my brain surgery
Pam O.
on 6/20/11 11:15 pm - Mt.Pleasant, MI
on 6/20/11 11:15 pm - Mt.Pleasant, MI
well I had the surgery on wed (15) thurs I go back for follow uo ( 23) my biopsy should be back by then. I spent ONE night in the hospital. NO double vision so that was good.
They had to break my nose so thats sore I just want to blow it.. the sinus rinse just doesn't do it.
I HAVE to do radation FOR SURE otherwise the tumor will come back.
there's the scoop in a nutshell :)
Pam
They had to break my nose so thats sore I just want to blow it.. the sinus rinse just doesn't do it.
I HAVE to do radation FOR SURE otherwise the tumor will come back.
there's the scoop in a nutshell :)
Pam
Pam O.
on 6/21/11 10:21 am - Mt.Pleasant, MI
on 6/21/11 10:21 am - Mt.Pleasant, MI
thanks so much for the encouraging words.. I can really use then right now.
thurs can't get here fast enough.
thurs can't get here fast enough.
Pam O.
on 6/23/11 8:49 pm - Mt.Pleasant, MI
on 6/23/11 8:49 pm - Mt.Pleasant, MI
well yesterday was awful!! my biopsy came back and it was POSITIVE for cancer. I need some special radation ( IMRT) so they gave me 4 out odf state choices or U of M .we chose U of M. They want us to stay there a straight 6 weeks :( we'll see they better have some good ideas to make that happen.
I KNEW I had to do radation but NOT the damn C word!!
so there's the scoop..
Pam
I KNEW I had to do radation but NOT the damn C word!!
so there's the scoop..
Pam
Pam O.
on 6/28/11 12:04 am - Mt.Pleasant, MI
on 6/28/11 12:04 am - Mt.Pleasant, MI
thanks to all of you for the support.
I go back to the cancer doc on thurs. 2 local docs today..
geeze I need a break from all these docs :)
I go back to the cancer doc on thurs. 2 local docs today..
geeze I need a break from all these docs :)
Hi Pam,
Sorry your facing this, cancer sucks!
I had cancer 7 years ago, breast, and was only given a 30% chance of survival, it was a tough year, but tolerable.
My first recommendation is to do some research and make sure you are getting the best care possible. Many doctors follow the 'gold standard', I heard that so many times I wanted to puke, the gold standard is the safe route for the Dr., not always in your best interest. So do your research.
Second find a good support group, almost every local community has some type of support group, hospitals offer it too. I found the time I spent w/ my support group to be invaluable. Meeting people who have been down the road you are facing is very comforting. If you can't find a local support group there are also on line support groups that you may find helpful. There is one based out of Chicago that will try to hook you up with someone who is about your age, with your type of cancer that you can talk to either on the phone or interned. http://www.imermanangels.org/
If you want to talk PM me with your phone # and I'll be happy to call you.
Good luck,
Edie
The reason they are recommending that you live near U of M is because radiation is done 5 days a week, and for me, it was exhausting, knocked me on my butt, so driving it everyday may be hard on you.
Sorry your facing this, cancer sucks!
I had cancer 7 years ago, breast, and was only given a 30% chance of survival, it was a tough year, but tolerable.
My first recommendation is to do some research and make sure you are getting the best care possible. Many doctors follow the 'gold standard', I heard that so many times I wanted to puke, the gold standard is the safe route for the Dr., not always in your best interest. So do your research.
Second find a good support group, almost every local community has some type of support group, hospitals offer it too. I found the time I spent w/ my support group to be invaluable. Meeting people who have been down the road you are facing is very comforting. If you can't find a local support group there are also on line support groups that you may find helpful. There is one based out of Chicago that will try to hook you up with someone who is about your age, with your type of cancer that you can talk to either on the phone or interned. http://www.imermanangels.org/
If you want to talk PM me with your phone # and I'll be happy to call you.
Good luck,
Edie
The reason they are recommending that you live near U of M is because radiation is done 5 days a week, and for me, it was exhausting, knocked me on my butt, so driving it everyday may be hard on you.
You don't have to have a lump to have breast cancer!
Inflammatory Breast Cancer
www.ibcresearch.org
Pam O.
on 7/8/11 3:39 am - Mt.Pleasant, MI
on 7/8/11 3:39 am - Mt.Pleasant, MI
thanks Edie for the kind words. I was SUPPOSE to start on the 11th BUT the brain surgeons want me to wait a FULL 4 weeks before Istart so I'm starting the 18th instead.