Multiple Scelerosis Questions

glendafromlaurel
on 11/18/05 2:36 am - laurel, MS
My sister finally got a diagnosis of a part of her illnessess. She has Multiple Scelerosis (sp). Scary to say as well as spell. Medication is a daily injection-- which costs $1600.00 a month. Her seizures have not been labeled w/ a diagnosis other than hemaplegic migraines w/ aphasia (inability to speak during an episode) There have been weeks and as long as a month she could not speak. We need to find a support group to attend in the Laurel /Hattiesburg area. Do any of you know of anything concerning help for MS patients. Do you have friends or family w/ MS? She is 45. She is on medical leave. She cannot drive until she is 1 year seizure free. What a bummer of a holiday season. I Did not mention that her husband is a poultry farmer and the farm was so damaged by Katrina that it can't be operated. He is a afraid to leave Sylvia at home alone. My niece is so upset she is withdrawing from Ole Miss at the end of this semester to come home and help her mom.
TweedleDum
on 11/18/05 4:33 am - Hattiesburg, MS
Melissa's mother in law has MS... I dont know too much about it. She is out shopping today and not on the boards but she will probably get on later. I am so sorry to hear this--I know its going to be a tough but we will all be praying for them.
Southgrim
on 11/18/05 3:46 pm - Madison, MS
What a wonderful daughter to have. Unreal that this poor woman is having to endure this. I'm so sorry, please know they will all be in my prayers! HUGS Kimberly
Miss Liss
on 11/18/05 9:09 pm
As Christine said, my MIL has MS, and it is a tough disease. She has had it for about 21 years. She has relapsing and remitting meaning she has periods of short remissions. You get one long one and then they are few and far between. Her long remission lasted 14 years which allowed her to raise her children. But now it is out full force and the longest remission she has had lasted about 2 weeks. MS is a very sad disease to sit by and watch someone go through. My MIL swallows about 20 pills a day and does copaxone injections daily. Her medicine cost her a few thousand dollars per month. She is in pain pretty much 24/7. She no longer can drive. I am sure she would share any information with you she can. She is very knowledgable and has a special MS doctor treating her. She gets the best care there is available for MS. And she has people calling her all the time that have it and want to know her story and everything she knows. There is also a lady at my church that has MS, and she may know more about support and treatment available here in Mississippi as my MIL lives in Alabama. I will ask her next time I see her. She has been out of church lately as she hasn't been doing as well. She is in a wheel chair, but she is in my Wed. night class so when I see her I will ask her about support here. I am so sorry to hear about your sister, but at least there are medicines that can help treat the symptoms and make life better now. There used to be no treatments available 20 years ago when my MIL first found out she had it. Thank goodness for her remission. If you need anything or have any questions, you have my phone number. Feel free to call me anytime, and I will find out what I can for you. In the meantime, I will keep your sister and her family in my prayers. Melissa
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