Possible MS??

IMready4chg
on 6/21/09 3:03 am - Howell, MI
Hello Everyone,

Has anyone been diagnosed with MS after having surgery?  I had my first MRI in May due to some health issues, now I go back in July for a follow-up MRI to rule out MS because I had a few spots on my brain. Scared!!!!  

Thanks,
Dani
Ernurse2007
on 6/21/09 3:07 am - Mason, MI
Hello and sorry about the scare.  I don't  think that surgery would cause MS unfortanetly its and autoimmune disorder that can effect anyone.  Especially women.  It is hard to diagnose because of the vague symptoms.  I hope that everything is ok.  I had a few spots in my brain about 3 years ago and they said it could have been ms or possibly a stroke but my doctor at that time was not that concerned.  I will be 40 this year.  I hope all goes well for you.

Mary Jo
IMready4chg
on 6/21/09 3:17 am - Howell, MI
Thank-you for your reply,  I am hoping it is something else too.   I've been reading up on it just incase so I am prepared to ask question to the doctor.  Just wondering the option of the meds since we are not to use asprin/moltin products.

Thanks again
Ernurse2007
on 6/21/09 3:30 am - Mason, MI
Have you seen a neurologist yet?  I'm sure if your doctor thinks it MS he would refer you to a neurologist.  Watch some of the data out there and remember that .com sites are commercial so if you want up to date information on a specific disease it will not be from the dot com sites.  I hope you can relax a bit till next month.
Take care,
Mary Jo
IMready4chg
on 6/21/09 6:03 am - Howell, MI
Yes, I was referred to a neurologist back in April because of all my symptoms. He’s the one who sent me for an MRI. They already did other testing to role out vertigo and a couple other things. I did go out to the MS.org sit to read and then got a couple of books from library, but quit reading them for now because they were scaring me.   Let me tell you a little of my symptoms; I get dizzy multi times a day, my right hand keeps going numb, my balance is off and bump into things a lot, muscle spasms & craps in my legs,  confusion with words at times, lack of concentration, and the biggest problem is fatigue. I can be sitting at work then with out warning I fall asleep sitting in front of my computer. They have checked my thyroid, also gave me a thing to check my sugar level when I get episodes, and have me check my blood pressure when I got dizzy to see if my pressure was dropping to low. I am not low on vitamin B either, actually it’s very high and don’t take any supplements. That was the first thing they checked.   I would love to find another cause for all these symptoms. Last week I started keeping a diary of what I eat and time, then what symptoms I have through out the day so when I go back to the docs in July we can review it.   Thanks again for your help. Dani
saxman007
on 6/21/09 4:19 am - Port Huron, MI
 Dani,
I fortunately do not have MS though both my father and my cousin (cousin from my mother's side) do have MS.  I do have psoriasis and psoriatic arthritis (both auto-immune disorders).  I do worry about MS since I'm on immune system suppressant though I've been ensured by my doctors that it isn't a worry.
It takes a while to diagnose MS (I believe my father was close to a year) and it is often diagnosed by ruling everything else out.    Hopefully you don't have this disease, but if you do there are great medicines and great support networks out there.
As far as the medicines for MS go they are NOT the same as asprin/motrin.  Most of them are injections or infusions.  Pain management can be Celebrex (COX2 inhibitor) which we are cleared to take after the RNY.  
I hope this helps some, if you want more information I've got quit a bit and some great references/resources to get my hands on more.  Do know that your RNY isn't going to effect your MS or MS treatment
--Sax
IMready4chg
on 6/21/09 6:25 am - Howell, MI
Thank-you that is what I needed to hear, if I have MS I want to make sure my surgrey is not going to prevent me from getting the best possible treatments. If you know any reliable website or can email me any info that would be great.  I just feel like knowledge is power and I want to be as prepared as possible before I go back to see doc.  I'm only 37 yrs old and I want to be around a VERY long time for my son.

Thank-you again for any info and help you can provide.
Dani
phyllis gilbert
on 6/21/09 8:59 am - frankenmuth, MI

Sorry to hear this,

I know the drill, and it is extremely scarey!!!!!!!!!!!!  mine happened before surgery.  A spot was found on my brain a few years ago, and I too have been through lots of MRI's for it. I doctored at U of M for it briefly and I still doctor for it. I have had a spinal tap for them to MS out. It did not show anything, but they have not ruled it out either. They told me they just did not know, and they would keep watching it.
They also said, they may have been just catching it early and that is why they did not find anything in the spinal fluid. 
I continue to have re-checks on it periodically, the spot is still there, but has not had any other activity on it. They continue to check me often for other symptoms of MS since that is what led to them finding the spot in the first place. 

                                        Best Wishes To you Dani.
                                         Phyllis

Phyllis Gilbert
IMready4chg
on 6/22/09 10:38 am - Howell, MI
IMready4chg
on 6/22/09 10:39 am - Howell, MI
Thank-you for sharing your story with me. I find it very hard to talk to my family and a couple of friends I shared with, because as soon as I told them it might be MS they say "Oh no it's not, and we don't even want to hear you talk about it". So, right now I have only been talking to my doctors and feeling very alone.  Your right it is EXTREMELY scarey, I wish July 14th would get here already because the stress is really getting to me. 

Thanks again!!
Dani
 
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