Possible MS??

Pam T.
on 6/22/09 2:04 am - Saginaw, MI
Dani -

I wish you all the best as they finish up the tests.  I'll keep you in my thoughts and prayers.  Just wanted to pass along a tidbit of information I learned recently.  It has been shown that if we are able to keep our Vitamin D levels up over 80nl/mg that there is a reduced risk for certain cancers (breast, colon, prostate) as well as a reduced risk for MS.  So as you're going through testing, they might want to keep an eye on your D levels too.  Just a thought.

Do a Google search for "Viatmin D Council" for more information on this.

Pam

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IMready4chg
on 6/22/09 10:26 am - Howell, MI
Thank-you, and yes my Viatmin D level has been VERY low since my surgery. I believe I am taking 1000mg pills a day now or something along those lines because 700's were enough.   I did read that low viatmin D levels can be a cause too. 

Thanks again and I will google.

Dani
Karen53
on 6/23/09 2:01 am - Roseville, MI
Hi Dani, sorry my response is so late.  I do have MS and have also had WLS.  I've had MS since 1985 and it did not prevent me from having WLS (I had gastric bypass in 2006) nor has the WLS had any detrimental effects on my MS.   Although there are differing schools of thought on the topic, it's generally accepted that surgery does not affect MS - it doesn't cause exacerbations or "flares".   I would certainly agree - - I've had two surgeries since my diagnosis and absolutely nothing happened as a result of the "trauma" of the surgeries.   The fact that people who have WLS cannot take NSAIDS doesn't really have anything to do with MS treatments - - most of the therapies (the injectables) offered for treatment of MS recommend tylenol anyway, so you're safe there.

The symptoms you describe could be caused by many different conditions, so try not to be  too worried.  I would do just what you are already doing - - ask questions and read, read, read.  You got a lot of good advice from all of the posters here.  The NMSS (National MS Society) has a great deal of literature on line and there are message boards like this one on the web too, where you can learn of others' experiences and ask questions.  And I would like to say "there is life after a diagnosis of MS"......  I've had it for 24 years and you wouldn't know it unless I told you.  I still work full time, I own my own home, I drive, I travel, I do anything and everything I want to do. 

I wish you the best of luck.  If you have any questions for me about MS (or WLS) please don't hesitate to contact me.

Karen
Imastar4life
on 6/25/09 12:08 pm
OMG...this is important info!

Have your doctor check your B12 levels. B12 deficiency mimics MS. The reason it seems that ppl that have RNY are suddenly diagnosed w/ MS is that they are B12 deficient and lesions have formed (spots) on their brain. These demylenation (sp?) can cause numbness, muscular weakness, and even blindness. In my case I had right eye acute blindness. They thought that I had MS. Sent me through all the test and the spinal tap came back negative for the MS protein. Then I decided to be proactive in my own health and research vitamin deficiencies b/c I didn't believe I had MS. Low and behold B12 deficiency mimics MS. I had my neurologist check my levels and I was extremely low. I started getting B12 shots and currently talke sublingal B12 daily.
B/c of all this I cannot get RNY since I have a history of B12 deficiency. I must get the sleeve to assure that my levels don't fall off again. BTW, my sight returned after 13 days of steroids...

Good luck! I hope this helps...
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