going on inside you.The scope is not the worse thing. Before they do nthis they give you an intravenous injection into the vein of the back of your hand of  something to makew you relax.  (didn't work for me) then they spray the back of your throat with something that tastes like the second coming of the devil.Gag a maggot!!! They do that twice just to be sure. I said at the time that I'd never have that again. The nurse laughed, I don't think she believed me.Oh my. 

I sure hope your pouchy feels better soon.  Googling stenosis right now!

Amary

Hey Maggie

Sorry to hear you are not doing so well the last few days!

How many weeks out were you when they did the scope for the stenosis - just asking because as you know I had the puke fest of all pukers my first 4-6 months - one of the first few times I was in Halifax Emerg they consulted with Dr Christou and he said he would not agree with them stretching/doing the scope where I was under 3 months . He said he always waits to see if it resolves til after 3 months because doing it .

He believes that if it is done before then it increases your chances of having to have it done again for exactly what you mentioned - scar tissue - so wonder if that might be what happened- unfortunately though this far out - you might have to have it done again if that is the issue - I know you are a nurse so you know if you have "super healed" which is what you basically are doing in closing over the stoma too much - you will need to have it stretched - you cant live on mush or slider foods. Are you getting in all your protein with supplementing with shakes ?

Keep on top of this - you have to be your own advocate and look out for Maggie.

hugs
deb

Its funny how things affect people differently.  I had a gastroscope and i never felt a thing and don't really even remember much about it.  it was painless for me.  Maybe next time for you won't be as bad.

Thanks for asking.I had the scope done exactly 1 month after surgery. I don't do protein shakes,don't like them.Had a bone scan on Wednesday and I'm going back to Dr. B in 3 months for a complete blood workup to make sure that I'm not deficient in anything.I feel fine.Finally broke a stall that I had since my last goal was reached. I eat a lot of protein rich soups and enough beans to float a ship. Oh my Penelope, I'm glad you don't remember much discomfort about your scope. The relaxant needle must have worked well for you. It did nothing for me until an hour or so after I left Dumont. I slept most of the way home. Too late then for the effect. LOL

I was just going to ask if they gave you sedation for your scope. But I see they did - BUT it didn't work for ya - ooops - I can see now why you try to avoid scopes - please make sure they note on your chart that wahatever they gave you was useless. Hope you are feeling better and things are going down better for you.

Normally - before this recent complicatioon I mean - I would have spurts of 2-3 days once every 6 weeks or so where I would tend to do better with softer foods. Not sure why - but I just went with the flow and things would get back to normal. But - and I don't have to tell you this - this should not be an ongoing thing for you. Us nurses don't always do what we should - Right? And I'm a great example of that

Hope this settles down soon for you!

Unfortunately we tend to poo poo symptoms because we don't want to be whiners after seeing soooo many whiners in our career. We also tend to self diagnose. Both of these are wrong and we should know better. Sometimes we need a good swift kick in the saggy behind and given a good talking to. Fortunately, we are also very good at giving anyone a good talking to and swift kicks to the butts are delivered PRN  ad lib. LOL