HUGS!!! Man where did a month go already??!!??!!??
Let me start out by saying, how sorry I am for worrying everyone it was NEVER my intention to do that in any way!! I love you all dearly and know I would NEVER have made it thru any of these past couple of months without your support and MOST important your prayers!!! Please KNOW I FELT EVERY prayer and have thanked God for each of them and for each of you!! Ok Jeanine stop crying and post LOL!! I wish there was a way to type how I feel but I'm afraid words could never do it justice, so I will have to simply say THANK YOU with ALL my heart!!!
My surgery was Nov. 14th seems long ago now in some ways haha, everything went pretty well considering a couple of bumps. I arrived at the hospital early, still not nervous at all, I think DH was handing the worrying, poor man. Finally they called my name, DH and I jumped up and I think I almost sprinted back hehe I was SOOO ready to get it done!! I got into my fashionable gown they so kindly give you and weighed, I almost hugged the nurse when she told me I had gone from 433 to 404, I sure wish this joy had lasted long not to mention the weight lose haha.
All the giggling and celebrating was soon brought to a end when the people with sharp needles arrived. The first nurse started with my hands and stuck me 3 times, no luck, so she sent for back up who did about the same, so they sent for the astrologist and his assistant. The two guys were so sweet they asked my had I ever had two men holding my hand at one time like that, I said why no especially not while holding needles lol. They tried several times each, blew many veins, by this time poor DH, whom I could see over their shoulders was GREEN, I felt way worse for him than me, poor baby. At this point they told me it was time to turn me over to the surgeons for a subclavian port in my chest, I had had only one of these previous to this and it was a nightmare to get put in and they got that one first try, how i wished it had been that easy this time LOL. I tried not to cry when I kissed DH goodbye as they would not let him in while they did the port, I dreaded this something awful.
I was wheeled back into preop and greeted by some of the nicest nurses on earth especially my new buddy Jeffery!!! I can not tell you how true the first words outta Jeffery's mouth to me would be, he said Hiya I am Jeffery and I am gonna be your new best friend cause I have all the best drugs haha, he was a anesthesia nurse, he would become my rock and feel like my link to all of you, he got me thru some of the worst hours of my life.
After being strung up like a Christmas goose Doc H. made his grand entrance to do the port, he was humming and smiling as always, comforting and happy, I was happy to see him. If ever there was someone who could rattle Doc H's cool tho it seems it is me, he attempted to do the port several times, I felt awful I could tell he was frustrated, hated hurting me and was trying so hard to be sweet, saying ouch doc every stick, trying to comfort me, then there was Jeffery, saying look at me doll and holding my hand. I kept thinking I am gonna panic any minute this hurts so bad, I don't think I can take one more poke but then Jeffery would squeeze my hand and I could FEEL all your prayers, I could hear you all say its ok Jeanine you CAN do this, you will be so happy when this is over, it WILL be worth it!! Man tears again here I wish so much I could tell you all how odd these feelings were I felt so wrapped in love and despite the pain I could feel it seemed like I was some how removed from it in a way as well. I told them all so many times I was so sorry for making them all work so hard but they would say the same to me, we all were a sorry lot haha!! Finally the unflappable Doc. H. said it was someone elses turn so he sent for his partner, very nice man who tried several times as well but still no luck for him either, he told me well I USED to be 99 to 100 percent successful on these, poor man. Now I was starting to get nervous, I thought oh God please don't let me have gone thru all this and NOT get the surgery done!!
They resent for the anesthesiologist who brought in the big guns LOL a sonogram to see the veins in my neck. Jeffery guided the sonogram machine as the anesthesiologist tried for a vein beneath my corroded artery, was really odd to hear them talking about me while they were doing this LOL. It hurt something awful!! After the first failed attempt I almost lost my grip on calm and started to cry, but before that first tears fell good Jeffery was there he patted me and told me this is it sweetie we almost had it and this time we WILL!! True to his word they did get it on the next try and sowed the port in, then tapped it down like it might try and escape lol. By now it had been 4 solid hours of poking, I had blood and bandages everywhere, Jeffery cleaned me up a bit then started pouring in the good drugs he had promised me.
They wheeled me quickly to the OR since I had put them so far behind they were in a hurry. I started gagging on the way from all the junk they put in, thank God there was nothing in my tummy to come up and the gagging made the nausea pass.
Now it was time to face the breathing tube, I would have to be awake to get this done they has told me and I was so praying it would not go badly or that they would not have to trach me. Wasting no time the anesthesiologist sprayed my throat and began putting down the light tipped tube. It didn't seem so bad at first, then it got very hard to breath and panic started to finally set in, I heard the guy say you'll be asleep in 2 seconds and I was thank God!!
Finally it was over!! I woke up with a dim memory of thinking I could not wake up LOL, I was already in my regular room and DH was there!!! They were helping me out of the OR bed but my back hurt so I opted for the chair right away and stayed there more than the bed over the next couple of days! Everything from here was great, leak test passed, walking in, drinking fine, doc H in and out charming as always, then on Sunday I was on my way home, bit bruised and battered but happy!!!
My mother arrived for a two week visit the day I was released from the hospital, she got there a couple hours after I got home. I had worked myself silly before surgery so everything was spotless, stocked up and ready to go LOL. I got up Monday morning before everyone, put a roast in the crock pot and cooked everyone breakfast, I thought wow this is gonna be cake!!! The next couple of weeks I cooked went out with mom a few times, grocery shopped, walked, saw doc H., even cooked Thanksgiving dinner and except for a bit of gas pain one day, some side pain here and there, a little weakness/ shortness of breath, all of this I figured was due to just having surgery, I thought be tough like Jan, Bec and the others push thru this you just need to work up some stamina. Oh when I went to see doc H I figured I would have some water weight come back from the hospital but to my horror I had 20 pounds come back I almost cried so at one week I was back up to 426 BOOOO HISSSS!!! Margie and Doc H assured me it would come right off tho.
After a great visit with my mom, mainly just hanging out and talking Steve and I put her on a plane for home. It had to snow the day she left so she was delayed twice due to that, we tried to get her to wait a day or so to leave but she had missed her 31st wedding anniversary and thanksgiving at home she was ready to see her hubby and home I know LOL!!
Week three I think Ok finally a little down time to relax a day and then back on the horse. I was doing well on my protein and water, vitamins etc been getting all or close in almost every day for the last couple weeks, I thought this is not so bad. Pain was getting better but I was still weak, I was noticing things more like my cpap didn't seem to be working like it had been before surgery, I blew it off along with the weak spells, I figured your just tried you need to cut yourself a break. I gave myself a couple days of bare minimum walking, eating, drinking, picking up a bit and feeding DH LOL. I took some cold meds thinking I was getting cold I could head it off and added more asthma meds to boot, didn't help. By day three I was very short of breath, if I even walked to the bathroom, but I had a PC doctor appointment coming up in a few days and figured I wouldn't die till then haha push thru it!! DH wanted to take me to the ER Wednesday night, no I said we will see how I am in the morning but I am sure I can make it to the appointment, WRONG haha. Next morning DH says how are you, I gasped as I lied and said I am fine, to which he said GET in the car!! I begged him to go to work, we were so broke after all the days he missed with me and I hated to think I would make it worse when this turned out to be nothing more than a cold. My MIL came to take me to the ER at DH's request, she was so sweet to me I am lucky to have a MIL like her well most days haha.
The ER was a shock LOL started out good they weighed me and I had lost down to 409, 17 pounds!!! Then came the poking again, blood gases, IV attempts, xrays fun fun NOT!!! They finally got a blood gas done, God how I hate those painful things, also after several attempts they did get a regular IV in my chest I was so happy but that wouldn't last long haha. After the xrays they came in and told me I had a plural effusion or fluid around my lungs, in my abdomen and some in my lungs as well and they would be giving me a room because I needed to be on oxygen. Not only are they keeping me but in ICU no less, OMG your kidding me RIGHT!!!! UMM NOPE!!! Turns out they think that during all the poking to get a IV in before surgery they may have nicked a lymph gland, it leaked and i guess resealed itself but the fluid build up cause double pneumonia not to mention the pressure I was feeling trying to breathe. They first told me it was a LOT of fluid and would more than likely need to be drained, so I needed a bigger IV, NOOOO please don't say the word, SUBCLAVIAN, NOOOOOOOOO Not again. Yep 4 attempts and according to the nurse assisting Doc. Johnson's feet actually leaving the ground to shove the port in I had another chest port CRY!!! This time they had it go up instead of down so it seems it was in my corded artery so they forgot to inform the nurses to NOT draw blood from it since it could collapse my vein and oh kill me haha. thank goodness only one drew blood from it and slowly before they told them, sad really sad. I was not dehydrated badly so only one bag of fluids and some antibiotics went in it after that. My PCP call Doc. h. who told them to do a CT scan to make sure there were not any leaks or blood clots, thank God there was neither, between the scan and a couple more chest xrays they could see a lot of what they thought was fluid was pneumonia so I didn't have to have anything drained. 4 days of pills and fun, they finally let me out with a boat load of meds., oxygen, orders for a new sleep study and to follow up this coming Monday with my PCP. I am still not 100 percent but I am MUCH better, I am trying to use the oxygen less,mainly at night now. Been out a couple times, Doctors, bit of shopping, so this will be a smallish Christmas as I just could not seem to get everything done as it needed to be, I hope everyone will understand and not think to badly of me, CRY!!
At any rate that catches you all up LOL, I hope to be back to posting on a regular basis again now!! I am so sorry for missing so many happening in your lives, I still have so much to catch up on with all of you!! I have not missed one day of praying for all of you and God willing i wont miss any in the future!! Know I love and think of you guys ALWAYS!!! I thank you for all you have done for me and the prayers, I am a very very blessed woman!!! I would not have made it thru all this without you all!!! THANK YOU!!!
I did get everything I need for the COF party done, DH and I have a gift each to exchange, have my secret pal's gift, hoping they make it!!! I am bringing a veggie and dip try, and a cheese and cracker tray, I know I usually love to cook and would have made something better but I hope you will all forgive me and let me make it up to you next time!!!
HUGS!!!!
Love you all!!!
Praying for you all!!
Jeanine
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oh my goodness , Bec told us all about what you went thru but with you telling it i can feel such pain and hurt..I am so sorry that you had to go thru the pneumonia too. just too awful. but God has brought you back to us and to the board..Your Sweet little hubby the times i talked to him , you could tell he loves you so deeply and was so worried about you.
I know when he called me about you having a (cold) and what could you have ...oh my word i didnt know you had pneumonia. but thank God he pulled you thru .....we all are so thankful that you are doing better and no fair you will not be sick any more. NONE YOU HEAR???? see you monday....
http://community.webshots.com/user/mimicook?vhost=community
GOD BLESS YOU TODAY
JAN COOK
Love and Hugs Deb
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girl you have had your fill...now enough is enough...Im soooo glad that your back home...please try to take it easy and just sit back and let the wonderful husband of your take care of you...please. Please let him know that I thank him for the time he took to talk to me when I called...I was so worried about you.
Anyway your home now and thats all that matters...sit back and relax...k
Love and Hugs back to ya...
Super duper to see you back on here!!! What an ordeal! Some of us dont have as easy a time as others but in the long run it will all be okay and you can look back at all that with a faint smile and say....even with that, it was worth it!
Cant wait to see you MONDAY....love you girl!
GOD is my ROCK! SUGAR
Sweet Sweet Jeanine!
You dear friend are an inspiration!
Your story has done much for me! I will never look at my experience in the same way again and did learn a valuable lesson AGAIN that when we think we are going thru the simply worst, we still have so much to be thankful for... I remember being scared out of my wits when I went for the stress test and the Lord had so wonderfully and gracefully put Dear Debbie Darl'n in my life to be there, she was simply a wonderful comfort to me! and those two days were my worst of my journey but it was NOTHING compared to what you went thru! I will never forget walking into your room and seeing you with that neck situation and you telling me what all you went thru... I am weeping now at the thought of it... the Lord has brought you Thru so very very much and I KNOW as I said before that there is some wonderful good things in store for you... I don't know what they are going to be but I just can't wait to hear you tell it in the future!
Be of good cheer... God is NOT finished with you yet!!! Not by a long long shot!
Love you,
Bec