OT: Anyone ever had a Pilonidal Cyst?

dolfinluvr77
on 7/16/08 1:26 am, edited 7/16/08 1:48 am - Moorhead, MN
Ok, so a few months back, just a month before my GB surgery my buttocks right at the top of the crack started to hurt SO bad - like I could barely sit, walk, or move. Even went so far as to have my hubby look at it and take pics b/c well obviously I couldn't see it!!! I went to my primarly doc and she said right away it was a Pilonidal Cyst. I had never heard of such a thing. She explained what it was and said the only way to fix/cure it was surgery. Me not being one to jump on a surgery table too quickly went home and immediately did my Google homework. Needlesstosay, I found some pretty horrific and what I now know worst case scenarios but still scared the beegezers out of me. It continued to get worse so I took her advice and got a consult with a surgeon. But by the time I could see the surgeon it had pretty much gone away...after 1.5wks. of pain. He said it WASN'T a Pilonidal Cyst which just confused the crap out of me b/c after all my research and even chatting with others on a BB I believed it was as well. He said to come back if it comes back and to see him when its at its worst. Nice.

Its been said that people get this and it goes away and comes back or sometimes only happens 1x and never comes back. I'd sure hoped that was my case but it appears as though its starting to come back again. Crap! I am waiting it out a few days to be sure its really the beginnings of that but thinking I need to call and get an appt. with the surgeon again b/c it took a long time last time and that's why by the time he saw me it was "healed"

Mine doesn't seem to be as bad as most I've heard about. It really, as my husband describes it, a big long cut at the top of the butt crack that looks like its split open. There is no pimple I've heard mentioned but there is pain and later on I'm sure will be draining as occured the first time. I think I have a sinus track but that's only from what I've heard and read from others.

Has anyone else ever experienced this??? I would really like to hear from others b/c if surgery is my option that would REALLY suck b/c its an open wound (heal from the inside out) surgery...on my BUTT!!
lynnk
on 7/16/08 1:32 am - burnsville, MN
My daughter's first husband had this-the army wouldn't let him enlist until he had the surgery.  he had had several episodes, and the surgery was pretty invasive.  I would get it taken care of asap-he had it for some time, and it was deeply inbedded, which meant deep wound care-not fun!!  good luck-I would call the surgeon today and make an appt! 

LynnK

wendymay15
on 7/16/08 4:20 am
I had a pilonidal cyst. I ignored the first 2, the third and 4th needed to be lanced. That was living hell. I ended up having the surgery and haven't had one since. I wouldn't wait to have 3 or 4 before having the surgery, they only get worse with each occurance.
dolfinluvr77
on 7/16/08 4:23 am - Moorhead, MN
My biggest question is that I don't seem to have a pimple or sinus that I've been told. What I can feel is what seems to be a "cut" that has opened just at the beginning of my butt crack...I don't feel anything else. I have another appt. with my primary doc today and have a list of questions to ask about what she sees so I can compare it to what I've been reading. I don't think there is anythere there to be lanced persay. I feel as though if it is a PC its rather minor on the scale. But I do feel a deep dent just before this "cut" happens...maybe a sacral dimple? One of the questions I will be asking.
theshullcrew
on 7/16/08 4:34 am - Farmington, MN
I had one of these several years ago. The surgery is not fun, but it will continue to reoccur if you don't do something about it. Some people have a small indent (I think it is the sacral dimple you're talking about) and it is actually a small opening. Something can't get stuck inside and get infected. It is very painful and will continue to cause you pain. Get it taken care of. I have not a had a reoccurence.

Jami

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