Ok it's October, so here I go!!!

elm62
on 10/17/09 8:09 am - Clarkston, MI
Ok, as you can see by my signature I'm a breast cancer survivor......not only am I a breast cancer survivor, but I'm an Inflammatory Breast Cancer Survivor.  As someone who has worked in the medical field for over 2 decades I never heard of my cancer  and I doubt you have either......so here I go.

Did you know you don't have to have a lump to have breast cancer????????

I didn't and I scheduled breast biopsy's and mastectomies for years and years and still didn't know this cancer existed.  Let me tell you my story.

In late January 04 I awoke and like every day got ready for my shower.  I notice a pink spot on my breast, about the size of a stick of gum and just as pink.  When I saw it I thought I slept  'funny'.  This pinkness happened for 3 days in a row, then nothing, 2 days later my nipple turned purple.....like a bruise (that never went away).  I also felt some thickning on my breast, so I went to my Gyn.  She could see the brusing but could not feel the thickning.  She told me to get a mammo.  I had a lot going on in my life at that time and it took me a few weeks (6) to make the appt. for my mammo.

By the time I had my mammo my breast was now pink, itchy, hot and about a cup size larger.  It seemed that my whole breast was infected.  And a small 'spot' on the side of my nipple appeared, it looked like my nipple had leaked.

I had other issues (a rash on my hands, "they" say it was not connected) so I went to a dermataologist, ultimately they bisopsied the spot on the side of my nipple and it came back as metastatic cancer (because it was the skin, not breast tissue, the cancer had grown to the skin, not uncommon for IBC).   And my life changed forever.

Inflammatory breast cancer is one of the rarest breast cancer, only 1-4% of all breast cancers are IBC, when I was diagnosed I was given a 30% chance of survival (I believe it is now up to 40%).  "Regular" breast cancer has a survival rate of 97%, if caught early.

Please go to the IBC site (in my sig), read up on this cancer.....know your body.  Don't just look for lumps, look for changes and insist that they listen to you.  This is your body and your life.

Thanks for "listening",

Edie

Please ask any and all questions....I'm here for anyone.




You don't have to have a lump to have breast cancer!
Inflammatory Breast Cancer

www.ibcresearch.org

marymazilla
on 10/17/09 9:47 am - GARDEN CITY, MI
Edie
Thanks for posting this
And I am glad you are a survivor.

"When we stop running away from the situation that is scary - that is the moment we discover how strong we really are. So, acknowledge your strength...rejoice in it...and start breathing in life, as the beautiful, strong soul (being) that you truly are." - Rachna Sirtaj.......Love & Peace
       
 

    
Pam T.
on 10/18/09 1:06 am - Saginaw, MI
Thank you for sharing your story, Edie... and for educating us about IBC.

My Recipe Index is packed full of yumminess!
Visit my blog: Journey to a Healthier Me  ...or my Website

The scale can measure the weight of my body but never my worth as a woman. ~Lysa TerKeurst author of Made to Crave

 

Karen C.
on 10/18/09 7:58 am - MI
Edie, I have never heard of that type of breast cancer before, but I will make sure to take extra care to check my breasts for changes as well as lumps.  Thanks for getting the word out about IBC.

Karen
cpoisson
on 10/18/09 11:04 pm - Farmington Hills, MI
Thank you for sharing your story Edie.

Carey
ttjab3
on 10/20/09 12:31 pm - Mio, MI

Thank you, Edie, for sharing your story with us.  I am with the others who have never heard of this kind of breast cancer.  Thank you for gettig the word out for  us ladies!!
My grandmother had breast cancer, so I am a bit worried about it.  I will watch more closely too.
I am glad you have survived it, also.  You are such a sweetie and I am sure you have shed so much joy in OH!!!
God Bless,

 Highest weight: 309 pounds ~ October, 2009
PATS ~ Monday, February 22, 2010
RNY ~ Wednesday, March 3, 2010  ~ weight morning of surgery: 279 pounds
7 Months out to the date ~ Total loss of 100 pounds!!  October 3, 2010: 179 pounds
February 1, 2011 ~ weigh 146 pounds
  

elm62
on 10/21/09 5:29 am - Clarkston, MI
Thanks for listening ladies....it's up to us to educate and help each other.

Please pass this info. on.

Edie

You don't have to have a lump to have breast cancer!
Inflammatory Breast Cancer

www.ibcresearch.org

marymazilla
on 10/21/09 8:34 am - GARDEN CITY, MI
Just a note Texas Road House is giving 10% of all sales to BC research this month.

"When we stop running away from the situation that is scary - that is the moment we discover how strong we really are. So, acknowledge your strength...rejoice in it...and start breathing in life, as the beautiful, strong soul (being) that you truly are." - Rachna Sirtaj.......Love & Peace
       
 

    
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