OT: Prayer Request

I am requesting prayers for my friends son who just had a relapse and his cancer is back :O( Please add him to your church prayer list, keep him in thoughts and prayers and feel free to forward this to anyone you can! The power of prayer is strong!!

I am including Kyles Caring Page and a journal entry from his mom Teresa.

 

God Bless

 

http://www.caringbridge.org/mn/superkyle/

 

Journal

Monday, December 3, 2007 9:14 PM CST

I am not sure how to start this entry. The last 4 days have been a nightmare and yet it seems so normal. So here is what happened. On Friday Kyle and I went to Children's for his MIBG scan, which is specific to Neuroblastoma. Well, I looked for the spot on the head but I couldn't make it out so I thought, whew we are safe. So I sat with Kyle joking and watching Sponge Bob...as the scan progressed a spot on his leg appeared. I knew what it meant but I was hoping it was nothing. As they always do with scan they have the radiologist take a quick peak to see that they have all the information they need. Well, they came back and asked for another head scan and for a scan of the legs.... I knew what it meant but I kept it to myself. When we were done I sent Kyle off to school with Gramps and headed straight to the 4th floor Oncology/Hematology clinic. I asked for his nurse Ellen. She came out and said she didn't have results yet.... I told her "I saw the spot...I know what it is." She then went back to find out what she could and Dawn, one of the Nurse practitioners came out. Dawn said lets find a room.... the clinic is under construction so finding a place was difficult but we ended up in the nurses workroom. Dawn then confirmed what I suspected and told me that Dr. Perkins was on her way. It was Dr. Perkins day off and as I said before she did not suspect anything to be wrong. I called Troy and had him come down immediately. Dr. Perkins came and we talked and then Troy came and talked some more. Kyle has relapsed. It isn't the news you want to hear. We talked with Dr. Perkins about options and they went to work to get thing moving quickly so we can put a treatment plan together. Dr. Perkins was very upfront and told us that if she didn't think it was worth it for Kyle to go through she would tell us but she thinks he has a shot and we are going to do everything we can for him. The anti-body study that we were trying to get him randomized for which would be here in the twin cities is closed. The only option for Kyle to get that treatment which is the most promising for him is to go to Sloan Kettering out in New York City. So Dr. Perkins has consulted with Dr. Kushner about Kyle's case. We don't have details yet. We decided to wait to tell the kids until Saturday night as it was Dad's weekend and we knew that Kyle would want to be home at Mom's after he found out. So Saturday evening Kyle and Kiana came home and we told them that Kyle's cancer is back. Kyle cried, but then we talked about what was going to happen and he took it in stride as Kyle always does. He said he was okay with getting his Hickman back.... at least he doesn't have to be poked. He doesn't mind losing his hair again.... it grows back and he is very handsome bald. The only thing he doesn't like is that he may have to have his tummy tube again. I told him if he eats well then it shouldn't be a problem.... that is yet to be determined. I am sure he will have more questions but at this point he really hasn't asked them. I think as we get back into it things will come up. Sunday we went to Church and then the kids went back to Troy's for the afternoon. One of my girl friends from elementary school, Michelle, hooked Kyle and I up with Wild Hockey tickets for Sunday evening so Kyle and I had a date for the game and dinner. We had a great time.... Kyle was surprised that they fight in hockey.... but I did explain that they do get penalties to they shouldn't fight! Today, Kyle had an MRV (which is an MRI that studies the veins in his chest. The machine is really noise but they have a really cool new tool with it...Kyle was able to put goggles on and watch a movie for the whole time.... and since he is so good at scans he didn't have to be sedated. I checked in with Ellen and there is some debate as to if Kyle will need to have a stem cell harvest or not.... we will know more Thursday when Kyle goes in to see Dr. Perkins. So the plan for the rest of the week is.... tomorrow Kyle has outpatient PT with his buddy Lynn, then on Wednesday we are scheduled for bone marrow biopsies and Hickman placement. He is schedule for surgery at Noon CST, so please keep him in your prayers then. Thursday at 8:30 am he has an appointment with Dr. Perkins and then they will decide if we need to do GCSF and the stem cell preparation. If they do the harvest he will go in on December 11. Dr. Perkins wants us to have the holidays off and then start chemo in January. Kyle is suppose to make his First Eucharist in the Spring but we are going to move it up and have it on December 23 so he will be feeling good and have his hair. Lynnette, Joel, Peter and Matthew will be in town then so the whole family will be able to celebrate that special day. We are also going to have the sacrament of anointing of the sick. Kyle is really happy we can move this up and do it while he is feeling well. Also then he will be able to receive the Sacrament while in treatment. So we are now on a new road.... we can only pray that God will lead us to a cure and give us a Miracle cure. We know that statistics are not on our side but as Dr. Perkins told us, this is Kyle.... and to focus all our energy on that. This is so hard; it is the news that you never want to hear. But we will do everything we can for Kyle and enjoy every moment we have together. My faith tells me to trust in the Lord. I am trusting him with my most precious gift and I know that he has a plan for Kyle. I trust that plan and I will trust that it will be okay. Your continued prayers and support are so important to Kyle and me. We need them now and throughout this new journey. Kyle has found comfort in St. Peregrine who is the patron saint of cancer. I have a book of devotions that I will share with you in the next few weeks. Well...that is what is going on here...not the news that we prayed for but we will move forward, we will make the best of the situation and keep our hope and strength for Kyle. He is an amazing kid.... I draw so much strength from him! Mom--Teresa

He has my prayers!

Prayers going up!

They are on their way from me!!!!  So sorry to hear this sad news.  It's always soooo hard when they are so young!!!

 

I will be keeping him in my prayers as well.

Hello Ali...I am so sorry to hear about your friends son.  That is such a awful illness. I know this first hand because my grandson Nic also was recently diagnoised with Neuroblastoma once again. This is his third time. At ages 3 and 13 and now at 14. It is in his bone marrow this time. We are waiting to hear what they will be doing to help him this time. Nic also has a site on  CaringBridge. I am sending prayers for Kyle and his family and also the doctors that they can find a way to fight this awful monster!!! Hugs   connie d

My prayers are going up for Kyle.... How old is he?

My prayers for Kyle and his family.  What a tough thing to have to deal with.  God bless them

Lots of prayers from our families for your friends family. 

What a story! I will say my prayers for sure. I REALLY  hope things end up ok. Life is just SO unfair sometimes. But I believe God will keep him safe. Thanks for sharing this story.  Hugs, Lori