My whole upside down world...

Yesterday I was told I would never sing again....I would never be able to go to college for anything. etc etc....The new ENT Dr in KV told me that I would never be able to have my Trach tube removed..I will have to have it the rest of my life..Seems like things were going so good. But, yet again sometimes I think I get to going to good and it doesnt seem to last very long...Ive enjoyed so much living again...But now i have to face this that I will never be normal...Ive learned to come to terms that I have to make the best of things. I will be away from the computer for awhile..this computer acts up and the site is giving me fits....I love you all very much but Iam so depressed that I need time to slow down since things have been going to fast for me the past four months...Please understand.......I will come back off and on when ever the site will let me...Email me anytime......God Bless Craig Lee

Graig, I am so sorry to hear this. But remember the LORD has a purpose for this ,it will just probally take a while for you to see what it is. You are such a great inspiration to all of us here on the board. Have you thought of inspirational speaking or starting a support group. I know Craig in my heart GOD has a special path for you. I have been a nurse for about 30 years and now can only work part-time and that it is hard to find someone who is willing to let you keep a job and have the time off for illness.But I do part-time apartment management and have found this wonderful site with all of these wonderful angels to keep me going. And Craig you are definitely one of these. You know I can't carry a tune if I tried but I can sing all I want in my heart. I can't go back to work at the hospital right now but I can be there for people who are in there and for others that need help in some way or another.Craig I have muscular dystophy when I found out it was almost devistating, not because I had it but because I found out my beautiful daughter inherited it from me and so did my granddaughters. But when people ask how we do it we tell them this is what we know, we live this everyday and go on. We try not to dwell on it just take one day at a time.We live love laugh and go on because we know we can always find something worse than our lives. We lost Marilyn suddenly, I lost 2 of my best friends this year without being able to say goodbye but but my friends new I loved and cared for them no matter what I encountered. And maybe that is what the LORD wants us to know; love life how it is, if something happens to improve it feel blessed and enjoy because we can't live for what we think we want but what we are given each day.I hope you will be able to meet us the 19th in Sedalia at Golden Corral, you are such an inspiration for all of us. God Bless JULIA

Craig, my shining star!! You sound like you have been kicked in the gut AND ran over with a truck!! Where is your glorious sprirt? Your inspiring words? I have depression so I know how you feel...but we never give up! Real Life can be a real drag but this battle along with all the others belong to the Lord, not us! That is probably the most important thing I can say to you right now! Get in your prayer closet and don't come out until you have given every bit of those burdens to Our Lord, where they belong! As for the trach being a "rest of your life" thing...who says? God? I don't know about you but I would be going for 2nd and 3rd opinions! God is the only opinion that matters and until I heard that from Him, I would keep searching. Who is this Dr? He sounds like a Dr McGloomy!! No one but God and yourself can keep you from doing these things! I don't know you that well Craig but I can tell by the way you talk, that the Lord leads your way, let Him do that now! As for things going good for too long, I don't remember God saying that all our days are going to be great, that we will never have any hardships...do you? My pastor tells us that when we come across things like this it just means, we're being stretched....in other words...Spiritual Growth!! Hang in there Craig...better days are ahead.....Deb M

I am so sorry Craig, but God may have other plans for you, and some doctors just dont know when God gets involved. and I read that you can play instruments that is a talent that not many have, and would love to, you can still do that , and who knows, it hasnt been that long since your surgery. you tell satan to get behind you that you have our blessed Jesus Christ with you.....God Bless....vesta

Craig I am so very very sorry, I dont think i can say it any better than Julia did in her post. You are a very special man one of my best buddies and i love you dearly. You are such an inspiration. and You KNOW that God never shuts one door that he doesnt open at least a window somewhere else. Honey look hard and long for that window. This doesnt mean the end of everything just the start on a new and different road. You didnt say why he said that you could never have it taken out. was there a reason? Love you and will pray that you will still come to the get together on the 19th of Dec. will love to see you. take a day or two to pray and to ask for Gods guideance and listen to what he answers. There are lots of things that you can still do without the singing . You can still play the instruments. Love and care for you deeply. Jan

Craig, What a terribly unhappy man that ENT must be. You reach down, grab your bootstraps and find a second or third ENT. And then, if that's the way it is, you let go and let God lead you in another direction. I will be praying for you and keeping you close to my heart. Love and hugs, Lana

Never?? Never sing again,never go to college,never have your trach removed? Sweetie never is longer than anyone can guarantee. God still performs miracles EVERYDAY. You should know that since you are living proof of it!! How many nevers have you heard before? Never is something they say when they don't know how long. Get a second opinion ! Keep trying for college!! Sing to your self until you can sing for everyone else. Do not let yourself be defeated. Do you think God brought you this far without plans for you? Really do you? I don't think so. You have prayed for everyone on this board so many times ,so now it's our turn to pray for you. Friends of Craig join me please. Lord we ask that you heal our brother Craig as we all know you can. We ask that you reveal your plans for him when you are ready and until then Lord we ask for you to give him strength,hope,and peace. Father we also want to give thanks to you for the wonderful gift of Craig ,that you have given all of the members on this board and people in his life. He is a blessing and Lord we lift him up to you right this moment in your name and we thank you Jesus for this glorius day,for our health,our families , our friends and all for the miralces you have and will bless us with. In your sweet name,AMEN. Dannielle

Thanks for the prayers...I laid down today and thought out some things and I prayed...The Lord is telling me that Iam still Craig. Iam still the one who sees beauty in things and Loves life. I just had my hopes up is all and got shot down ....But, Like i told jan back at the first of the year...I will not let this beat me....Satan is rebuked...Danielle, thanks for the beautiful prayer....Thanks everyone Iam feeling a little better tonight....I know there are people just like me out there and I dont want to be so selfish and inconsiderate...I rather pour out my love for them .. I see this as a tool for me to spread his word now.My pcp told me that I need the space between my stoma and vocal cords lasered to remove excess skin...that way I can talk without putting my finger to the hole to talk ..That will help.But my sinus's and back of tougue will not permitt me to sleep a normal nights sleep without the trach ever...That cannot be operated on so he told me..Iam going to make the best of it....you know...This past four months have really went fast for me...it was time to set back and take notice and cry...like I did today...I needed it.... Leta, Jeff and I will be in Sedalia on Dec 19th weather permitting so please have all hugs ready because I sure need them...I got one for each one of you guys too....Please forgive me for being so negative on this mornings post....Love you all and God Bless Craig Lee

Craig i cant wait to see you and leta and Jeff. And i will have plenty of hugs ready for you . You are one special man do you know just how special , I doubt it but God does. You have the right to be negative and down when you get bad news but I knew that you arent one to let the devil defeat you. You are a fighter and like someone said get a second and third opion. There is probably someone somewhere that can do what you need done. We all care about you and feel your dissapointment .Know that you have so many friends on here that care about you . God Bless you my friend. Your buddy Jan

Thank you dear Lord for keeping Craig in your grace and rebuking the devil. Craig, you know Jesus is an important part of my life as I know he is also in your life. I can not say much more than the ones before me, except I believe in the power of God and his will is done in his time. I do believe that anything is possible and with all the prayer from this board going to the throne of God, we will accept his will. We love you and will continue to pray for you. A nxious to see you and jeff and Leta on the 19th. Mel is coming with me too. Colette