X-Post . . . Has it really been 4 years already?
Yep, yep it has! 4 years ago today, I went through an 8.5 hour surgery to get the intestinal portion of the DS. For those who don't know, or don't remember, my story, I had a VBG in 1985, and a revision/repair in 1986. Because of the type of band used (Molina), and having 2 abdominal surgeries, I have seriously excessive adhesions in my abdomen, and on my stomach. I contacted several top-notch DS surgeons, and got the same answer - can't do the sleeve, but we can do an extended limb RnY. Nope, no thank you. I'll stick with what my original surgeon offered - the intestinal portion of the DS, leaving my stomach as is.
I'm 5' 5.5". My hospital weight was 326. I read normal BMI in 15 months. I made it to mid-range BMI, and my goal of 135 at 22 months. I had an upper body lift and a tummy tuck during year 2, making my lowest weight of record 126.8. I've since hovered between 131-134, pretty much regardless of my eating habits.
My labs have all been pretty 'acceptable' for most docs, but I've kept pushing to get them better. I had my 4 year labs done Monday, so I don't know how successful I've been, yet.
I still weigh just about every day - I don't pay it much heed, except Fridays . . . that's the day I make myself accountable by posting my current weight to a small group of friends, who also happen to be DS patients :)
I have no food issues, virtually no gas issues (except into the toilet every morning), no poop issues - not that I don't poop a lot, but that is totally a self-inflicted condition. IF I cut back on the amount of crap I eat (and I don't), my bowel habits would probably nearly a normie habit. But I'm fortunate in that I can eat anything - I mean absolutely anything, without issue or weight concern.
I do take a pile of supplements, and I wish I could find an easier way! But, I can't, so I take them. I'm post-menopausal, so the start of osteopenia on my last DEXA scan isn't pointedly a DS issue. That's the only issue I'm currently dealing with, but since my mother had it, I'd probably be dealing with it as a non-DSer.
I now wear a size 6 jeans (give or take a size, depending on the cut, style, brand) and I prefer to wear a large shirt, although I could wear a medium. The last 'dress clothes' I bought are a size 10.
The last photo I have is from 2 years ago, but I'm not even sure it's on my profile. Maybe after I post this, I'll see if I can find it (and if I remember how to upload one!)
I'm thankful to Tammy Bishop for pointing me to OH, and to the DS vets who got me here - you know who you are :)
Mary J
I'm 5' 5.5". My hospital weight was 326. I read normal BMI in 15 months. I made it to mid-range BMI, and my goal of 135 at 22 months. I had an upper body lift and a tummy tuck during year 2, making my lowest weight of record 126.8. I've since hovered between 131-134, pretty much regardless of my eating habits.
My labs have all been pretty 'acceptable' for most docs, but I've kept pushing to get them better. I had my 4 year labs done Monday, so I don't know how successful I've been, yet.
I still weigh just about every day - I don't pay it much heed, except Fridays . . . that's the day I make myself accountable by posting my current weight to a small group of friends, who also happen to be DS patients :)
I have no food issues, virtually no gas issues (except into the toilet every morning), no poop issues - not that I don't poop a lot, but that is totally a self-inflicted condition. IF I cut back on the amount of crap I eat (and I don't), my bowel habits would probably nearly a normie habit. But I'm fortunate in that I can eat anything - I mean absolutely anything, without issue or weight concern.
I do take a pile of supplements, and I wish I could find an easier way! But, I can't, so I take them. I'm post-menopausal, so the start of osteopenia on my last DEXA scan isn't pointedly a DS issue. That's the only issue I'm currently dealing with, but since my mother had it, I'd probably be dealing with it as a non-DSer.
I now wear a size 6 jeans (give or take a size, depending on the cut, style, brand) and I prefer to wear a large shirt, although I could wear a medium. The last 'dress clothes' I bought are a size 10.
The last photo I have is from 2 years ago, but I'm not even sure it's on my profile. Maybe after I post this, I'll see if I can find it (and if I remember how to upload one!)
I'm thankful to Tammy Bishop for pointing me to OH, and to the DS vets who got me here - you know who you are :)
Mary J